Fanconi Hope
@fanconihope
Fanconi Hope helps those affected by Fanconi Anaemia, a genetic condition causing bone marrow failure and a significantly increased risk of cancer.
ID: 85760126
http://www.fanconihope.org 28-10-2009 06:47:13
422 Tweet
354 Followers
230 Following
The BMJ
@bmj_latest
The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment
This Morning
@thismorning
Join us weekdays from 10am on ITV1 and STV! 🕙 Tweets to #ThisMorning or @ThisMorning may be used on air. T&Cs at itv.com/participation
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Louise Arnold
@louiseshackle
Haematology ACP nurse in PNH, Aplastic Anaemia, & bone marrow failure -part of NHSE PNH national commissioned service and Aplastic Anaemia in Leeds.
CoppaFeel!
@coppafeelpeople
Leaving no chest unchecked 🍒
Jack Bartram
@drjackbartram
Husband. Father. Paediatric Haematologist @GreatOrmondSt. and wannabe scientist @UCLchildhealth. #NHS #Haematology #Genomics🔬🧬
SCDAA
@scdaaorg
The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
ASH
@ash_hematology
The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Natalie⚡️
@natbrun3ll0
Hodler- @SrPetersETH Coin Stories Podcast Host | Go-To Source for #Bitcoin
UCL Cancer Institute
@uclcancer
University College London
Historic Scotland
@welovehistory
Your guide to Scotland's finest historic attractions & best days out. Part of @HistEnvScot. House Rules: ow.ly/OsEL50LptSB
Ali Khurram
@sakhurram
Jack of most trades! Pathologist, Patient Advocate, Researcher, Educator, Digital & AI enthusiast, Dean Dental School, Sheffield. Lead-NEOPATH Research Group.
Ganesha Pitchai
@ganeshapitchai
Biochemist, Dad @GenomicsUnit @OxfordAlumni #Biophysics #DNA Repair and Replication #Ubiquitin #BLM #CryoEM #Equalityinscience All views are my own
Mike London Sr. ⚔️
@coachmikelondon
William & Mary Football Head Coach Proverbs 27:17 #FaithFamilyFootball. Phi Beta Sigma Fraternity tribeathletics.com/sports/football
Bham Children's Hosp 💙
@bham_childrens
Birmingham Children's Hospital - proud to be part of Birmingham Women's & Children's NHS Foundation Trust. Hospital & charity (Reg no. 1160875) official account
James Edward Eubank
@jimed73
Olivia's FA fundraiser is active yearly on FB from 2/28 until 5/1!!! Please donate to Fanconi.org in Olivia's name! #2A Libertarian 🐜
Sickle Cell Society
@sicklecelluk
The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.
The AAT
@aplasticanaemia
The Aplastic Anaemia Trust is the only charity in the UK dedicated to raising funds for research and to supporting everyone affected by aplastic anaemia
AA&MDSIF
@aamdsif
Aplastic Anemia and MDS Int'l Found supports patients & families with #aplastic anemia, #MDS, #PNH, and related bone marrow failure diseases #AML #PRCA #CMML
Deena Iskander
@deenaiskander
Haematologist and scientist. 'When you don’t feel that your feet are quite touching the bottom, you’re just about in deep enough to do something exciting.'
Sorcha Eastwood MP
@sorchaeastwood
Member of Parliament for Lagan Valley 💛Alliance Party💛 📧 [email protected]
Mandy Day 💙🎗
@mandyday2
Mandy Day, Leukaemia CNS on the amazing Piam Brown Ward, Southampton Children's Hospital All views my own
Emma Drašar
@redcellemma
Consultant Red Cell haematologist working in London @whitthealth and @uclh. Trying and failing to be less angry about things. Opinions my own etc etc.....
HCC_UCLH
@hcc_uclh
Haematology Cancer Care is celebrating 30 years of helping our haematology unit deliver personalised care at UCLH through our activities and events!
FWGBD
@fwgbd
We work to achieve education and awareness with key healthcare providers, by translating and disseminating blood disorder provider information and research.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
DBAS UK
@dba_uk
DBAS UK - Charity for Diamond Blackfan Anaemia syndrome in the UK - Support, Research, Hope. facebook.com/dba.org.uk/
CCLG
@cclguk
CCLG: The Children & Young People’s Cancer Association We are dedicated to creating a brighter future for children and young people with cancer.
Anna Middleton
@genomethics
PhD. Director Kavli Centre Ethics, Science and the Public, Assoc Director Wellcome Connecting Science. en.wikipedia.org/wiki/Anna_Midd…
Keith Hunter
@kedahuntr
Professor of Head & Neck Pathology, Scientist, Teacher, Husband, Father, Runner, Cyclist, Drummer, and, not least, Christian (and not all at the same time)
TIF
@thalassaemiatif
A non-profit organization based in Cyprus advocating for the prevention & treatment of thalassaemia & other haemoglobin disorders & patients' rights worldwide.
MedicsforRareDisease
@medicsforrare
Excellence in rare disease medical training
Hanya Mahmood
@hanyamahmood
Senior Clinical Lecturer & Honorary Consultant Oral Surgeon @ShefDentistry | PhD | Research: Prognostic prediction of oral precancer using AI @neopathology
Sickle Cell Consortium
@sccconsortium
a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.
Paula Río
@pauferrol
Biologist. PI at CIEMAT. Gene Therapy in Fanconi Anemia. Passionate about Gene Editing
Jordi Surrallés
@jsurralles
Director of @IRSantPau and Full Professor of Genetics at @UABarcelona
Irene O'Donnell
@ireneodonnelo
Trust Lead Therapeutic Play & Youth Services •Advocate /adviser on play & youth work In healthcare #SoHPS Society of health play specialists workforce lead
Joti Birdi
@birdionboundary
NCTJ qualified Journalist | Freelance Sports Writer @bbcsport bylines @thecricketermag @thecricketpaper @guardian_sport @guardiang2 @chance2shine
The Red Cell Network
@trcnhcc
Haemoglobinopathy Coordinating Centre for North Central London and East Anglia (sickle cell disease) and London, South Central and South West (thalassaemia).
Sarah Milosevic
@milosevicsarah
Qualitative health researcher @CTRCardiffUni. Interest in patient information & inequitable healthcare access, particularly in maternity, IVF & genetics.
@diefenbacherlab.bsky.social
@diefenbacherl
Targeting protein stability in #Cancer via #Ubiquitin-System @HelmholtzMunich @LungHealthMUC and @LMU_Muenchen Impressum: bit.ly/14S4Z8k
Burak Altintas
@altintasburakmd
PGY-3 Peds/MGG resident at @WashU_PedsRes @MedgenW. Trained @hacettepetip ‘12-18, postdoc fellow @NCIEpiTraining #NCI_ClinicalGenetics ‘19-22.He/him👶🏽🧬🏳️🌈
Josu de la Fuente
@josudelafuente
Haematologist, red cell disorders and marrow failure. Working towards definitive cure: #BMT #genetherapy. @ImperialNHS @ImperialImmuno @TheEBMT @ApothecariesLDN
Helen Oram
@drhelenoram
Haematologist🩸🔬Lifter🏋️♂️ Cyclist🚴♀️ Reader @KingsMedicine - #genAI for #MedEd #Assessment. Paediatric haematologist interested in #transition #TYA #SCD.
PNH Global Alliance
@globalpnh
Now found at Bluesky: bsky.app/profile/pnhglo…
Dr. Justin du Toit
@clinicalhaemat1
Wits Donald Gordon Cellular + Immunotherapy Centre. MBChB; FCP (SA); MSc (Rotterdam); Cert Clin Haem (SA)Phys. Clinical Haematologist
Shwachman-Diamond Syndrome Registry
@sdsregistry
Dedicated to accelerating research and treatment for Shwachman-Diamond Syndrome (SDS).
Shwachman-Diamond Syndrome Alliance
@curesds
Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease. Global collaboration is key.
KMyers
@kmyersbmt
Pediatric Stem Cell Transplant Doc/Cincinnati/Opinions are my own.
wAIHA Warriors
@waihawarriors
wAIHA Warriors is a 501 (c)(3) support and advocacy group for those diagnosed or caring for someone with Warm Hemolytic Autoimmune Anemia (#wAIHA)
Centre for Paediatrics & Child Health
@imperialpaech
Centre for Paediatrics & Child Health @imperialcollege| Part of @ImperialMed | We will be the voice for children in West London, and beyond
Rare Anaemias International Network
@rareanaemias
RAIN has united to support rare anaemias by establishing a global voice through community collaborations
West London HCC Network
@hccwestlondon
West London's Haemoglobinopathy (Sickle Cell, Thalassemia and Rare Anaemias) Network
International Head & Neck Cancer Conference
@h_and_ncancer
In 2025 Northampton hosts our 2 day conference. Bringing together Health Professionals, Patients, Caregivers, Book your places now go to the website .
Yanbin Zhang
@yanbinzhangdna
Laboratory of DNA Repair & Mutagenesis@UMiami, Dad x3
ERN EuroBloodNet
@erneurobloodnet
ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases
NHS Genomic Medicine Service
@nhsgms
Information for and from the NHS Genomic Medicine Service 🧬 #Genomics. england.nhs.uk/publication/ac…
Carmem Bonfim
@carmembonfim1
Duke Pediatric Transplant and Cellular Therapy Program. Proud 🇧🇷. Scientific director @SBTMO. @hospitalpp. WBMT 🌎. Views are my own !
EBMT Nurses
@theebmt_nurses
The EBMT Nurses Group was established in 1985. Our mission is to support nurses & AHPs by promoting excellence in the provision of BMT and Haematology care.
David Beneitez, MD
@beneitez_david
@Hemato_Vhebron / Red Blood Cell Disorders Unit / ERN-EuroBloodNet Center / Clinical confirmation unit of SCD newborn screening programme in Catalonia
Jenna Love
@jennalove_psych
Anthony Nolan Clinical Psychologist at St George's Hospital. Health psych esp #stemcell transplants, cancer, pain, sickle cell, tinnitus. Tweets own views.