Sicksplaining Podcast (@sicksplaining) 's Twitter Profile
Sicksplaining Podcast

@sicksplaining

Video #podcast focused on #chronic and #invisible #illnesses - on YouTube! Hosted by @Sabrina_Poirier

ID: 1083578742742663174

calendar_today11-01-2019 04:17:58

2,2K Tweet

781 Followers

1,1K Following

Paul Minot, MD (@paulminotmd) 's Twitter Profile Photo

successful in redefining what it means to be a human being. Meanwhile, 20 years of peak psychiatry has resulted in a 30% increase of suicide in the United States--and American psychiatry has absolutely nothing constructive to say about it. Please tell me what I've missed.

davidtuller (@davidtuller1) 's Twitter Profile Photo

This is quite a frank condemnation of the field of psychiatry from a long-time practitioner. This definitely appears to be the case when it comes to post-viral conditions and other complicated illnesses that generate non-specific symptoms.

Sabrina Poirier (On Hiatus) 🇨🇦 (@sabrina_poirier) 's Twitter Profile Photo

A quick ask of our ME researchers: Please do not sign on to questionable “holistic” conferences that take aim at us for their own profits. (These “free conferences” are recruitment tools.) Your reputations are lending credibility to very harmful individuals. You’re bait.

Sabrina Poirier (On Hiatus) 🇨🇦 (@sabrina_poirier) 's Twitter Profile Photo

Please everyone, do NOT click on the Guardian article to read it. It is another outdated and factually inaccurate piece that continues to gaslight some of the sickest people in the world…while uplifting our grifters and oppressors. Nothing new to see here. #NoClicks 🙏

Please everyone, do NOT click on the Guardian article to read it. 

It is another outdated and factually inaccurate piece that continues to gaslight some of the sickest people in the world…while uplifting our grifters and oppressors. 

Nothing new to see here. 

#NoClicks 🙏
Putrino Lab (@putrinolab) 's Twitter Profile Photo

After seeing severe #LongCovid and #MECFS, it is exactly this sentiment that drives my urgency and fight. Thank you for sharing this. 🙏🏻

Alice Wong 王美華 (@sfdirewolf) 's Twitter Profile Photo

I recently identified as someone w/ chronic pain even though I lived w/ it for my entire life but wasn’t sure if my pain was ‘severe’ or ‘unremitting’ enough My tolerance for it was so high it was normal for me & I didn’t take it seriously until more people talked about it

Sten Helmfrid 🇺🇦 (@stenhelmfrid) 's Twitter Profile Photo

#MECFS is a severe, chronic illness. The fluctuating nature of the symptoms may give a false impression that patients are not that ill—because you see them during peaks—but the fluctuations are a problem in themselves as they make planning difficult. #MEAwarenessHour

Sabrina Poirier (On Hiatus) 🇨🇦 (@sabrina_poirier) 's Twitter Profile Photo

“It takes a village…” I need a village. My family needs a village. Genuine question: How am I to build a new village when I have no energy to connect and when I do, it’s too hard to be vulnerable and not fall apart doing so? (My previous village basically forgot I exist.)

Dr Jay Watts (@shrink_at_large) 's Twitter Profile Photo

As #MyalgicEncephalomyelitis is trending, I want to acknowledge once more the role my profession has played in the historical and current gaslighting of ME/CFS patients. I fully support increased funding and greater respect for biomedical research in this field. Ditto Long Covid.

Professor Karim Khan (@profkarimkhan) 's Twitter Profile Photo

From Dr Watts. Hear hear. Some conditions (such as ME) don't have a biomarker yet. The diagnosis should be made on clinical grounds. And the patients should receive the benefits they are entitled to. That's the purpose of benefits.

Putrino Lab (@putrinolab) 's Twitter Profile Photo

Felt this hard today. Every clinician/researcher who has touched #LongCovid, #MECFS and chronic #lyme should see this as the unacceptable price for decades of underfunding, stigma and ignorance. Every patient who is seeing this and being affected: Please hold fast if you can ❤️‍🩹

Imogen (@inadarkroom247) 's Twitter Profile Photo

My partner, who was convinced that I'd improve, has now accepted that I'm dying of this. We've talked about my final wishes and what to do when I'm no longer able to communicate. Nobody should have to do this at 25 #SevereMEKills

Dan Wyke 🦠➡️🧠🔥 (@dan_wyke) 's Twitter Profile Photo

It's striking that the term "Post-exertional malaise" (PEM) - which the more reliable diagnostic criteria consider the cardinal symptom of #MECFS - isn't mentioned once in the introduction to the NIH study. What's that about? 🧐

@richardvallee.bsky.social (@richardvallee) 's Twitter Profile Photo

Something's deeply broken with medicine. Decades of being insulated from accountability and oversight from outside the bubble have lead to a stagnation unlike any profession ever faced. Adaptation, cognitive flexibility, is the root of intelligence. And they aren't adapting.

Ravi Veriah Jacques (@ravihvj) 's Twitter Profile Photo

The NIH is the only institution with the resources to save ME/CFS patients from decades of crushing chronic illness. And yet that very same NIH has never skipped an opportunity to profoundly fail those with ME/CFS. 1/4