LymeDisease.org
@lymenews
The #Lyme disease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization.
ID: 47791514
https://www.lymedisease.org 17-06-2009 00:33:12
41,41K Tweet
16,16K Followers
572 Following
American Kennel Club
@akcdoglovers
For the love of all things dog 🐾 #ThisIsAKC
Children's National Hospital 🏥
@childrensnatl
We don’t want kids to just grow up, we want them to #GROWUPSTRONGER. Official feed for Children's National Hospital.
Kris Newby
@krisnewby
Medical-Science Writer | BITTEN Author | @UnderOurSkin Sr Producer | Contributor @Voxdotcom @LitHub @StanMedMag @Epic @NowThisNews | linktr.ee/krisnewby
Todd Maderis, ND
@dr_todd
Specializing in treating the cause of complex chronic illness #LymeDisease, #MoldIllness, #MCAS #LongCOVID #MECFS #autoimmune
Luís Adriano Anholeto
@lanholeto
🇧🇷🇨🇦🏳️🌈Postdoc at @AcadiaU. Ticks, Morphology, Natural products, Tick control and more. PhD Cellular and Molecular Biology at @Unesp_Oficial
Meghan O'Rourke meghanor.bsky.social
@meghanor
Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review.
CIDRAP
@cidrap
the Center for Infectious Disease Research and Policy at the University of Minnesota
Nicole Malachowski
@realmalachowski
Keynote Speaker, USAF Veteran & Fighter Pilot, National Women's Hall of Fame, Tick Borne Illness Patient Advocate, ©️2025 Nicole Malachowski & Associates, LLC
Ryan Prior
@r_prior
@Kennedy_School MPA class of 2025. Author of “The Long Haul” book on #LongCovid (@mitpress) Words: @psychtoday @CNN @tcfdotorg @thenation @statnews @guardian
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Mount Sinai Health System
@mountsinainyc
Integrated health care system providing exceptional medical care to our local and global communities.
Solve ME/CFS Initiative
@plzsolvecfs
Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ ow.ly/jQji50Srbuv
Dana Parish
@danaparish
The Dana Parish Podcast 🎙️ : tinyurl.com/3r865p2r Bestselling Author 📖: rb.gy/9p0sj2 📰: DanaParish.substack.com
Onely
@onelydotorg
Christina Diane Campbell. Writer. Deft histrionics about: singles’ rights; chronic illness; & chocolate-covered cats. (Co-founded Onely.org with Lisa A.)
American Association of Suicidology
@aasuicidology
AAS is the world’s largest and nation’s oldest membership-based suicide prevention organization. Need help? findahelpline.com/i/aas
Donna Lugar
@middleagemom
Diagnosed with tick-borne diseases in an unbelieving world and trying to make sense of it all! Most posts Lyme/tick related. #Lyme #BeTickAware #Ticks
Galaxy Diagnostics
@bartonella
We offer advanced diagnostic test solutions that go beyond the limits of detection for flea- and tick-borne infections, such as bartonellosis and Lyme disease.
Columbia Vagelos College of Physicians & Surgeons
@columbiaps
News and updates from the Vagelos College of Physicians and Surgeons, the medical school of Columbia University.
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Leona Gilbert
@leesailing
Philip Adams
@drphilipadams
microbiologist | biology of spirochetes | NIAID | NIH | USA | 🏳️🌈 | he/him | views my own
Travis Bourret
@drbourret
I am a microbiologist, a husband, a father, an ultrarunner, and on a good day an impressionist. There are plenty of good days.
Looking At Lyme
@lookingatlyme_
Join us to explore perspectives on Lyme disease and its impact on human health. Created by @CanLyme. #GivingTuesday Team account. #Lyme #LymeDisease
Andrew Krusenstjerna
@ackrusen
Chicano | Microbiologist | Ph.D. with @BStevensonLab | Postdoc with @GoleyLab | Appreciating the little things in life | Views are my own 🧫🇲🇽🏳️🌈(He/Him)
MIT Dept of BE
@mitdeptofbe
The MIT Department of Biological Engineering – Creating biological technologies from discovery to design.
Lisa McCorkell
@lisaamccorkell
on twitter/x hiatus. formerly: @patientled | MPP | she/her | natures 10 2022
David Skidmore
@lymeloonies
Husband, father, cartoonist, musician @ 12 years with Chronic Lyme disease - I so hate ticks, but denial more! Created a cartoon book about Lyme (link below)
Bay Area Lyme Foundation
@bayarealyme
The Bay Area Lyme Foundation is dedicated to making Lyme disease easy to diagnose and simple to cure.
Lonnie R Marcum, PT, BSHCA
@lonnierhea
Wife/Mother•Science Writer•PT•HC Admin•Disease Detective•Voracious Reader•Connoisseur of ☕️•Graduate CSUN•Olive Farmer•HHS 2019-2022 TBDWG Tick Subcommittee
Mountain life
@mountainkeep
Focus on the role of infectious diseases in neurological conditions, ME/CFS, Lyme disease, mold toxicity, and metabolic health. Microglia run the show
Lorraine Johnson, JD/MBA
@lymepolicywonk
CEO LymeDisease.org/PI MyLymeData. Sat on Exec Com of PCORnet & chaired patient council; Subject matter expert patient registries for NORC etc .
Bruce K. Patterson MD
@brucep13
Bruce K. Patterson MD, CEO IncellDx, Previously Assoc Prof Stanford School of Medicine
Suman Kundu
@sumankundu85
Instructor in University of Tennessee Health Science Center. Currently working on infection and immunology.
sabeti_lab
@sabeti_lab
Official Twitter Account for the Sabeti Lab @Harvard & @BroadInstitute. We're currently hiring-- please see our most up-to-date positions on our website!
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Marcelo Freire #drInflammation
@drmfreire
Scientist | Clinician | Entrepreneur My Lab is focused on discovering the molecular causes of chronic diseases. #inflammation #saliva #tisssuepathogens 🔥🦠🧬💧
Global Lyme Alliance
@lymealliance
Nonprofit dedicated to curing Lyme and other tick-borne diseases through innovative research, awareness and empowering the patient voice. #FightLyme
Rachel Leland
@rachelaleland
AgriSafe Network
@agrisafenetwork
A national 501(c)3 nonprofit that works to educate healthcare professionals and ag workers about the health and safety needs of those in the ag industry.
Patrick R. Secor
@prsecor
Associate Professor at Montana State University. Studying bacteria and their viruses.
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
G. Magnotta Lab
@gmagnottalab
Interdisciplinary Lyme disease research lab in the College of Biological Sciences, University of Guelph. Est. 2017
Shaun Cross (@shauntcross.bsky.social)
@shauntcross
Assistant Professor @UNMCCOPH | Virome, Genomics, and Vector-borne Diseases | @CIHMID Postdoc @Cornell | PhD @CSU_MIP
CURE ID
@id_cure
Treatment Registry for Repurposed Drugs. Share your treatment experiences-cure.ncats.io. This is an unofficial friends of CURE ID account. Views our own
The Tick Chicks
@thetickchicks
Healing Lyme and Chronic Illnesses together with honesty, information, and humor at TheTickChicks.com and @TheTickChicks. #partnersinlyme 💚
Mecaila McClune
@mecailam
Postdoc at Northwestern Feinberg School of Medicine
Jason_Park
@jasonpark_micro
Microbe and mountain lover
Prof Linda Gay Griffith
@lindaggriffith1
Engineering New Directions in Endometriosis @ MIT // Merging "Organs on Chips" with Systems Biology to Humanize Drug Development // Avid Gardener
COVID-19 Longhauler Advocacy Project
@c19lh_advocacy
A U.S. based grassroots, patient-led, all-volunteer c3 nonprofit org advancing the understanding of & expediting solutions to #LongCOVID #LongCOVIDAwarenessDay
Long COVID Alliance
@longcovidallian
Research. Advocacy. Education. longcovidalliance.org
Brian Stevenson Spirochete Lab
@bstevensonlab
Regulation of virulence by Borrelia burgdorferi and other bacterial pathogens. Professor. Opinions are my own. He/him
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
Two Alpha Gals
@twoalphagals
Your guide to LIVING with alpha-gal syndrome. Food Allergy Mentorship Program. Hosts of "In The Tall Grass" Podcast. Resources, Recipes, Tips & Tricks, Support.
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Lyme Disease: The Musical
@lymemusical
Video and cast album now streaming! Book & Lyrics by Ellen Thompson. Music by Hughie Stone Fish. Directed by Robert Glen Decker.
Yale Center for Infection and Immunity
@yalecii
We are the Yale Center for Infection and Immunity, dedicated to understanding how infections cause diseases and to the developing better vaccines.
Larissa Staurengo-Ferrari 🇧🇷 🇺🇸
@larissasferrari
Research fellow at @harvardmed | Chiu lab @isaacchiulab
myLyme
@mylyme_ca
A research consortium out of @QueensU, partnering with patients to tackle tick-borne disease in Canada & beyond. Check out mylyme.ca for more info!
thetranscendedman
@atranscendedman
Transparent to the transcendent. Wrote a book on Long Covid. - jondouglas.dev/longhaul/ Extraordinary claims require extraordinary evidence. - Sagan
CFILC
@cfilc_1982
Increasing access & equal opportunity for Californians w/ disabilities through #IndependentLivingCenters since 1973.
Sammie McFarland - See you over there 🦋
@sammiefmc
Founder @LongCovidKids, & wellbeing coach on pause. “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.”
Brittany Shapiro
@rnarebel
Graduate student at Texas A&M College of Medicine Microbial Pathogenesis and Immunology 〰️
Jon Skare Lab
@therealjskare
Cutting edge Lyme Disease and Relapsing Fever Borrelia research at TAMU Health. Views are my own (and the graduate student’s running this account @RNArebel)
HealthBioAI
@healthbioai
HealthBioAI, has identified a common thread in chronic inflammatory diseases through the use of machine learning and AI-based precision diagnostics.
Alpha-gal Alliance Action Fund
@alphagalaction
Advancing policy solutions to improve the lives of people with alpha-gal syndrome
Christine Kilgore
@ckilgore_news
Freelance medical journalist covering medical research, clinical care, and the health care system. Contributor to Medscape, MDEdge, Caring for the Ages…
Project Lyme
@projectlyme
Project Lyme’s mission is to eradicate the epidemic of tick-borne diseases through awareness and education, support of cutting-edge science, and advocacy.
LivLymeFoundation
@liv_lyme
Started by Olivia when she was 12 to help kids who cannot afford Lyme drugs & to find a cure. Her apps TickTracker & LongHaulTracker & book “But She Looks Fine”
Prof. Akiko Iwasaki
@virusesimmunity
We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Amy Proal, PhD
@microbeminded2
Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers