Jean C9orf72
@jeanc9orf72
C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
ID: 1332502613779091458
http://endthelegacy.org 28-11-2020 01:52:51
6,6K Tweet
1,1K Followers
862 Following
HugoOC
@hugooc
Slate
@slate
A daily magazine on the web. Follow and listen to Slow Burn: The Rise of Fox News—OUT NOW.
ALSUnitedGNY
@alsofgny
ALS United Greater New York. Care. Serving those living with ALS and their families in NYC, Long Island, Lower & Mid-Hudson Valley, and Northern & Central NJ.
Federation of American Scientists🔬
@scientistsorg
Striving for a safer world since 1945.
State Senator Jesse Arreguín
@jessearreguin
State Senator for District 7 representing Northern Alameda County and West Contra Costa County. Comment policy: linktr.ee/senatorarreguin
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
DougJBalloon
@dougjballoon
Parody. @nytpitchbot.bsky.social More on Blue Sky than here these days. merch: crazydogtshirts.com/collections/pi…
CurePSP
@curepsp
To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
Alzheimer's Society
@alzheimerssoc
We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.
Society for Neuroscience (SfN)
@sfntweets
The largest nonprofit of scientists & physicians devoted to understanding the #brain & #nervoussystem. Follow us at @NeuronlineSfN, @SfN_Events & @SfNJournals
Farah Speer
@fspeer
Nick Cochran, PhD
@jnickcochran
Neurogenetics @HudsonAlpha. Better half: @MeaganECochran. K1: 11, K2: 6. he/him.
Dan Tate
@dantate2
FTP OG, I Am ALS Board, fighting ALS, “Democratic Party” not “Democrat Party”, words matter otherwise why use them.
Tracy Jan
@tracyjan
Senior editor @ProPublica. Former @WashingtonPost deputy health editor, race & econ reporter, @BostonGlobe national politics. Follow me @tracyjan.bsky.social
ALS Uncensored 🏴☠️
@scottsfight
Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Dustin Guy Defa
@dustinguydefa
criterionchannel.com/directed-by-du…
✨kvb✨
@kristenvbrown
Health + science journalist. Writing a book about the science and history of fertility.
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Jord Adams
@grizzlyadams_78
29 | Dementia Advocate | Public Speaker | 7 marathons in 7 days ‘22 | 100 mile in 24 hours ‘24 | Ran the length of the UK ‘24 #FORACURE 🧡
Max Gelman
@maxgelman
Reporting on pharma and biotech, @endpts. Baseball fan, Northwestern alum. Email: [email protected]
Christopher Ricupero
@chrisricupero
Neuroscientist - Asst. Professor @Columbia University investigating rare neurological diseases & disorders #RareDisease, Gene Therapy #HNRNPH2 #HNRNPs
melissa maria
@melissamaria510
Paralegal & ALS Advocate (I AM ALS/ALSTDI). Caroline Ducharme & KK Arnold fan. Brooke Mackenzie Ellison 1978-2024.
Christine Gilmore RN
@kickenalsass
ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Girl Travelin Alone
@cathystandish
michaela
@mmmmicas
this journal, still in my grasp
Seth Poling
@sethpoling10
Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Annika Roll
@_on_a_roll
Cofounder of Cure MAPT FTD, a patient advocacy group fighting for a cure to MAPT: a rare genetic form of frontotemporal dementia
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Mayuri Om Saxena
@mayuri_saxena
40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 linktr.ee/mayurisaxena
Marlene Cimons
@marlenecimons
Writer, journalist, college instructor,single parent, runner, animal lover...
La Jolla Labs Inc.
@lajollalabs
La Jolla Labs was founded by leaders in RNA therapeutics to leverage advances in automation and computing to build the world's fastest drug discovery pipeline.
Steve Martin
@unrealbluegrass
lawyer, banjo player,2018 IBMA Broadcaster of the Year,peace monger
Lakshya Bajaj
@bajajlab
Assistant Professor @ UPR, PostDoc @Harvard, Ph.D @ BCM Deciphering the fascinating interplay between neuronal mosaicism, neurogenesis, and neurodegeneration
ECPC
@ecpckids
El Cerrito Preschool Cooperative is a play-based co-op preschool (age 3-5). We are dedicated to helping kids learn & grow through play! Open House 10/20, 10-12
Chris Coffey
@proffcoff
Started as a Buc. Vol for Life. Tar Heel brED. Hawkeye faculty. Clinical trialist. Otherwise, just a big kid.
Maria C Carrillo PhD
@drmariaalz
Chief Science Officer & Medical Affairs Lead
Dr Hannimal @hisotalus.bsky.social
@hisotalus
Immigrant land mammal. ❤️cats, brains, sleep, and cats again. Senior Lecturer in Digital Health & @LEAP_Hub Deputy Director. PhD translational medicine.
FJ Martín Sánchez
@fjjms
F. Javier Martin-Sanchez, MD PhD. Hospital Enfermera Isabel Zendal. Madrid, Spain. #PrimeroMédicos #ELA #Neurorrehabilitación #CuidadosEspecializados
Emma Keeling ♿️
@keeling_emma
Andrea Pauls Backman (she/her)
@andreabackman05
Follow me at AndreaALSstrategy.bsky.social. Passionate about people w ALS/MND & fighting for cures.
Chelley Casey
@chelleycasey
Patient Advocacy @ Wave, Board Member @ HFI. Tweets are my own.
Claire Sexton
@claire_e_sexton
ALS TX DAD
@alsdads
Pedram Parnianpour
@pparnianpour
Neuroscientist | Postdoctoral Research Fellow @UBC | @UBCPostdoc President | @uAlberta Alumni
I AM ALS
@iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Jake Vogel
@_jakevogel_
Neuroimaging guy, Philadelphia sports fan, beer, open science.
Liana Apostolova, MD, MSc, FAAN
@apostolovaliana
Cognitive neurologist and Alzheimer's disease researcher, Indiana University Distinguished Professor, Principal Investigator of LEADS, Editor-In-Chief DADM
Dr. Nadia Sethi
@nadia_sethi
ALS we are coming for you. Widowed by ALS and still fighting it.
AZ Latina ☮️🌊🟦
@avoice4als
Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky
Annalise Rahman-Filipiak
@rahflipphd
Clinical Neuropsychologist & Asst Prof focused on Alzheimer's detection, diagnosis and treatment at @umich | All opinions are my own
I’m Dying To Tell You Podcast with Lorri Carey
@lorrispodcast
Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Anupam Raina
@rainaleads
Understanding the neurobiological mechanisms of protein aggregation relevant to neurodegenerative diseases.
Lisa's Legacy for ALS
@lisalegacy4als
Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
A. Campbell Sullivan
@campbellsulli1
Associate Professor of Neurology @UTHealthSA #ADRC #ALLFTD
Hamish Crerar
@crerarhamish
Postdoctoral fellow studying miRNA and ALS @PataniLab @TheCrick, supported by the MNDA and the My Name'5 Doddie Foundation
Ratnavalli Ellajosyula
@ratnavallie
Voices of Alzheimer's
@voicesofalz
Empowering people living with or at risk of Alzheimer’s and other cognitive illnesses to drive equitable access to innovation in treatment and care.
Sarah Walter
@sarahw_research
Researcher passionate about building partnerships with research participants in Alzheimer's disease studies, swimmer, hiker, paddleboarder and tomato grower
Brooke Eby
@limpbroozkit
just a gal with ALS
Philip LANGAT
@philiplang75975
ALSWiki.org
@alswiki
A free online guide for living with ALS.
The Dementia League
@dementialeague
Fighting #dementia & degenerative conditions by sharing #brain #health news. #Research summarized by experts. Join & share! #Alzheimers. Not medical advice.
TheFTDBrothers
@theftdbrothers
Dedicating our lives to raising vital funds towards Dementia Research #ForACure 🧡 DONATE NOW 👇🏻
Stanford Neurology & Neurological Sciences
@stanford_neuro
Official X account of Stanford Neurology & Neurological Sciences Department, Stanford University, California #Neurology 🧠
Chris Snow
@chrissnowcgy
Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
SOD1 EndALS
@cehaddadnp
#ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Sophie Farley
@sophiefarley31
Research Assistant in the Rohrer Lab at the @DRCIONUCL, working for the clinical team within the GENetic Frontotemporal Dementia Initiative study @GENFI1.
Mandi
@runningmama0522
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Sylvia Villeneuve
@sylv_villeneuve
Associate Professor Department of Psychiatry, McGill University Neuroimaging, MRI, PET, Alzheimer's disease