FOXG1 Research
@foxg1research
FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders. We are pioneering research to find a cure.
ID: 903437115727466496
http://www.foxg1syndrome.org 01-09-2017 01:59:28
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Dolly Parton
@dollyparton
🦋 The Official X of Dolly Parton 🦋 Dolly: An Original Musical Tickets on Sale Now @DollyMusical 🎶✨
Jeff Bezos
@jeffbezos
Amazon. Blue Origin. Washington Post. Bezos Earth Fund. Bezos Academy.
Lurie Children's
@luriechildrens
Ann & Robert H. Lurie Children's Hospital of Chicago is ranked nationally in all 10 pediatric specialities by U.S. News & World Report. We Tweet for the kids.
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Gibson
@gibsonguitar
Legendary, Iconic. Dedicated to quality, craftsmanship, innovation and sound excellence since 1894. #gibson
Satya Nadella
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Chairman and CEO at Microsoft
AdvisorShares
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Advisor to Active ETFs - Tweets, Retweets, Likes are not a recommendation, advice or a solicitation of any security. For ETF info: advisorshares.com #MSOGang
Women's Day
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INTERNATIONAL WOMEN'S DAY (March 8) is an important day to celebrate women's social, economic, cultural & political achievements + call for gender equality
ZS
@zsassociates
We are a management consulting and technology firm focused on transforming healthcare and beyond.
Saturday Night Live - SNL
@nbcsnl
The official X of Saturday Night Live
East Hampton Library
@ehlibrary
Read, learn, communicate... Create, play, participate. Serving EH since 1897. #EastHamptonLibrary #AuthorsNight : Sat Aug. 9, 2025 authorsnight.org
Bertrand Might
@bertrandmight
I'm a little guy. My parents blog about how I'm changing the world, one smile at a time. #NGLY1 #RareDisease #CDG @NGLY1org
Trey Anastasio
@treyanastasio
Guitarist, composer, songwriter.
Peter Halliburton
@phalliburton
Raising $$ for #SYNGAP1 🧬 gene therapy // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @cyberark Channel Sales // TX 🇨🇱
Gary Sinise
@garysinise
Actor/Director/Bass Player/Founder of GS Foundation & Author of NYT Bestseller Grateful American
Gibson Guitar PR
@gibsonguitarpr
For official information from Gibson Public Relations. Gibson is known worldwide for producing classic models in every major style of fretted instrument.
Bank of America
@bankofamerica
We're proud to support U.S. Soccer, FIFA Club World Cup 25™ and FIFA World Cup 26™. What would you like the power to do? Account issues: @BofA_Help
Gene Therapy Net
@genetherapynet
Gene Therapy Net is the web resource for patients and professionals interested in gene therapy.
Ethan Perlstein bio/acc
@eperlste
ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, ceo @endrarediseases, solo vc @AngelList, evo pharmacologist, mTOR worshipper, cofounder of K&L, $CURES
Mike Graglia 🌻
@jmgraglia
CEO @cureSYNGAP1 🧬 Pod SynGAP.Fund/10 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Onno Faber
@onnofaber
Possibility thinker, designer, builder, entrepreneur, rare disease advocate, keynote speaker
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
American Epilepsy Society
@amepilepsysoc
We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.
Anil Sethi
@anilsethiusa
@Ciitizen founder and CEO. Here to kill cancer.
Charles Hoskinson
@iohk_charles
Dire Wolf Mode | Sateré-Mawé Warrior 8830 AC64 17F2 5164 195C 05DE 21E3 E377 13E1 5586 | CEO of IOG and King of the Rats
Tracy Dixon-Salazar
@tracydixonsalaz
Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Otteroo
@otteroobaby
The 👶🏼 neck float trusted by parents, loved by babies. 🛁 Bath and 💦 pool + Otteroo = Happier Stronger Babies! Share your #otteroo 📸 with us!
Women Entrepreneurs
@womenseday
Women's Entrepreneurship is everyday - Celebrate, Support, and Empower Women in Business @UN November 19th in 144 Countries Founded by @wendydiamond
Autism BrainNet
@autismbrainnet
Advancing #autism #research through the gift of #braindonation. Learn more at autismbrainnet.org. Call us at 877-333-0999. We are available 24/7.
FamilieSCN2A
@familiescn2a
Our vision is to find effective treatments and a cure for SCN2A disorders.
Dr. Jan Nolta
@jan_nolta
Director, Univ. California Davis Health Stem Cell Program & Gene Therapy Center. Editor, Stem Cells. #firstgen health.ucdavis.edu/stemcellresear…
SYNGAP1 Foundation
@syngap1fnd
SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1
Goose
@goosetheband
Tickets and more info at goosetheband.com/tour
UC Davis Stem Cell
@ucdavisstemcell
The UC Davis Institute for Regenerative Cures (IRC) is a hub for cell & gene therapy. UCD has 51 currently active cell and/or gene therapy clinical trials.
Adam Torres
@askadamtorres
Podcast Host at Mission Matters (Top 2.5% podcast)
Luke Rosen
@lukebrosen
Dad of two remarkable kids. Founder of KIF1A.org & Rescue7.org. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
Leah
@leahedscn2a
Founder, Executive Director and Former President of the FamilieSCN2A Foundation. Mom and rare disease advocate of epilepsy and autism, SCN2A-related disorders.
Fink Lab
@finklab
Translating artificial transcription factors #CRISPR #TALEs #zincfingers to the 🧠 @ Institute for Regenerative Cures #PrecisionMedicine🧬 Tweets by lab members
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
SynGAP Research Fund (SRF)
@curesyngap1
#SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 syngap.fund/F78A1 syngap.fund/10 🎙
Neurogene Inc.
@neurogeneinc
Neurogene is focused on developing life-changing genetic medicines for patients and their families affected by rare, devastating neurological diseases.
tbckfoundation
@tbckfoundation
The TBCK Foundation proudly advocates, educates, and advances research for the rare genetic neurological disease, TBCK syndrome. #dontstopbelievin #tbckwarrior
TheRareFair
@therarefair
Powered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. therarefair.com
Elena Fisher, MS, CGC
@elenafishergc
(she/her) prenatal & pediatric genetic counselor • passionate about speaking up and continuing to grow • #BlackLivesMatter #StopAAPIHate • tweets are my own
CryptoGivingTuesday
@donatecryptos
Crypto Giving Tuesday
FDA
@fda
Thanks for visiting @FDA. You can find us posting over at @US_FDA.
CACNA1A Foundation
@cacna1a
Nonprofit dedicated to a brighter future for those with CACNA1A variants. On a mission to fund life changing research while supporting families along the way.
Jared Isaacman
@rookisaacman
Keeping busy on and off the planet 🌎. Shift4, Inspiration4, Polaris Dawn 👨🚀🚀🐉
n-Lorem Foundation
@n_lorem
Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life
Revathy Suresh (she/her)
@revathy_slc
Cancer Genetic Counselor @moffittnews | SLC ‘22| Potterhead #GCChat #GeneChat
Alaina Heinen
@alainaheinen
Transcripta Bio
@transcriptabio
We are focused on drug discovery at unprecedented speed and scale, with lower risk and higher certainty across multiple diseases in parallel.
Beata Tarasiuk
@beatasyngap1
SynGAP1 Mom @curesyngap1 #syngap1 volunteer at SRF
Creyon Bio
@creyonbio
Reinventing drug development from the ground up to make safe, effective oligonucleotide-based medicines possible—on demand.
Madison
@madisonj_gc
Certified Genetic Counselor #genechat she/her/hers
The Orphan Disease Center @ UPenn
@odc_upenn
orphandiseasecenter.med.upenn.edu
Rare & Ready: A Genetic Condition Coalition
@rare_ready
Supported by BioMarin & Ultragenyx, the Coalition educates state policymakers on the impact of conditions. Social media guidelines bit.ly/3AzXLue
Ben Forred
@zebrasites
I make and manage awesome websites for #raredisease advocacy organizations. Husband, father, rare disease patient/researcher, web designer 🤓
TESS Research Foundation
@tessresearch
We are a 501(c)(3) tax exempt public charity. Our goal is to fund cutting-edge research to find a cure for the genetic disease SLC13A5 Epilepsy.
Kyle Fink
@kyneurosciguy
Dr. Peter Deng
@phdeng_
Associate Product Manager at Synthego. Tackling one problem at a time. Thoughts are my own. He/him.
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
KIF1A.ORG
@kif1a
We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast.
Heidi Grabenstatter
@patientintv
RDCA-DAP Scientific Director @CPathInstitute, patient advocate, neuroscientist, and proud mom. Opinions are my own.
Marinus
@marinuspharma
Committed to improving the lives of patients affected by seizure disorders.
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
The Giving Block
@thegivingblock
Want to change the world? We make it easy for nonprofits to fundraise with crypto, stock, cash or DAF donations and for donors to give to their favorite causes.