As you prepare to take on the week can you spare 10 seconds to take a stand? When the system failed HIV and Cancer patients Congress held hearings to demand accountability. When it failed ALS patients nothing happened. Give us 10 seconds👇 and we can change that. #ItsTime

Only robots & psychopaths would disagree with this 👇🏻 statement... so why are people with ALS having to fight so hard for a chance to access hope? #EAP4Me

We are deeply concerned that these changes will: 1. result in fewer ALS clinical trials coming to Canada; and 2 deter manufacturers from bringing their new ALS treatments to Canada in a timely fashion.

Just a Friday morning reminder that if you are an organization dedicated to serving people living with a disease or a public advocate for a disease you should not block people living with that disease. Especially if they disagree with or challenge you. #PatientVoicesMatter

Fun Fact: There will be a 69% increase in ALS by 2040. Maybe then those in power will feel compelled to act. Let the records show that we tried to build pathways. From one ALS family to a future one - You. Do. Not. Want. This. Disease. 💔ncbi.nlm.nih.gov/pmc/articles/P…

Twitter, do your thing...

Yesterday we had an awesome #walktoendALS with trigger and Barb! #Motion4M105 #EndALS Patty Hajdu Justin Trudeau Sabina Saini Rick Theis ALS Action Canada ALS Canada ALS Burpee Challenge Francis Drouin Todd Doherty Marie-Hélène Gaudreau, députée Jenica Atwin for Fredericton Catherine Bélanger Cheetahgang.ETH @HMcPhersonMP

I want to #EndALS. I don’t want any more families to experience what my family is experiencing. If we can get the word out about ALS Action Canada and the #icbcrebatechallenge it could really make a difference. I would be grateful if you retweeted this tweet.

So hard watching my husband with cancer and I am locked in thisALS body

People with ALS do not accept the status quo. We are demanding urgency, action and meaningful funding.

May is ALS awareness month. Here are some facts I've learned since my diagnosis a year ago. Amyotrophic Lateral Sclerosis is a progressive neurodegenerative disease. Anyone can get ALS, even young people. It can be difficult to diagnose. For 150 years it has been 100% fatal.

ALS awareness month. Are you aware? WE are VERY aware, every second of every minute of every hour of EVERY FUCKIN ALS day. We get no breaks, no relief, no peace, little joy & unimaginable grief. We are VERY aware of each bit of ‘good’ that ALS steals from us every day. #FuckALS

May is ALS Awareness Month. Sixty percent of Americans know nothing about this horrible disease. Please take five minutes and read about ALS and share it with your friends on twitter. Five minutes of your time can help us to find a cure for ALfuckingS #TogetherStronger #FuckALS

May is #ALSAwarenessMonth It's not as rare as one may think. I believe it's only a matter of time before you or your loved one is diagnosed with this horrendous and always fatal disease

We need you. Let's educate as many people as we can about what this disease really is, and how it affects the people living with it & their loved ones. Retweet to help us spread the word! The more we all know, the stronger the revolution to end #ALS becomes. #ALSAwareness

I am so afraid,have several appointments scheduled at ALS clinic Monday. It is terrifying. My husband is in hospital and is very ill

Tomorrow on #LouGehrigDay the first ever national TV ad about ALS airs. First during Jake Tapper 🦅’s show, then on Neil Cavuto and each game. I am dying from the same disease that killed Lou. You can change that. Please make this ad go viral and help I AM ALS end Lou’s fight.

So down today, realizing what my life will be and having an intimate goodbye to my wonderful husband Monday.

This is justbeachy’s daughter. Sadly mom passed away this morning from #ALS. Exactly one month after my dad passed away. No coincidence. Grieving while dealing with the horrors of ALS was just too much. #EndALS