Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile
Lesley Lykins, CCXP

@lyfsgr8

Navy Veteran, Mother and Wife, with a love of Customer Experience and the people that make great experiences happen.

ID: 22775866

linkhttp://lesleylykins.com calendar_today04-03-2009 14:08:21

1,1K Tweet

876 Followers

811 Following

Defense of Ukraine (@defenceu) 's Twitter Profile Photo

First official footage of HIMARS 🔥🔥🔥 at battlefields in Ukraine! These weapons are in the good hands, dear Americans! To be continued. Video by the Commander-in-Chief of the #UAarmy General Valerii Zaluzhnyy.

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Hundreds of advocates from the cystic fibrosis community are in Washington, D.C. today to ask their members of Congress to take action on two critically important issues for people with CF! Share your support by reposting this to help spread the word. #CFAdvocacy

Hundreds of advocates from the cystic fibrosis community are in Washington, D.C. today to ask their members of Congress to take action on two critically important issues for people with CF! Share your support by reposting this to help spread the word. #CFAdvocacy
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

Very excited for our opportunity to speak with our Congressional Representatives today regarding #CysticFibrosis 💙💛 #CFAdvocacy Thank you Cystic Fibrosis Foundation for coordinating this day!

Very excited for our opportunity to speak with our Congressional Representatives today regarding #CysticFibrosis 💙💛 #CFAdvocacy Thank you   <a href="/CF_Foundation/">Cystic Fibrosis Foundation</a> for coordinating this day!
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

Thank you to Rep. Emilia Strong Sykes and her staff for discussing #CysticFibrosis with us today. Your staff was so incredible. Thank you for listening to Cohen’s story. #CFAdvocacy #DuckyGoestotheHill

Thank you to <a href="/RepEmiliaSykes/">Rep. Emilia Strong Sykes</a> and her staff for discussing #CysticFibrosis with us today. Your staff was so incredible. Thank you for listening to Cohen’s story. #CFAdvocacy #DuckyGoestotheHill
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

Thank you Senator Vance Press Office for the time today to share our stories. Ohio has a uniquely large population of people living with #CysticFibrosis as well as some of the TOP CF Care Centers in the nation. We are grateful for your time today! #cfadvocacy

Thank you <a href="/SenVancePress/">Senator Vance Press Office</a> for the time today to share our stories. Ohio has a uniquely large population of people living with #CysticFibrosis as well as some of the TOP CF Care Centers in the nation. We are grateful for your time today! #cfadvocacy
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

What a day on the Hill!! #CysticFibrosis parents from Northern Ohio joined 300 other CF advocates for #CFAdvocacy today. 💙💛

What a day on the Hill!! #CysticFibrosis parents from Northern Ohio joined 300 other CF advocates for #CFAdvocacy today. 💙💛
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

It is important that people with Cystic Fibrosis remain apart to prevent spreading bacteria that could result in awful infections. When Cystic Fibrosis Foundation hosts events only one person with CF can attend in person. Cohen sent his “ducky” to represent and boy did Ducky advocate.

It is important that people with Cystic Fibrosis remain apart to prevent spreading  bacteria that could result in awful infections. When <a href="/CF_Foundation/">Cystic Fibrosis Foundation</a> hosts events only one person with CF can attend in person. Cohen sent his “ducky” to represent and boy did Ducky advocate.
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

Thank you so much to the team at Sherrod Brown office. Big shout out to Diop for listening to us share our stories and thanking us for being willing to vulnerably share them to our representatives. What a beautiful and heartfelt meeting to end our day 💙#CFAdvocacy

Thank you so much to the team at <a href="/SenSherrodBrown/">Sherrod Brown</a> office. Big shout out to Diop for listening to us share our stories and thanking us for being willing to vulnerably share them to our representatives. What a beautiful and heartfelt meeting to end our day 💙#CFAdvocacy
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

So much development has occurred since our son Cohen was born 12 years ago with Cystic Fibrosis. The idea of sitting through a Cystic Fibrosis Foundation session today to talk about the differences between gene editing & gene therapy is surreal. Truly HOPE in action. #CFFVLC

So much development has occurred since our son Cohen was born 12 years ago with Cystic Fibrosis. The idea of sitting through a <a href="/CF_Foundation/">Cystic Fibrosis Foundation</a> session today to talk about the differences between gene editing &amp; gene therapy is surreal. Truly HOPE in action. #CFFVLC
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

From the start of our son’s journey w/ #CysticFibrosis we have benefited from the incredible care principles Cystic Fibrosis Foundation established. He has received care at 3 care centers across the U.S. and another in Germany - the care principles have directly impacted his health. #CFFVLC

From the start of our son’s journey w/ #CysticFibrosis we have benefited from the incredible care principles <a href="/CF_Foundation/">Cystic Fibrosis Foundation</a> established. He has received care at 3 care centers across the U.S. and another in Germany - the care principles have directly impacted his health. #CFFVLC
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

“You can’t have CF & not have insurance.” - Shelby Luebbert, adult w/ #CysticFibrosis adult panel #CFFVLC Stories from each person & family that strives, sacrifices & risks health to maintain essential medical care emphasizes hurdles & society standards that have to be overcome.

“You can’t have CF &amp; not have insurance.” - Shelby Luebbert, adult w/ #CysticFibrosis adult panel #CFFVLC  Stories from each person &amp; family that strives, sacrifices &amp; risks health to maintain essential medical care emphasizes hurdles &amp; society standards that have to be overcome.
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

We are a community that refuses to give up on a cure. 💙💛 “Breath From Salt” author Bijal Trivedi receives the Jena Award from Margarete Cassalina #cysticfibrosis #cffvlc

Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

Love. Love. Love these Veterans Day dinners. Thank you Texas Roadhouse for feeding us 😋 your staff was awesome and everyone was so gracious. #VeteransDay

Love. Love. Love these Veterans Day dinners. Thank you <a href="/texasroadhouse/">Texas Roadhouse</a> for feeding us 😋 your staff was awesome and everyone was so gracious. #VeteransDay
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

.Rep. Emilia Strong Sykes Bernie Moreno, as a constituent and someone personally affected by #cysticfibrosis, I’m calling on Congress to oppose Medicaid cuts that could threaten patient access for CF patients. #CFAdvocacy

.<a href="/RepEmiliaSykes/">Rep. Emilia Strong Sykes</a> <a href="/berniemoreno/">Bernie Moreno</a>, as a constituent and someone personally affected by #cysticfibrosis, I’m calling on Congress to oppose Medicaid cuts that could threaten patient access for CF patients. #CFAdvocacy
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

Cohen is speaking with Rep. Emilia Strong Sykes staff about the lifesaving medication for #CysticFibrosis and the importance of #Medicaid and access to this life altering care. #cfftad #teenadvocacy

Cohen is speaking with <a href="/RepEmiliaSykes/">Rep. Emilia Strong Sykes</a> staff about the lifesaving medication for #CysticFibrosis and the importance of #Medicaid and access to this life altering care. #cfftad #teenadvocacy
Lesley Lykins, CCXP (@lyfsgr8) 's Twitter Profile Photo

A big thank you to the team at Rep. Emilia Strong Sykes for meeting with Cohen (age 13) today during the Cystic Fibrosis Foundation Teen Advocacy Day. Cohen said “they were extremely nice” 😊 #CFAdvocacy

A big thank you to the team at <a href="/RepEmiliaSykes/">Rep. Emilia Strong Sykes</a>  for meeting with Cohen (age 13) today during the <a href="/CF_Foundation/">Cystic Fibrosis Foundation</a>  Teen Advocacy Day. Cohen said “they were extremely nice” 😊 #CFAdvocacy