HCM Patient Foundation
@hcmpatient
We aim to improve the lives of Hypertrophic Cardiomyopathy (HCM) patients and families in the EU via innovative projects, information, and psychological care.
ID: 1738123733544452096
http://www.hcmpatient.eu 22-12-2023 09:06:41
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A great paper by our own scientific board members Dr. Niccolo' Maurizi, Prof. iacopo olivotto and Prof. Franco Cecchi! It offers the first systematic evaluation of HCM diagnostics based on red flags 🚩 and will hopefully accelerate and improve the process. academic.oup.com/eurheartj/adva…
🕵️♂️First systematic evaluation of the Cardiomyopathy mindset approach, based on red flags 🚩for disease specific diagnosis in HCM. Have a read to our last work ! Maurizio Pieroni Ioannis Skalidis iacopo olivotto Alessia Argiró Giuseppe Limongelli Emanuele Monda Azienda Ospedaliero-Universitaria Careggi Service de cardiologie du CHUV
Episode 4 of the HCM Pills webcast is online! In it Dr. Niccolo' Maurizi interviews Prof. Jolanda van der Velden on the fascinating disease mechanisms of HCM and how their better understanding can bring new treatments. #hcm #hypertrophic #cardiomyopathy 👇 👇 👇 youtu.be/FNL1W2lrklY
We are happy to welcome Edgewise Therapeutics as our partners! Our supporting companies enable us to work for the benefit of HCM patients in numerous ways. If you or your company want to become a partner do get in touch!
HCM is a complex disease. Watch Episode 4 of the HCM Pills webcast in which Prof. Jolanda van der Velden explains the disease mechanisms. 👇 👇 👇 youtu.be/FNL1W2lrklY
We are happy to announce that the report with the results from the European HCM Patient survey is online! Thanks to all who replied and to the project sponsors from Bristol Myers Squibb, Tenaya Therapeutics, Edgewise Therapeutics and D-Heart! Thanks also for sharing! 👇👇👇 hcmpatient.eu/survey-of-euro…
More good news for HCM patients: encouraging results from the Phase II trial of Edgewise Therapeutics's drug EDG-7500. investors.edgewisetx.com/news/news-deta…
On Monday we visited the state-of-the-art labs of Amsterdam Physiology. It was incredibly exciting to see where the magic happens and what we until recently thought impossible becomes reality. Consider us impressed! More videos from this visit to follow soon.
More great news for all cardiac patients and especially those with #HCM! Targeting long non-coding RNAs is another very promising approach to finding safe and effective treatments. Congratulations to Samir Ounzain and his team, we wish them success and will follow their progress!
🎦Episode 6 of HCM Pills webcast is online! Dr. Niccolo' Maurizi interviews Dr. Harald Jørstad on the subject of physical activities in HCM patients. Thanks to Bristol Myers Squibb and Cytokinetics who sponsored this episode! Thanks for sharing and subscribing! youtu.be/zE19XoFCvss
Heat is an enemy of heart patients. It is important to take precautions, as Dr. Srihari S. Naidu, MD points out.