Genetics Policy Hub
@geneticspolicy
Latest US genetics policy information. Information posted is for educational purposes only. Posts/follows/reposts/likes≠endorsement. Run by @nccrcg.
ID: 1283156096413245440
https://geneticspolicy.nccrcg.org 14-07-2020 21:47:15
904 Tweet
204 Takipçi
142 Takip Edilen
APHA
@publichealth
Official account of the American Public Health Association. We champion optimal, equitable health and well-being for all.
National Public Health Week
@nphw
The American Public Health Association (@publichealth) will celebrate the 30th National Public Health Week April 7-13, 2025. See you for #NPHW!
The American Journal of Bioethics
@bioethics_net
Providing daily #bioethics news, webinars on trending topics, AJOB journal articles from leading scholars, and essays at Bioethics Today.
julie rovner
@jrovner
Chief Washington Correspondent KFF Health News/horse person/corgi mom X 2. Host, KFF Health News's "What the Health?" podcast. #GoBlue!
AcademyHealth
@academyhealth
The professional home for health services researchers, policy analysts, and practitioners, and a leading, non-partisan resource for the best in HSR.
KFF Health News
@kffhealthnews
A national newsroom that produces in-depth journalism about health issues; a core program of @KFF. Also publishes @CalHealthline.
HHS_Health
@hhs_health
Official profile for the HHS Office of the Assistant Secretary for Health – Leading Americans to healthier lives! Privacy policy: hhs.gov/privacy.html
American Nurses Association
@ananursingworld
Championing nurses, pioneering healthcare innovation, and igniting change. That is The Power of Nurses™. RTs & Likes are not endorsements
Kentucky Department for Public Health
@kyhealthalerts
Health alerts from the Kentucky Department for Public Health, Cabinet for Health and Family Services
Center on Budget
@centeronbudget
Informing debates. Shaping policy. Producing results.
CaliforniaHealthline
@calhealthline
Daily news service on health care policy, politics, business and how California's health care system does and doesn’t work, by @KFFHealthNews for @CHCFnews.
AHRQ
@ahrqnews
U.S. Department of Health and Human Services' Agency for Healthcare Research and Quality
Larry Levitt
@larry_levitt
Executive Vice President for Health Policy, @KFF. Cal Bear.
Emily Bonkowski
@ebonkowski
Neuro GC & Research Program Coord | Public Health Genetics PhD student @uwsph | interests in bioethics and pediatrics, science is real, views are mine | she/her
Alliance for Health Policy
@allhealthpolicy
Nonpartisan, nonprofit organization dedicated to helping policymakers and the public better understand health policy. RT≠ endorsements #ThisIsYourAlliance
KFF
@kff
The independent source for health policy research, polling, and news.
Adrianna McIntyre (@adrianna.bsky.social)
@onceupona
also @adrianna.bsky.social
The Patient-Centered Outcomes Research Institute
@pcori
PCORI funds patient-centered comparative clinical effectiveness research (CER). Links, RTs, favorite ≠ endorsements/advice.
Andrey Ostrovsky, MD, FAAP
@andreyostrovsky
Investor @SocialInnoVntrs. Physician. Former Chief Medical Officer @MedicaidGov. Cofounder @CareAtHand (acq by Mindoula). Ukrainian American.🇺🇦🇺🇸
Kate Saylor, Ph.D.
@kwsaylor
Assistant Prof of Bioethics @GeisingerHealth. Bioethics, genetics, priority-setting. Former: @PennMEHP, @unc Public Policy PhD, @nih science policy, @ngpohsu
Pennsylvania Senate
@pasenate
The Senate of Pennsylvania. Follow @PaLegis for updates on legislative activity.
Sandra Soo-Jin Lee
@sandrasoojinlee
Medical Anthropologist, Professor @Columbia & Chief, Division of Ethics @ColumbiaEthics, Co-Director of CERA @ELSIhub, @HastingsCenter Fellow, Tweets are my own
Heartland TRC
@heartlandtrc
Your resource for #telehealth success in Kansas, Missouri & Oklahoma. Most services free. Call (877) 643-HTRC.
RareConnect
@rareconnect
🌐Connecting #raredisease patients globally at rareconnect.org. 💻Website help at @RareConnectSup.
NM Voices for Children
@nmvoices
Working to improve the lives of New Mexico's children and families since 1987. Non-partisan research, analysis, and advocacy. #NMKidsCount #nmpol #nmleg
Sick Cells
@sickcells
National Advocacy Organization, Official Nonprofit.
PA Legislature
@palegis
Roll Calls, Journals, and Committee Meeting announcements from the Pennsylvania General Assembly.
Rare Disease Report
@raredr
Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: tinyurl.com/RareDRPodcast, hosted by @GiulianaGrossi
Joan Alker
@joanalker1
ED of @georgetownccf and Research Professor GU’s @McCourtSchool of Public Policy; joanalker1.bsky.social
UnitedHealth Group
@unitedhealthgrp
Helping people live healthier lives and helping make the health system work better for everyone. Media inquiries: uhg.co/MediaContacts
Sachin H. Jain, MD, MBA
@sacjai
CEO SCAN Group and @ScanHealthPlan. Adj Prof. @StanfordMed @hc_thejournal. previously CEO @caremorehealth & founding team @cmsinnovates. opinions my own.
Genevieve Wojcik, PhD MHS
@genandgenes
Assoc Prof of Epidemiology in @JohnsHopkinsEpi, but views my own. || Genetic epi for diverse and admixed pops. || Mostly coffee, but still tired.
Simons Searchlight
@s_searchlight
Accelerating research by collecting data/biosamples from ppl w/rare #genetic causes of #autism & other neurodev dis. Researchers can get data: bit.ly/SFARI_BASE
Stacie Dusetzina
@dusetzinas
Moved to Bluesky
Alliance for Connected Care
@connectwcare
Leading advocacy voice for #telehealth and #remotepatientmonitoring with policymakers in Washington, DC.
Sara Gerke
@gerke_sara
Associate Professor, College of Law and European Union Center, University of Illinois Urbana-Champaign
ABMGG
@theabmgg
The mission of the ABMGG is to serve the public and the medical profession by promoting and assuring standards of excellence in medical genetics.
GSFLendingLibrary
@gsflibrary
Take a book, read a book, leave a book. Come see what your fellow genetic counselors and friends are reading at the GSF booth. Follow the books as they travel.
Elizabeth Reynolds
@ereynolds_
Founder @TheChampFound | Fighting to cure Pearson syndrome | Research scientist @RTI_Intl interested in rare disease, newborn screening & child development
Compendium of Cancer Genome Aberrations (CCGA) 🧬
@ccgawiki
The Compendium of Cancer Genome Aberrations (CCGA) group is a collaborative effort to document and describe chromosome and other genomic abnormalities in cancer
Neurofibromatosis Young Investigators Forum
@nfyiforum
Dec 5-6, 2024 | Supported through independent educational grants from Alexion and SpringWorks Therapeutics
Michael Rexroad
@rnarexroad
Board Eligible Genetic Counselor🧬
Baby's First Test
@babysfirsttest_
Baby's First Test is the nation's newborn screening education resource center for families and health professionals.
Duke-Margolis
@dukemargolis
Improving health, health equity, and the value of health care by developing and implementing evidence-based policy solutions locally, nationally, and globally.
Institute for Medicaid Innovation
@innov8medicaid
National nonprofit, nonpartisan 501(c)3 dedicated to generating & disseminating evidence-based info that informs #Medicaid policy, clinical practice, & research
Jennifer Ng'andu (she/her)
@jennngandu
Working to ensure every child can be at their healthiest; firm believer that it takes a village; Views are my own
David Grabowski
@davidcgrabowski
Professor, Health Care Policy, Harvard Medical School -- health economics, aging, long-term care, post-acute care
This Is Public Health
@tiphtweets
This is Public Health brand was created by ASPPH to promote public health awareness. Share your tweet by using #ThisIsPublicHealth
PerkinElmer Genomics
@pkigenomics
A global leader in #genetic and #genomic testing focused on rare diseases, newborn screening, and inherited cancer. Let's end the diagnostic odyssey together.
Muin J. Khoury
@muinjkhoury
Physician, Epidemiologist, Medical Geneticist, Public Health Professional. Views are my own. Links≠ Endorsements