Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile
Diary of a Cyborg

@diaryofacyborg

Diary of a Cyborg tells the story of what life is like for patients under the age of 25 living with an Internal Defibrillator & Sudden Cardiac Death.

ID: 265749239

linkhttp://diaryofacyborg.com/ calendar_today14-03-2011 02:48:34

194 Tweet

60 Followers

110 Following

UPROXX (@uproxx) 's Twitter Profile Photo
UPROXX
@uproxx

10 years ago

MARK A. MANGINI (Mark Mangini) & DAVID WHITE win Best Sound Editing for MAD MAX: FURIOSA 🎚🎛 #MadMax #Oscars

MPN Research Foundation (@mpn_rf) 's Twitter Profile Photo
MPN Research Foundation
@mpn_rf

10 years ago

This #RareDiseaseDay, we are with you in the fight. Together, we can make a difference and find a cure.

British Heart Foundation (@thebhf) 's Twitter Profile Photo
British Heart Foundation
@thebhf

10 years ago

Social media meets clinical trial as Leicester BRU researchers launch pioneering new #SCAD study: bit.ly/1ScoJ0g #RareDiseaseDay

Insider Tech (@techinsider) 's Twitter Profile Photo
Insider Tech
@techinsider

10 years ago

We can't stop listening to that montage of movie sounds they played at the Oscars read.bi/21DQAsS

We can't stop listening to that montage of movie sounds they played at the Oscars read.bi/21DQAsS
Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

Models of the 2 devices I've had implanted #cyborg #lqt #longqtsyndrome instagram.com/p/BD_v2dunOmh/

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

Droppin' some sweet beats #echo #echocardiogram #channelopathy

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

#tbt to a time when I was blonde and at the #MayoClinic #stresstest instagram.com/p/BEwLk6mHOnS/

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

Spotted at #BWI #CPRSavesLives #CPR #CPRtraining #HandsonlyCPR instagram.com/p/BJRYAQBjmcu/

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

Sometimes I can show off, most of the time I'm in #chronicpain. September is Chronic Pain… instagram.com/p/BJ_IXTaDA1l/

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

#chronicpain #ehlersdanlossyndrome #ehlers #zebra #hypermobility #hypermobile #documentary… instagram.com/p/BKHJZGKDnRa/

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

#repost @photographygod's photo of my bruised knees and pasty legs. #chronicpain… instagram.com/p/BKq9WQoD4we/

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

9 years ago

#invisibleillness I may look perfectly normal on the outside, but my #X-rays have some serious… instagram.com/p/BK7N083jord/

Dave deBronkart (@epatientdave) 's Twitter Profile Photo
Dave deBronkart
@epatientdave

8 years ago

BIG news. FDA confirms they do NOT prohibit (as some had claimed) giving patients their device data! HugoOC slays the dragon! x.com/healthythinker…

Diary of a Cyborg (@diaryofacyborg) 's Twitter Profile Photo
Diary of a Cyborg
@diaryofacyborg

8 years ago

One of those apps that gives rebates for shtuff. I got $25 back around xmas from this. ibotta.com/r/cvafkwx

Medscape (@medscape) 's Twitter Profile Photo
Medscape
@medscape

8 years ago

#Burnout is a system problem not a physician problem: ms.spr.ly/6019rL9xN

Sharon Rose Nissley (@rose_of_sharon8) 's Twitter Profile Photo
Sharon Rose Nissley
@rose_of_sharon8

8 years ago

Rare Disease Day is Wed! Klippel-Feil, Ehlers-Danlos, Vasculitis, Cervical Dystonia. As a patient I won't back down. Klippel-Feil Syndrome Freedom The Ehlers-Danlos Society Dystonia Medical Research Foundation Vasculitis Foundation @CSFinfo Rare Support (RS) SanfordCoRDS Michael Briggs 🔬🏏🎸🐝🦔🍺🌱 EURORDIS-Rare Diseases Europe Rare Disease Day NIH Pain Research @ORDR Patient Worthy

Rare Disease Day is Wed! Klippel-Feil, Ehlers-Danlos, Vasculitis, Cervical Dystonia. As a patient I won't back down. <a href="/KFS_Freedom/">Klippel-Feil Syndrome Freedom</a> <a href="/TheEDSociety/">The Ehlers-Danlos Society</a> <a href="/dmrf/">Dystonia Medical Research Foundation</a> <a href="/VasculitisFound/">Vasculitis Foundation</a> @CSFinfo <a href="/Raresupport/">Rare Support (RS)</a> <a href="/SanfordCoRDS/">SanfordCoRDS</a> <a href="/MD_Briggs/">Michael Briggs 🔬🏏🎸🐝🦔🍺🌱</a> <a href="/eurordis/">EURORDIS-Rare Diseases Europe</a> <a href="/rarediseaseday/">Rare Disease Day</a> <a href="/NIHPainResearch/">NIH Pain Research</a> @ORDR <a href="/PatientWorthy/">Patient Worthy</a>
Borg Fest (@borgfest) 's Twitter Profile Photo
Borg Fest
@borgfest

8 years ago

Happy #CyborgPride Day! @jamesahyoung Nigel Ackland Angel Giuffria 🦾 Neil Harbisson Moon Ribas VIKTORIA MODESTA @luberachi Luke Robert Mason Stelarc Ramez Naam Unconventional Liquidity Path Jon Lebkowsky EFF-Austin (@[email protected]) BDYHAX VIKTORIA MODESTA #SXSW2018 effaustin.org/cyborg-pride-p…

Happy #CyborgPride Day! @jamesahyoung <a href="/NigelAckland/">Nigel Ackland</a> <a href="/aannggeellll/">Angel Giuffria 🦾</a> <a href="/NeilHarbisson/">Neil Harbisson</a> <a href="/moonribas/">Moon Ribas</a> <a href="/VIKTORIAMODESTA/">VIKTORIA MODESTA</a> @luberachi <a href="/LukeRobertMason/">Luke Robert Mason</a> <a href="/StelarcStelarc/">Stelarc</a> <a href="/ramez/">Ramez Naam</a> <a href="/bruces/">Unconventional Liquidity Path</a> <a href="/jonl/">Jon Lebkowsky</a> <a href="/EFFaustin/">EFF-Austin (@effaustin@mastodon.social)</a> <a href="/BDYHAX/">BDYHAX</a> <a href="/VIKTORIAMODESTA/">VIKTORIA MODESTA</a> #SXSW2018 effaustin.org/cyborg-pride-p…
Ehlers-Danlos Support UK (@ehlersdanlosuk) 's Twitter Profile Photo
Ehlers-Danlos Support UK
@ehlersdanlosuk

7 years ago

We need help to raise awareness of the reality of living with the Ehlers-Danlos syndromes. We need your stories, experiences, quotes and photos to help us make an impact this May Awareness Month. What do you wish people knew about life with EDS? What is a day with EDS like?

We need help to raise awareness of the reality of living with the Ehlers-Danlos syndromes. We need your stories, experiences, quotes and photos to help us make an impact this May Awareness Month. What do you wish people knew about life with EDS? What is a day with EDS like?
Ehlers-Danlos Support UK (@ehlersdanlosuk) 's Twitter Profile Photo
Ehlers-Danlos Support UK
@ehlersdanlosuk

7 years ago

May is EDS Awareness Month. We run a freephone helpline for support, local support groups run by amazing volunteers often with speakers on managing EDS, and membership is free at ehlers-danlos.org We have many videos and resources on management strategies. We’re here ❤️🦓

May is EDS Awareness Month. We run a freephone helpline for support, local support groups run by amazing volunteers often with speakers on managing EDS, and membership is free at ehlers-danlos.org We have many videos and resources on management strategies. We’re here ❤️🦓