Considering #LongCOVID (and ME) to be an immune-modulated traumatic brain injury akin to a concussion: a thread of papers. 1/

No one consents to being disabled. We don’t choose it. It chooses us. We aren’t asked how we feel about it. Whether we can afford it or if we have family to care for us. It just happens. It’s not a moral failing, you can’t “try harder” your way out of it.

#TakingThePIP

Once again Labour MP's who don't bother to research how benefits work are about to be duped with 'we will give PIP claimants time to get other benefits - there ARE NO OTHER BENEFITS. The idea is to totally take away the only benefit for disabled people & that is a very sick move.

Can anyone tell me how previous Covid-19 infection, and possibly persistent SARS-CoV-2 virus in the body, affects donated blood? bbc.co.uk/news/articles/…

Now they've cancelled taking £300 from pensioners on £35,000, perhaps they can cancel taking £8,000–£10,000 from chronically ill and disabled people with incomes of around £15,000. #takingthepip

Article in The Atlantic by Ed Yong | "Fatigue Can Shatter a Person" "Everyday tiredness is nothing like the depleting symptom that people with long COVID and ME/CFS experience.” Read here 👉 ow.ly/QpLh50W6hGL

Many of us have noticed that there is a huge disconnect between Covid public health messaging and what the science is actually telling us. A growing number of research papers show the harmful effects of the virus, yet this is not part of the public discourse. 1/10

I've written a new blog for Linda Hughes.uk about rest - something I feel deeply about. I talk about how, as an athlete, rest was respected - a sign of discipline and strength. But living with ME/Long Covid, rest became something judged and misunderstood. Link in next tweet👇🏻

According to the latest reports, people who will lose PIP as a result of the planned cuts will be given time to 'transition to other benefits and other forms of support'. My big question is, such as what? PIP/DLA is literally the gateway to EVERYTHING else. (Or at least that's

“We don’t need a consultation because it’s going through Parliament — but Parliament can’t wait, so we’re skipping consultation. And without consultation, Parliament can’t properly scrutinise it.” Criminally irresponsible to vote without impact assessment tinyurl.com/4ub2hva3

my sister found out that C# notes vibrate on the same frequency that bumblebees use to pollinate certain flowers so she in the garden playin violin for the tomatoes

Excellent! Welcome to our new normal where we have dedicated TV slots on how to manage brain fog (caused by inflammation in the brain) which apparently is normal and can happen to anyone.

I can't get over how biologically absurd it is to talk about "Omicron" as though they'll only marginally different from each other. It's usually in the context of minimizing concern. Imagine if you were bitten by something and the response was "Don't worry it was just an insect".

Hey — if you developed #LongCovid this year in 2025 or last year 2024 — and want to talk to the media about your experience, can you comment below or dm me. Trying to direct journalists to cover more recent cases !

FOR YEARS, media has ONLY been interviewing LongCovid patients who got sick in 2020-2021 in order to create the illusion it’s no longer occurring. It’s manipulative & disingenuous. I feel so sorry for the newly maimed because they’re ignored even harder than we were.

THANK YOU. Just because we don't have "official" treatments doesn't mean that ME & Long Covid aren't well-studied with well-known pathologies 🔥🔥🔥 I'm so sick of the "very mystery, no knowledge, therefore we won't bother" attitude from non-experts in these fields

Wanted to put forward a thread about #PEM since there have been some new developments and also because I just need to get some of this out of my head and work through it. Folks with infection- and exposure-associated chronic illnesses (IACIs) like #LongCOVID, #MECFS, 1/

🚨 A must read for all #LongCOVIDAHPs If you are a HCP working with #PwLC #PwME #IACI please read 🚨 Thank you Putrino Lab #PEM #PESE #PENE

A good day to note that people with certain chronic illnesses, many of which are downplayed and psychologised, are banned from donating blood. These include Long COVID and ME/CFS.