Did you know I was your age when my symptoms started Alexandria Ocasio-Cortez ? Five years later, I am on life support. #ALS can happen to anyone. Where will you be five years from now? Co-Sponsor ACT for ALS today #ALS

Alabama doctor says this about her Covid patients, some of whom are dying: “One of the last things they do before they’re intubated is beg me for the vaccine. I hold their hand and tell them that I’m sorry, but it’s too late.” al.com/news/2021/07/i…

This. Let’s f’ing get it done.

Yes!! The thought that ALS is a painless disease is ridiculous. My mom has extreme nerve pain in both feet and up both legs.. but her insurance refuses to pay for neuropathy meds bc “pain is not associated with an ALS diagnosis.” 😤🤦‍♀️

“This is our closing argument for our lives.” - Sandra Abrevaya & Brian Wallach #FDAHearings

It is so important for the masses to hear their testimony. Too many people do not know of ALS. Too many people who DO, don’t understand what we’re fighting for. I have been diagnosed for 535 Days & I have been fighting for #NurOwn for 534 days #NurOwnWorks #S1813 #HR3537

Need some prayers for my mom today❤️ ALS sucks :(

ALS is not a rare disease and you can’t convince me otherwise.

Jeopardy Contestant: I'll take #ALSFRS-R for $800, Alex! Alex Trebek: Objects that can decide an #ALS drugs efficacy. Jeopardy Contestant: What are Pillows & Handrails! Alex Trebek: Correct! The U.S. FDA uses a 30 year old questionnaire to decide if an ALS drug works! #NurOwn

We are excited to share that we filed a New Drug Application (NDA) to the FDA for AMX0035 (PB/TURSO) for the treatment of #ALS. This submission represents a major milestone in our efforts to develop a potential new treatment option for the ALS community. bwnews.pr/3GJRBKv

Do not say a word, just retweet 🤲🏼🤲🏼

Do you think Nurown could be approved for patients with an ALSFRS <26? My mom is a 1 and has been hoping she can still get it! No More Excuses ALS Watchdogs!

BREAKING NEWS: #ACTforALS has just passed the Senate and is on it’s way to President Donald J. Trump. Hope is real for ALS patients thanks to you. The impossible is possible. #NeverGiveUp

In a true Christmas miracle, last night the Senate passed #ACTforALS, giving real hope to those suffering from the cruel merciless disease of #ALS Thank you Mike Quigley Senator Chris Coons Paul Murkowski for helping drive the hope! The bill now goes to President Donald J. Trump for his signature I AM ALS

Today, I signed the Accelerating Access to Critical Therapies for ALS Act. Thanks to a movement led by patients and caregivers and bipartisan members of Congress, we are finally closer than ever to new treatments, and hopefully a cure.

Grieving someone that’s still alive is hard and it crushes you

They found the cause of SIDS THEY FOUND THE CAUSE OF SIDS Excuse me while I cry for all the parents, including lead researcher Dr Carmel Harrington, who lived with guilt. And cry happy tears for parents in the future who will have access to screening and prevention. 😭

Nope he’s real, one quick google search will show that he’s a Professor of Political Science at Long Beach City College….

Lost my mom Clare Trevarthen to #ALS on March 10th, 2022. ❤️

Congrats 2023 #TEXASMoody grads! We are so proud of your accomplishments as a #MoodyGrad. We can't wait to see how you will change the world with your compassion and creativity. And thank you to Glen Powell for your wisdom and humor. What an inspiring keynote talk!