EndMalnutritioninME
@malnutritionme
Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. 25megroup.org
ID: 1567066509511467008
06-09-2022 08:31:49
799 Tweet
437 Takipçi
553 Takip Edilen
Hugo
@mx__worldwide
They/them | 29 | ME/CFS since 2016, v/severe since covid in 2022 (now 99% bedbound) | Severe hyperacusis | Pro disability justice & pro 🇵🇸 mxworldwide on 🦋
Rachel
@rachelleese84
Londoner, wife, Mum, pwME (myalgic encephalomyelitis). Lover of wine 🍷.
Crystal
@gemzme
Isabel Ramirez-Burnett | Renegade Research
@isabelramirezrd
CEO @renegaderes & Director @remissionbiome Decentralized, human-centered research. #MECFS #longcovid #IACI
Kat Finney
@kfswim
In the abyss. v severe #mecfs fighter (+10 years)
@abysspearl
On essaie de tenir le coup 🧠🫀 fighter. survivor. #mecfs, depanx, #pots, allergies & other. I'm one of the millions missing. chronic illness FR-EN
Matt Lazell-Fairman
@mfairma
ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Dr Nicola Clague-Baker
@claguenjc36
PT researcher/Senior Lect @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
ME Foggy Dog
@mefoggydog
Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - bit.ly/408o6LI
SoeMac
@soemac_
SoeMac is a wellness product that increases blood flow & tissue oxygenation for people with CFS, ME, Long Covid, COPD, Asthma, and many other conditions
Nutri
@mrchrasho
Anitra Cajander
@anitracajander
I am a 55 years old woman from Helsinki. I've been disabled after a car accident since -99 and suffer from #chronicpain #hypersomnia #braininjury severe #MECFS
Luis
@lulopson
NullPointerException
Oonagh Cousins
@oonagh_cousins
Communications and Fundraising at @long_covid #ThereForME campaign team. 'Anti-Recovery Activist' oonaghcousins.bsky.social
Noura
@bqbq2017
Crafty Miss
@craftymissb
I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb
🥀
@lugaresxcomunes
we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd
Suzaku has Long Covid/MECFS🥴🍉
@suzaku_is_tired
Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
This is M.E. tweeting
@thisismetweety
Apparently I don’t like viruses. #MECFS as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #EDS #MCAS; #pwME; #ChronicPain.
#MEActionMaryland
@meactmaryland
Maryland Chapter of #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in the DMV/MD
geoff brown
@geoffbr85790890
1988 m.e /fm/MCS/CMV/toxoplasmosis/Grover's disease/ severe pain and it's still the same in 2024
Edna, M.E.Advocate 🇨🇮
@ednamacnamara
💙 M.E.Carer/Advocate of son aged 31, ME,11yrs 💙. RaisingAwarenessFor #PwME #Carers #LC #findAcureME #greatestMEdicalscandal ednamacnamara.bsky.social
Helen Anderson 💚 #SafeEdForAll
@helen_biochem
#MECFS #LongCovid #POTS Former Biomedical Scientist #FBPE 🇪🇺. 💚 Green Party. Ex -Labour voter.
AmbrosineShitrit🇮🇱🇲🇦🇬🇧🎗️🐈⬛ 🎼 ✡️ 🧡🔺🎻
@ambrosineshitr2
Founder @antisemitismeye still in Music industry 1984-present,violinist,political speaker,#Zionist,#MEcfs,🐈,#Jewish,Likudnikit, #Pfizerinjured EM4965,
Bridget
@bridtweets38
acknowledge (active) vs accept (passive)
Nav Shaikh
@shaikh_nav
Confirmed Diagnosis: -M.E.(cfs) 2004 -M.C.T.D. -Lifelong Lupus(SLE) -Primary Raynaud’s -G.E.R.D. -Klinefelter Syndrome -P.E.G. feeding tube (July 2023) & more!!
Man on a Mission
@mindmissionman
Susan Beaupre
@susanbeaupre10
Dr. Sabine Hermisson
@sabinehermisson
PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) #LearnAboutME
Kirst
@kirstler31
#MECFS #LongCovid - March 2020 😷 #PostVac #POTS
Well Again
@wellagainco
Healed MCAS, Dysautonomia & multiple gut issues. Sharing the protocols, nutrition, supplements, detox strategies & lifestyle changes that rectified my health.
LoatheMond
@laner134
Questioning narratives | Advocating for transparency and accountability | Science over speculation
Breanna Weigel
@breannaweigel_
PhD Candidate at the National Centre for Neuroimmunology and Emerging Diseases | she/her
👻 ghost of air-terminal cafés ☕️
@mecfscomrade
she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
OMFCharityMugs
@bfwoodburn
Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
babs
@halfateaspn
20s. disabled, queer and poc. ME/CFS+comorbidities. mostly bedbound. COVID conscious. everything sucks, so be kind 🇵🇸🏳️🌈🏳️⚧️
Chronic Fatigue Syndrome and Me
@fatigueme92484
Education/work experience: health education, biology and public health. Topics: #MECFS, #PTSD, #LongCovid, #MCAS and assoc. conditions. @eirn-health.bsky.social
HeartofDanielle
@daniellera60149
Free yourself from enslavement. Always seek justice and truth. Do good and be kind even when no one is looking. CARPE DIEM
QoLife Medical
@qolifemedical
QoLife Medical es una compañía farmacéutica que se origina con el propósito de combatir la desnutrición relacionada con la enfermedad.
rin
@3eyedlambs
Maybe in my next life. A diary of grief and resistance ~mystery chronic illness~ since 2013, #LongCovid #MEcfs #POTS #MCAS and like everything since 2023
sophol
@sophol11578
Interested in bio research? DMs are open, let's chat.
Jacquelyn
@c_jacquelyn64
DMS Healthcare Assurance Team (HcAT)
@dms_hcat
Healthcare Assurance Team dedicated to patient safety, QI & assurance, ensuring the highest standards of care within Defence Medical Services.
Shalish
@shalishtryxnx
Lismirski
@lismirskizn3v
NGPod Global
@ngpodglobal
A safer, quicker and more reliable way of determining nasogastric tube placement, the NGPOD® is now available. Please visit ngpodglobal.com
ClairME
@clairme_
♿️ #pwme Dying very slowly from progressive #SevereME, so mostly reposts. Positive thinking didn't heal me! Can't live til there's a cure. #MillionsMissing
🐟🐟🐟Mifty💙 J💙 💙💙💙
@miftyjackson
🐟 #ResistOrganise #ToriesDestroyingOurCountry
Mary Ion 💚
@onegreenion
On pause due to #longcovid Nurse therapist #PTSD #EMDR #climateemergency #cleanair #ME 🌈+ally @[email protected]
Amanda R
@amandar_11
Advocating for research into New Daily Persistent Headache (NDPH), ME/CFS, hEDS and CCI/AAI.