Monday I go in for my first #cataract surgery.
Some thoughts about surrendering control & how tough that can be when you've been burned so much.

#chronicillness #patient #doctor

instagram.com/p/Czd5uIfOOf5/…

Honored to have spoken to DPT students at Hunter College The City University of New York on #physicaltherapy in #painmanagement !

PT
👉🏽 critical in my #IBD surgery recovery
👉🏽 managed #pelvicfloordysfunction
👉🏽prevented prolonged use of pain meds

Important for med students to learn from patients 🙏🏽

It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community. 

I'll be sharing more 📸 &insights soon.

#crohns #UC

If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members.

#inflammatoryboweldisease #crohns #crohns disease #UC #ulcerativecolitis #ostomy #Jpouch #meetup

Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.

I never share things like this but this org is in desperate need of help.

#adoptdontshop #rescue

So proud of Tina Aswani-Omprakash, MPH !!!

💜💜💜💜

This Pride Month on Lights, Camera, Crohn’s a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more.
lightscameracrohns.com/2023/06/12/ope…

Webinar 👩‍💻 Supporting young people with a #stoma : current challenges & future directions: bit.ly/StomaWebinar June 7th, 6.30 - 8pm BST.

I'll be there 👋 talking about unmet needs & the importance of advocacy groups such as #IBDSuperHeroes. PLUS...

I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer

Calling all #IBD #AYA patients & #caregivers , tune in today to #MondayNightIBD’s #patientexperience co-led by IBDesis’ patient advocate maha (she/her) & Aaron Blocker 🙌🏽🙌🏽

💯 !!

#WorldIBDDay
#worldi

I haven't shared much about my #health & #IBD journey in a while. It's been too triggering for me. But I'm working on it & my goal is to get back into advocating a bit more (if possible ♥️)
If I did a post for #WorldIBDDay - what would you like to see from me?
Feel free to DM.

A Call to Action, US colleagues and people with #IBD , please take a minute:
crohnscolitisfoundation.org/get-involved/b…

Today is Day 2 of #CCAwarenessWeek !

I've chosen to make #IBDvisible by sharing a photo of the completion of my 10 hour #TPN infusion.

This is how I #gratefully begin every day!

#IBDCantStopMe
#CrohnsDisease
#ShortBowelSyndrome

Day 2 #CCAwarenessWeek !

Thank you to HealthCentral for featuring me alongside other #Crohns warriors on what has worked for us in living our best lives!

Read here: healthcentral.com/article/crohns…

Another 'oldie but goodie' from the #IBD blog vault is our Traveling with #IBD and an #Ostomy

Marisa Troy recorded it back in 2016 but it's still relevant today and might prove useful when traveling for the holiday season.

cceffect.org/traveling-with…

Exactly 👏🏻👏🏻👏🏻

So thankful I was able to join this amazing group of advocates&friends to discuss future #IBD advocacy efforts.
We did a ton of planning and I'm truly excited about the *new* direction we will be taking.
Hopefully we will help a lot of people!

#crohns #ulcerativecolitis

Doctor's offices are literally the only places it's acceptable to have atrocious customer service.

It's 345. I have a 330 appt. And my doctor's 230 appt still hasn't been seen yet.

They know we need them more than they need us!

#patientexperience #healthcare