Todays the day! Lots of ways to support the day, here's just a few idea's to get you started😀 pip-uk.org/psday22 #psday22 #PSday #polandsyndrome #polandsyndromeawareness

Happiest Birthday Doc Dr.Manuel🩺 Wishing you nothing but happiness and success. I have always admire your drive and determination. Keep soaring higher.

Since 2020, Gerald has been living on ‘borrowed air’ and his time is running out. He needs $50,000 to fix his lungs. Any amount is well appreciated. Kindly refer to the flyer for more details

Have you heard of #PolandSyndrome? Get in touch with @PIPManchester to find out more and for support. 💚 #Dazzle4Rare2022

GPs can support patients with rare diseases without being expert in their condition says Dr Lucy McKay from @M4RareDiseases gponline.com/viewpoint-gps-…

Yesterday evening, I met Emmanuel Ofori who has been suffering from Buruli Ulcer for 3 years now. He goes around KNUST campus and it’s environs soliciting for support to cater for himself and his condition. Let’s do well to help Emmanuel. nana aba KALYJAY Elvis 🇬🇭

We have good news to share. The amazing doctors at Birmingham have committed to 5 more children's clinics for next year, still on a voluntary basis. We have updated the website with all the new dates, they are subject to change and the first one for 2023 is 10th January

9 soft skills to fast-track your career:

The #CACNA1C Community Registry, a collaboration between TSA and Pulse Infoframe is open for worldwide recruitment. The registry will aid in research for #TimothySyndrome, #LongQTSyndrome8, and other CACNA1C-related disorders. #WorldHeartDay ccr.healthie.net

Check out all the amazing speakers Cambridge Rare Disease Network (CamRARE) have booked for #RAREfest22 on 25/26 November including (quote): “Our good friend (and pretty funny) Dr Lucy McKay of M4RD” If that doesn’t excite you, what will? Book your FREE tickets today at bit.ly/3rej8NN

Have you heard of Ring Chromosome 20 Syndrome? Thank you to Ring20UK for the excellent resources. Vote on Instagram until 5PM today! #DareToThinkRare

We started #erbspalsy #awareness week today with 2,799 followers on twitter. We now have 2801. I wonder if we can reach 2850 this week! Please help our small #charity this week by giving us a follow, like or retweet. Thank you :)

We just wrapped up the final session of Living Well with Poland Syndrome 22. I for one have the biggest smile on my face as it feels amazing to meet brilliant people & work through such important topics. We have made big plans for 2023 for this, watch this space #polandsyndrome

As an ambassador for Poland Syndrome charity, PIP-UK, It's Richard Stott is getting people talking about the condition and providing support to 'the lost generation'. PIP-UK

Happy Rare disease day ..We support the Poland syndrome community..👊🏼

Today is Poland Syndrome Awareness Day. Please share this post far and wide so we spread the word and reach as many people as possible on this special day. To find out more, visit our website pip-uk.org #PolandSyndrome #RareSyndrome #RareDisease #RareCommunity

On #Signalise I shouted out "What about PS?" podcast available now where you get your podcasts, courtesy of PIP-UK. 🍎 Also we missed out #PKUAwareness month in yesterdays episode! I'll make a note to mention it in the next May episode! 🎧 podbean.com/eau/pb-s8w82-1…

The Medical Avengers 😊 Dr.Manuel🩺 Emmanuel Fosu-Mensah 🇬🇭🇨🇳

Save the Date - 27-28th April 2024 We would love to see as many people as possible for this special event to bring the community together in 2024 Please save the date. If you would like to help arranging or get involved in any way, please email [email protected]. #polandsyndrome