Liv-A-Little (@livalittlefound) 's Twitter Profile
Liv-A-Little

@livalittlefound

Liv-A-Little Foundation

ID: 703950974881288196

linkhttp://www.livalittlefoundation.com calendar_today28-02-2016 14:32:46

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Liv-A-Little (@livalittlefound) 's Twitter Profile Photo

See you tmo Santa Claus Parade Port Elgin 7pm. We will be collecting toys on parade route for the Iota Phi Sorority Xmas Toy Drive. #portelgin #christmastoys #givingback

Cystinosis Research (@natalieswish) 's Twitter Profile Photo

"While I love the twins just as they are, the idea that they might enjoy longer, healthier lives, free from pain and myriad medications would be icing on the cake...A dream come true." - Teresa & Kevin Partington, Jenna & Patrick's parents. #curecystinosis

"While I love the twins just as they are, the idea that they might enjoy longer, healthier lives, free from pain and myriad medications would be icing on the cake...A dream come true." - Teresa & Kevin Partington, Jenna & Patrick's parents. 
#curecystinosis
Cystinosis Research (@natalieswish) 's Twitter Profile Photo

What are you dressing up as this year? Share your pictures with us! Wishing everyone a very safe, fun and happy #Halloween! #cystinosisresearchfoundation #cystinosis #curecystinosis #CRFcommunity #CRFresearch #NataliesWish

What are you dressing up as this year? Share your pictures with us! Wishing everyone a very safe, fun and happy #Halloween!
#cystinosisresearchfoundation  #cystinosis #curecystinosis #CRFcommunity #CRFresearch #NataliesWish
Liv-A-Little (@livalittlefound) 's Twitter Profile Photo

$1000 donated to GC Houston Breakfast program on behalf of the 216 golfers that showed up to support our 7th annual Swing, Shoot and Liv Golf Classic. Nobody needs more stuff but every child needs a full belly to learn. #BetterTogether

$1000 donated to GC Houston Breakfast program on behalf of the 216 golfers that showed up to support our 7th annual Swing, Shoot and Liv Golf Classic. 
Nobody needs more stuff but every child needs a full belly to learn. 
#BetterTogether
Cystinosis Research (@natalieswish) 's Twitter Profile Photo

"It has been our goal from the beginning to do whatever it takes to keep her as healthy as possible because we hoped for the cure someday. And hope is now closer than ever" - Erin Little, Olivia's mom. Together, we shine brighter than ever! #curecystinosis

"It has been our goal from the beginning to do whatever it takes to keep her as healthy as possible because we hoped for the cure someday. And hope is now closer than ever" - Erin Little, Olivia's mom. Together, we shine brighter than ever! 
#curecystinosis
Cystinosis Research (@natalieswish) 's Twitter Profile Photo

To our brilliant & dedicated researchers - "thank you" will never be enough to express how grateful we are for all you have given us. Your discoveries have given us hope for the possibility of a world without cystinosis. Together, we are turning dreaming into doing! #CRFresearch

To our brilliant & dedicated researchers - "thank you" will never be enough to express how grateful we are for all you have given us. Your discoveries have given us hope for the possibility of a world without cystinosis. Together, we are turning dreaming into doing!
#CRFresearch
Liv-A-Little (@livalittlefound) 's Twitter Profile Photo

So much gratitude Shawn Ringel not only have you raised thousands of dollars for us but it’s the place Olivia learned how to play basketball 🏀 💜

Ben Lobb (@benlobbmp) 's Twitter Profile Photo

Today, Health Committee unanimously passed a motion to study barriers to treatments & drugs, including the Special Access Program, for CDNs with Rare Diseases. Thank you Liv-A-Little for all your work advocating for Olivia & CDNs facing similar challenges.