Camrose HD Society (@hsccamrosechapt) 's Twitter Profile
Camrose HD Society

@hsccamrosechapt

The Camrose Chapter of the Huntington Society of Canada is a group of people and families that are affected by Huntington Disease in Camrose AB area.

ID: 2446600855

linkhttp://www.hdcamrose.ca calendar_today16-04-2014 05:12:41

4,4K Tweet

280 Followers

103 Following

HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

Heart health has been linked to lower levels of NfL, a key biomarker of brain cell damage in Huntington’s disease. This suggests heart-healthy habits - like exercise and diet - may have an effect on protecting the brain & keeping NfL in check. ift.tt/LHTgBi0

Heart health has been linked to lower levels of NfL, a key biomarker of brain cell damage in Huntington’s disease. This suggests heart-healthy habits - like exercise and diet - may have an effect on protecting the brain & keeping NfL in check. ift.tt/LHTgBi0
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

Post videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families. buff.ly/x6up5mS

Post videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families. buff.ly/x6up5mS
Huntington's Disease News (@huntingtondnews) 's Twitter Profile Photo

The first Huntington's disease patient has been dosed in a Phase 2/3 clinical trial testing SKY-0515, an oral disease-modifying therapy. huntingtonsdiseasenews.com/news/first-hun…

The first Huntington's disease patient has been dosed in a Phase 2/3 clinical trial testing SKY-0515, an oral disease-modifying therapy. huntingtonsdiseasenews.com/news/first-hun…
Help4HD (@help4hdi) 's Twitter Profile Photo

"Are there any treatments in the pipeline for #cognitive issues in HD...?" Answers to this question & more on #Help4HDTV! #HD experts from HDSA Center of Excellence @ UAB share clinical perspective at #Help4HDHIPE2025. Take a listen! facebook.com/help4hd/videos

Help4HD (@help4hdi) 's Twitter Profile Photo

Many asked about Birthday #Fundraisers which are now available on Facebook! Donations go back to the community thru #Help4HD Relief Fund unless otherwise designated via private message. Thank you for your support as we continue to serve our #HD community!

Many asked about Birthday #Fundraisers which are now available on Facebook! Donations go back to the community thru #Help4HD Relief Fund unless otherwise designated via private message. Thank you for your support as we continue to serve our #HD community!
The Spectator Index (@spectatorindex) 's Twitter Profile Photo

BREAKING: Huntington's Disease, which is normally fatal within two decades, has been treated for the first time, according to researchers at the University College London and BBC report.

Robert Y. Chen (@therealryc) 's Twitter Profile Photo

🚨 The first disease-modifying therapy for Huntington's disease was just announced this morning. 75% reduction in symptoms over 36 months. This isn't hype. It's field-changing. And it uses RNA. Here's what you need to know about $QURE AMT-130 🧵

🚨 The first disease-modifying therapy for Huntington's disease was just announced this morning.

75% reduction in symptoms over 36 months.

This isn't hype.

It's field-changing.

And it uses RNA.

Here's what  you need to know about $QURE AMT-130 🧵
Simon Maechling (@simonmaechling) 's Twitter Profile Photo

Huntington’s disease is brutal. A single DNA error → toxic protein → dead brain cells. No cure. Always fatal. Always inherited. But now? Science has flipped the script. How the new gene therapy works: 1️⃣ Huntington’s mutation makes a toxic protein that kills neurons. 2️⃣

Huntington’s disease is brutal.

A single DNA error → toxic protein → dead brain cells.
No cure. Always fatal. Always inherited.

But now? Science has flipped the script.
How the new gene therapy works:

1️⃣ Huntington’s mutation makes a toxic protein that kills neurons.

2️⃣
Prof.Dr. Tümay İpekçi (@tumayipekci) 's Twitter Profile Photo

🚨 GOOD NEWS ALERT 🚨 — a step toward better quality of life! 🙌✨ “#Huntingtondisease can have multiple effects on the bladder, which can significantly impact an affected individual’s quality of life (QoL). As the disease progresses, a patient may experience a wide range of

Matt Nicholson (@writerly203) 's Twitter Profile Photo

I lost my Mom to Huntington’s Disease after 20 years of seeing her agency and ability striped away, symptom by debilitating symptom. But what it never robbed her of was the hope we’d read this headline in my lifetime. What heartening news. Thank you to these scientists.

Reuters (@reuters) 's Twitter Profile Photo

An experimental gene therapy from UniQuire reduced disease progression in Huntington's patients by 75% over 36 months in a clinical trial, marking a significant milestone for the rare inherited brain disorder that has no FDA-approved treatments reut.rs/4gAEFcg

Keith Siau (@drkeithsiau) 's Twitter Profile Photo

Huntington’s disease is an awful genetic neurodegenerative condition that causes uncontrolled movements and dementia. Having had patients and a colleague affected, the news of mRNA gene therapy is a promising advance in medicine that brings much needed hope 🙏 📸: JAMA / BBC

Huntington’s disease is an awful genetic neurodegenerative condition that causes uncontrolled movements and dementia. Having had patients and a colleague affected, the news of mRNA gene therapy is a promising advance in medicine that brings much needed hope 🙏

📸: JAMA / BBC
Laura Vater, MD, MPH (@doclauravater) 's Twitter Profile Photo

In med school, I learned that Huntington's disease was one of the most devastating inherited conditions. It caused progressive neurological decline, starting around age 30. There was no treatment. Now, Huntington's has been treated for first time. This is why we fund science.