Many thanks to Dan Orlovsky for participating in the 💯 holes for ALS! ⁦Dan Orlovsky⁩ ⁦ALS TDI⁩ ⁦First Coast News⁩ ⁦Demetrius Harvey⁩ ⁦Gsmitter⁩ ⁦ESPN⁩ ⁦Eugene Frenette⁩ ⁦Dan Hicken⁩ ⁦David Muir⁩ ⁦I AM ALS⁩ ⁦MGH Neurology⁩

Today is Lou Gehrig Day in Tampa Bay! #IAA4LOU

On this #worldcaringday , show how much you care about those impacted by #ALS by being a mentor or matching with a mentor who can provide you with compassion, support and guidance during your loved one's journey.
#EndALS #Fight2EndALS #ALS Support

It is impossible not to be in awe of Sandra Abrevaya and Brian Wallach and their passion, advocacy, fearlessness and hope. (And honored to have known them both a long long time). This movie will make you feel anything is possible and also be as in awe of them as the rest of us. Cc:…

Thank you Katie Mulvaney for writing about For Love & Life: No Ordinary Campaign and our work at I AM ALS Watch the documentary- get inspired!

There are moments I will never forget. These are just a few💜. Lookin back at the I AM ALS summit! Congratulations to everyone who worked so hard pulling it together! Hope Loves Company Paul Carey HopOnACure Brian Wallach #ALSinDC #als #als awareness #endals tiktok.com/t/ZTLwmjcPv/

Almost as soon as someone is diagnosed with ALS, you’re also likely told to apply for social security disability benefits (SSDI). But what happens if you don’t immediately qualify to receive the benefits? This resource outlines what you can do: iamals.org/get-help/under…

Everyone could use an amazing mentor in their life. Learn how to match with a mentor or become a mentor: iamals.org/peer-support/

Last week I AM ALS placed 6000 blue flags at the Washington Monument, each flag representing a person living with ALS or that has passed. Each flag is somebody’s somebody. It’s heartbreakingly beautiful.

It was a powerful day, indeed, I AM ALS! Thanks for posting the video of the speakers in #ALSinDC on the National Mall.

For those interested, my remarks start at 1:14.

#LongCovid Community: watch For Love & Life: No Ordinary Campaign! It follows the arduous journey of the patient, family, and caretaker-led advocacy movement of I AM ALS in moving Congress to fund research, cut red tape, speed up SSDI benefits, and more! So many parallels with our fight.

Brian Wallach Prime Video I saw it @ the SF screening (I am YC'03), Brian! A dose of hope for ALL chronic illness and emerging disease, including #LongCovid . Connected w/I AM ALS ED & look forward to practicing #solidarity across our movements. TY for making your fight our fight.

'Yes, I have ALS, but ALS doesn’t have me,” Roseann Hickman Check out her interview.👇
I AM ALS Pete Spencer Mike Harrington Live Like Lou

We are incredibly saddened by the passing of another incredible ALS/MND advocate, Rob Burrow. This disease takes so much from so many. #endALS

Brian Wallach Andy Jassy For Love & Life: No Ordinary Campaign Sandra Abrevaya Prime Video I am watching Sandra Abrevaya on Morning Joe this morning and the tears just keep on flowing. I am amazed at what you, Sandra, and I AM ALS have been able to accomplish, securing funding, getting MLB involved, etc. I pray all the time that a cure is found during your lifetime. ❤️🌙

Thanks to all who joined the I AM ALS Community Summit in DC for three-day gathering where ALS advocates and community organizations discussed important issues facing people with ALS. #ourALScommunity . See photos on our Flickr channel! ow.ly/Oain50Sa0mT

Thank you MLB & Houston Astros for teaming up to #EndALS The ALS Association I AM ALS

You're an all-star, Roseann! So great to see this!

Last Thursday's Speaker Series at the #ALSinDC flag display was incredibly powerful. In case you missed the livestream, you can watch the full recording here: youtube.com/watch?v=-FBKWQ…

Our Lou Gehrig Day Team has definitely earned a break, but they're still recruiting! If you have ideas for how to make next year's Lou Gehrig Day bigger and better, join the team: iamals.org/action/lou-geh…