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Another 'oldie but goodie' from the #IBD blog vault is our Traveling with #IBD and an #Ostomy Marisa Troy recorded it back in 2016 but it's still relevant today and might prove useful when traveling for the holiday season. cceffect.org/traveling-with…

Day 2 #CCAwarenessWeek! Thank you to HealthCentral for featuring me alongside other #Crohns warriors on what has worked for us in living our best lives! Read here: healthcentral.com/article/crohns…

Today is Day 2 of #CCAwarenessWeek! I've chosen to make #IBDvisible by sharing a photo of the completion of my 10 hour #TPN infusion. This is how I #gratefully begin every day! #IBDCantStopMe #CrohnsDisease #ShortBowelSyndrome

A Call to Action, US colleagues and people with #IBD, please take a minute: crohnscolitisfoundation.org/get-involved/b…

I haven't shared much about my #health & #IBD journey in a while. It's been too triggering for me. But I'm working on it & my goal is to get back into advocating a bit more (if possible ♥️) If I did a post for #WorldIBDDay - what would you like to see from me? Feel free to DM.

💯 !! #WorldIBDDay #worldi

Calling all #IBD #AYA patients & #caregivers, tune in today to #MondayNightIBD’s #patientexperience co-led by IBDesis’ patient advocate maha (she/her) & Aaron Blocker 🙌🏽🙌🏽

I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer

Webinar 👩‍💻 Supporting young people with a #stoma: current challenges & future directions: bit.ly/StomaWebinar June 7th, 6.30 - 8pm BST. I'll be there 👋 talking about unmet needs & the importance of advocacy groups such as #IBDSuperHeroes. PLUS...

This Pride Month on Lights, Camera, Crohn’s a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more. lightscameracrohns.com/2023/06/12/ope…

So proud of Tina Aswani-Omprakash, MPH !!! 💜💜💜💜

I never share things like this but this org is in desperate need of help. #adoptdontshop #rescue

Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.

If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members. #inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup

It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community.  I'll be sharing more 📸 &insights soon. #crohns #UC

Honored to have spoken to DPT students at Hunter College The City University of New York on #physicaltherapy in #painmanagement! PT 👉🏽 critical in my #IBD surgery recovery 👉🏽 managed #pelvicfloordysfunction 👉🏽prevented prolonged use of pain meds Important for med students to learn from patients 🙏🏽

Monday I go in for my first #cataract surgery. Some thoughts about surrendering control & how tough that can be when you've been burned so much. #chronicillness #patient #doctor instagram.com/p/Czd5uIfOOf5/…

🙏🏽Patients, advocates & caregivers for sharing their journey w us! 📡 Scanning #PatientExperience on disease monitoring & #IUS w Madhura Balasubramaniam leading the convo 🗳️2 #IBDPolls👇🏽 📣RT & share your💭 w us! #StrongerTogether #MondayNightIBD Supported by edu grant Eli Lilly and Company

#MondayNightIBD Eli Lilly and Company Basmah Natalie Hayden About IBD: Amber-Writer, Journalist, Podcast Host Melodie Narain-Blackwell Nigel H 🎸🎸🎸🎸🥁 Ildiko ☕️ Twisted Marisa Troy Tina Aswani-Omprakash, MPH Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 📢#IBD patients & caregivers: #MondayNightIBD #IBDPoll1️⃣ 📊Thinking about your IBD experience, what mode of disease monitoring do you prefer to stay on top of your care? 🔽 In replies, please share your #PatientExperience, preferences/barriers to monitoring ✏️ #SouthAsianIBD

#MondayNightIBD Eli Lilly and Company Basmah Natalie Hayden About IBD: Amber-Writer, Journalist, Podcast Host Melodie Narain-Blackwell Nigel H 🎸🎸🎸🎸🥁 Ildiko ☕️ Twisted Marisa Troy Tina Aswani-Omprakash, MPH Sahara Fleetwood-Beresford 🌱 Patient Advocate 🩺 #MondayNightIBD #IBDPoll2️⃣ Reflecting on Intestinal Ultrasound (IUS) What is appealing about IUS over other monitoring tools? Would you prefer IUS - why/why not? 🤔 Please answer the poll & share your experiences in replies ⬇️ #PatientExperience #SouthAsianIBD