Today is #RareDiseaseDay. Did you know that motor neurone disease is considered a rare condition? We estimate that a person's lifetime risk of developing MND is around 1 in 300. Please share our info-graphic to help us make more people aware! #MND

We will be Dartford FC later today with our buckets collecting much needed funds to help local people with MND and help find a cure for #MND It is rare disease day so hopefully it will be a bumper collection MND Association

So here we are collecting for MND Association at the grounds of Dartford FC today they are playing league leaders Wealdstone FC good luck to both teams

Here we are at our annual quiz. Mark Gately is quizmaster and doing a questionable job!

Just in case you have not received notification our AGM scheduled for Saturday 21st March has been postponed. Our Association Visitors remain in touch with our PwMND but at present there will be no face to face visits.

The MND Association has put together useful #COVID19 information for people with #ALS #MND. It will be regularly updated. If you have any other questions not covered already please reply to this tweet and we will do our best to add the answer to the next update. mndassociation.org/mnd-and-corona…

Out on trike yesterday. No I have not raided my wife’s Bay City Roller memorabilia! I am supporting #doddieaid for #mnd #als - #teamsouth. Great end to My Name'5 Doddie Foundation Fundraiser #United2EndMND - over £1m in January/Feb - Amazing! Thanks all involved. Congrats scotland Scottish Rugby

Steve Barclay Justin Tomlinson Lack of announcement on review of access to benefits for terminally ill has become a serious embarrassment for GOV.UK 19 months after announcement of @dwppressoffice review. Please expedite ASAP to reassure MotorNeuroneDisease Marie Curie Policy & Public Affairs MND Campaigns

Dan Carty MND Association MND Assoc VIP & Events Team MND Association - Manchester & District Branch MNDA Merseyside MotorNeuroneDisease Steve Barclay Justin Tomlinson Jessica Morden MP Marie Rimmer MP Thérèse Coffey James Cleverly🇬🇧 Justin Tomlinson Keir Starmer Lisa Nandy MP Jacob Rees-Mogg

"Research is the key to finding the cure for this awful terminal disease & £50m would help bring the day nearer when that happens" #United2EndMND Chair of @MNDAWirral, Debbie Williams, on why today's #MNDResearchDebate is so important🧬 Read more here👇🏿 wirralglobe.co.uk/news/19430954.…

Martyn Day SNP Helen Whately MP Department of Health and Social Care My Name'5 Doddie Foundation MND Association National Institute for Health and Care Research Brain Research UK APPG on Motor Neurone Disease Opening our #MNDResearchDebate, Martyn Day SNP has set out how this "all too common" disease affects people across the UK. He backed petitioners' calls for a virtual #MND Translational Research Institute to be established, and for additional research funding.

Hoping Helen Whately MP sticks to her promise to meet with My Name'5 Doddie Foundation MND Association MND Scotland to further the funding of research into #MND MND Campaigns

We're pleased to hear Helen Whately MP state that a strong case for increased investment in #MND research has been made at today’s #MNDResearchDebate. 🔬 We look forward to meeting the Minister to discuss our Spending Review bid with MND Scotland & My Name'5 Doddie Foundation. 👩🏾‍🔬

🙌🏿A huge thanks to Martyn Day SNP, John Lamont MP 🇬🇧🏴󠁧󠁢󠁳󠁣󠁴󠁿, @tony4rochdale, Baroness Keeley of Worsley (also on BlueSky), @SteveBakerHW, 💙Rachael Maskell MP, Sir David Amess MP, lan Byrne MP, Christine Jardine 🔶, John McDonnell, @AnumQaisarJaved & Liz Kendall for taking part in today's #MNDResearchDebate Together we are #United2EndMND 💪🏽

Well done Greg Broadhurst MummywithMND David Setters clearly your campaigning has struck a cord with MPs and for your individual mentions in todays debate and response from Helen Whately MP into #mnd research My Name'5 Doddie Foundation MND Campaigns MND Scotland keep up the great work everyone

Today, let's make sure at least one more person knows about motor neurone disease and its impact. Hit that retweet button 🧡 thank you! #MND

Saturday 15th October 2022 - We are holding a Getting Back Together Event, presenting our Impact Report and there will be a speaker presenting on the latest developments in research. Contact us should you wish to attend. 1pm-4pm.

This is such a big event being organised by the Kent branches. We understand tickets are still available but be quick! #mnda MNDA-EastKent Mid Kent Branch MNDA MND Association Rochester Cathedral David Setters

We are holding a getting back together event where our Impact Report will be shared and Charlotte Ray, Research Co-ordinator of the MNDA will provide a talk on the latest developments in research. Contact [email protected] for further details #MND MND Association Mid Kent Branch MNDA

After a two year wait the Branch is Getting Back Together today. We are at the Westwood Masonic Centre in Bellegrove Road Welling from 1pm where we shall hear from Charlotte Ray a research coordinator from MND Association do come along. Nibbles and drinks follow.