What many people don’t realize is that *they* are possibly one Covid infection (or any other illness) away from becoming someone with a disability or chronic health problem or underlying condition themselves. You know, someone “high risk.” People are healthy…until they’re not.

She handed in her AS art portfolio. Her work has been dominated by her experience of illness. It is powerful and wonderful. Just like her.

[[thread]] 1. Pls stop sleeping on Long COVID + share this far & wide. As I head into neurosurgery 2 clear out the micro-clots in both jugulars from COVID, I meet other young patients who have suffered from strokes, hemorrhages, 1 aneurysm, pulmonary embolisms, brain clots & more

4. Well I am here to tell those females to STAY ON WEBMD. Keep PUSHING if you know your body and something isn't right. Demand better care. Demand the RIGHT TESTS. Doctors have a duty of care and if they do not know how to treat symptoms then they need to learn to admit that.

7. So please stop sleeping on Long COVID. Stop gaslighting patients. Stop assuming we are hypochondriacs. Stop thinking this isn't a multi-system disease that damages the vascular system. Stop waiting for peer reviewed studies because while you wait, you lose more and more lives.

LongCovid, like Covid, is a class issue. Those with the most resources can trot around the world seeking cures. Poor LongCovid patients quietly work themselves to death or die silently in back bedrooms. The sickest among us aren’t even on Twitter.

This is so important. The researcher who unlocks the connective tissue mechanism is going to find the breakthrough for #LongCovid and ME/CFS.

Most people don’t fake being sick, they fake being well.

#LongCovid: Jung, gesund und jetzt schwer krank ARD mittagsmagazin sprach mit Linda Heitmann von den Grüne im Bundestag 🇪🇺🏳️‍🌈 über die von der Bundesregierung für Forschung bereitgestellten Finanzmittel. Im Interview außerdem Sandra 👩🏻‍🔬👩🏻‍🏫 vom Team #NichtGenesen: youtube.com/watch?v=UlCfxw…

#LongCovid #ConnectiveTissueDisease #EDS

#LongCovid #Massenbehinderung #GrauslichChronischKrank

1/4 Eine weitere Studie zu #LongCovid erschien,Bericht in der Süddeutsche Zeitung. 2909 Pat; die häufigste Beschwerde sei die "Fatigue, also Müdigkeit +Erschöpfung". Jeder 4. #PostCovid Patient leide darunter.Bis zu 20% hätten Langzeitbeschwerden+ erhöhten Leidensdruck. "Verblüfft" sei man, daß

A look at Apheresis for Long Covid with Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳#pwLC Dr Binita Kane shares more about the decision she has made for her daughter. We urgently to trial therapeutics in CYP & need #paediatric biomedical research National Institute for Health and Care Research #LongCovidKids #TreatLongCovid #LongCovid

Christoph Ströck Billions available for funding already, but greedy researchers are wasting it on observational studies, exercise rehab studies & psychological studies because they’re an easy way to get funding & results easy to manipulate. Funding needs to be directed at biomedical research.

In this slightly terrifying pre-print, Visser et al. demonstrate ‘profound neuroinflammation in the pathophysiology of Long Covid’. Might explain why I feel like I’ve been concussed for the last two years… medrxiv.org/content/10.110…

Mein Ratgeber zum Thema #EhlersDanlosSyndrome ist jetzt in allen gängigen Buchhandlungen erhältlich! Es soll im August 2022 erscheinen. Ich hoffe wir können mit diesem Buch ein wenig dazu beitragen, dass sich die Versorgungssituation für Betroffene in Deutschland verbessert.

Going on a Twitter break for the next 3 weeks! Take care of each other ❤️

‘Long COVID’ is becoming a significant health and economic issue, but so far, there are few treatment options. GPs say they're being inundated with patients still struggling with the virus, months after testing positive. youtu.be/aFfBs2pipsM Christie Cooper #7NEWS

Yelling into the void b/c I’m so fucking sad. A patient in my research study tried to commit suicide today immediately after my eval. #LongCOVID is serious. Researchers are seeing that latent Alzheimer’s can manifest after an immune system insult like COVID