HCM Patient Foundation (@hcmpatient) 's Twitter Profile
HCM Patient Foundation

@hcmpatient

We aim to improve the lives of Hypertrophic Cardiomyopathy (HCM) patients and families in the EU via innovative projects, information, and psychological care.

ID: 1738123733544452096

linkhttp://www.hcmpatient.eu calendar_today22-12-2023 09:06:41

75 Tweet

44 Followers

97 Following

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

A great paper by our own scientific board members Dr. Niccolo' Maurizi, Prof. iacopo olivotto and Prof. Franco Cecchi! It offers the first systematic evaluation of HCM diagnostics based on red flags 🚩 and will hopefully accelerate and improve the process. academic.oup.com/eurheartj/adva…

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

Episode 4 of the HCM Pills webcast is online! In it Dr. Niccolo' Maurizi interviews Prof. Jolanda van der Velden on the fascinating disease mechanisms of HCM and how their better understanding can bring new treatments. #hcm #hypertrophic #cardiomyopathy 👇 👇 👇 youtu.be/FNL1W2lrklY

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

We are happy to welcome Edgewise Therapeutics as our partners! Our supporting companies enable us to work for the benefit of HCM patients in numerous ways. If you or your company want to become a partner do get in touch!

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

HCM is a complex disease. Watch Episode 4 of the HCM Pills webcast in which Prof. Jolanda van der Velden explains the disease mechanisms. 👇 👇 👇 youtu.be/FNL1W2lrklY

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

We are happy to announce that the report with the results from the European HCM Patient survey is online! Thanks to all who replied and to the project sponsors from Bristol Myers Squibb, Tenaya Therapeutics, Edgewise Therapeutics and D-Heart! Thanks also for sharing! 👇👇👇 hcmpatient.eu/survey-of-euro…

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

There are many very interesting presentations at the European Heart Rhythm Association Congress in Vienna. Great things are happening in the area of heart rhythm management. #EHRA2025

There are many very interesting presentations at the European Heart Rhythm Association Congress in Vienna. Great things are happening in the area of heart rhythm management. #EHRA2025
HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

On Monday we visited the state-of-the-art labs of Amsterdam Physiology. It was incredibly exciting to see where the magic happens and what we until recently thought impossible becomes reality. Consider us impressed! More videos from this visit to follow soon.

On Monday we visited the state-of-the-art labs of <a href="/AmsterdamPhys/">Amsterdam Physiology</a>. It was incredibly exciting to see where the magic happens and what we until recently thought impossible becomes reality. Consider us impressed! More videos from this visit to follow soon.
NM Genomix (@ngenomix) 's Twitter Profile Photo

Как да знаете дали носите гени, които отключват кардиомиопатия? NM Genomix предлага най-ново поколение кардиогенетични тестове. Свържете се с наш специалист за безплатна консултация 👉 0885 443 975

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

Kudos to Dr Hunain Shiwani and the teams at UCL and St. Bartholomew's for creating a new tool to define what a "normal" heart thickness means for different people. A much-needed improvement in diagnostics. #HCM #diagnostics #genetic #heart #disease thebrighterside.news/post/major-stu…

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

More great news for all cardiac patients and especially those with #HCM! Targeting long non-coding RNAs is another very promising approach to finding safe and effective treatments. Congratulations to Samir Ounzain and his team, we wish them success and will follow their progress!

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

We continue the analysis of the survey we conducted earlier this year. Here is the comparison of patients from Italy, France, Netherlands, Sweden and the rest of the countries. Curious to know more? Then read the whole analysis at the link below. 👇 👇 👇 hcmpatient.eu/survey-of-euro…

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

🎦Episode 6 of HCM Pills webcast is online! Dr. Niccolo' Maurizi interviews Dr. Harald Jørstad on the subject of physical activities in HCM patients. Thanks to Bristol Myers Squibb and Cytokinetics who sponsored this episode! Thanks for sharing and subscribing! youtu.be/zE19XoFCvss

HCM Patient Foundation (@hcmpatient) 's Twitter Profile Photo

Today is the World Heart Day and we challenge you to move with Francesca and Filippo to conquer Marathon! Francesca is a young HCM patient with an implanted S-ICD which already fired once - but she always remains positive. Thanks for helping and sharing! donorbox.org/run-with-franc…