BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile
BEAT-PCD (ERS CRC)

@beatpcd

@EuroRespSoc Clinical Research Collaboration - Multidisciplinary network coordinating research & improving clinical care of Primary Ciliary Dyskinesia (PCD)

ID: 3534121757

linkhttp://www.beat-pcd.squarespace.com calendar_today03-09-2015 12:55:36

2,2K Tweet

755 Followers

190 Following

Lena Group Respiratory Hub 🫁 (@lena_group4resp) 's Twitter Profile Photo

#EBROW25 šŸ“Š The stats are in! Thank you to everyone who contributed to this year's success. Looking ahead, we're excited to announce that the next European Bronchiectasis Workshop will take place in 2027! Stay tuned and save the hashtag: #EBROW27

#EBROW25
šŸ“Š The stats are in! Thank you to everyone who contributed to this year's success.
Looking ahead, we're excited to announce that the next European Bronchiectasis Workshop will take place in 2027!
Stay tuned and save the hashtag: #EBROW27
Mathieu Bottier, PhD (@mathieu_bottier) 's Twitter Profile Photo

Excited to receive a fellowship from Medical Research Foundation to develop AI tools for diagnosing primary ciliary dyskinesia using microscopy images! Grateful for the support - can’t wait to keep pushing the boundaries of tech in respiratory medicine. BEAT-PCD (ERS CRC)

Excited to receive a fellowship from <a href="/MedResFdn/">Medical Research Foundation</a> to develop AI tools for diagnosing primary ciliary dyskinesia using microscopy images! Grateful for the support - can’t wait to keep pushing the boundaries of tech in respiratory medicine. <a href="/beatpcd/">BEAT-PCD (ERS CRC)</a>
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

To celebrate World Bronchiectasis Day 2025, EMBARC and the European Lung Foundation are hosting another Bronchiectasis Question Time event - a free 1-hour Q&A webinar aimed at patients, their families and caregivers. europeanlung.org/en/get-involve…

To celebrate World Bronchiectasis Day 2025, <a href="/EMBARCnetwork/">EMBARC</a>  and the <a href="/EuropeanLung/">European Lung Foundation</a>  are hosting another Bronchiectasis Question Time event - a free 1-hour Q&amp;A webinar aimed at patients, their families and caregivers.
europeanlung.org/en/get-involve…
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

We are pleased to announce the publication of a new article exploring the fertility experiences of people with Primary Ciliary Dyskinesia (PCD) and their family caregivers: ā€˜Nobody Has Ever Spoken to Me About PCD and Fertility Issues’: onlinelibrary.wiley.com/doi/10.1111/he… ISPM Bern Myrona Goutaki

Myrona Goutaki (@mgoutaki) 's Twitter Profile Photo

You may find lay summaries of this and all our publications on the Living with PCD study website in English, French, German, Spanish, and Italian pcd.ispm.ch/en/publication…

James D Chalmers (@profjdchalmers) 's Twitter Profile Photo

Join me on tuesday for a webinar on the ERS Respiratory Channel! Science Communication including - Writing a paper for publication - High-quality oral or poster presentation - Promoting your research channel.ersnet.org/media-114048-t…

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

We’re pleased to announce the launch of the BEAT-PCD LinkedIn page. Follow us for updates on collaborative research, diagnostics, and clinical advances in Primary Ciliary Dyskinesia (PCD). linkedin.com/company/beatpcd

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

Only two months remain until the annual PCD research conference takes place in Amsterdam on September 26th. You can now sign up on our website at beat-pcd.squarespace.com/events/2025/9/… The agenda will be available soon, and you can look forward to an impressive lineup of speakers and topics.

BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

In collaboration with European Lung Foundation , EMBARC is launching a multilingual survey to explore real-life experiences of people with bronchiectasis focusing on often overlooked areas of care. Available in 8 languages. Get involved & repost! europeanlung.org/en/get-involve…

American Thoracic Society (ATS) (@atscommunity) 's Twitter Profile Photo

Tomorrow, July 1, is World Bronchiectasis Day! This day would not have been possible without the work of a global planning committee comprised of patient advocates, representatives from collaborating patient advocacy organizations and professional societies, and other leading

Tomorrow, July 1, is World Bronchiectasis Day! This day would not have been possible without the work of a global planning committee comprised of patient advocates, representatives from collaborating patient advocacy organizations and professional societies, and other leading
ERS (@eurorespsoc) 's Twitter Profile Photo

There is still time to join the European Lung Foundation’s #WorldBronchiectasisDay Question Time this afternoon! This free webinar welcomes both clinicians and patients to attend🫁 Learn more and register: bit.ly/4nGL5tM

There is still time to join the <a href="/EuropeanLung/">European Lung Foundation</a>’s #WorldBronchiectasisDay Question Time this afternoon! This free webinar welcomes both clinicians and patients to attend🫁 

Learn more and register: bit.ly/4nGL5tM
LifeArc (@lifearc1) 's Twitter Profile Photo

šŸŒ Today on #WorldBronchiectasisDay, join us in raising awareness about this chronic lung condition affecting over 200,000 people in the UK. Learn more about the condition through Charlotte's story. #BronchiectasisAwareness

Lena Group Respiratory Hub 🫁 (@lena_group4resp) 's Twitter Profile Photo

What to expect from #PCDAmsterdam2025? • Stay up to date on PCD research & therapies • Get involved in ongoing projects • Discuss challenging diagnostic cases …and many more. Don’t miss out—secure your spot today. REGISTER NOW!šŸ‘‰lena.events/2025/beat-pcd/

What to expect from #PCDAmsterdam2025?

• Stay up to date on PCD research &amp; therapies
• Get involved in ongoing projects
• Discuss challenging diagnostic cases
…and many more.

Don’t miss out—secure your spot today.

REGISTER NOW!šŸ‘‰lena.events/2025/beat-pcd/
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

The preliminary agenda for the PCD Annual Meeting 2025 is now live on our website: beat-pcd.squarespace.com/events/2025/9/… #PCD2025 : beat-pcd.squarespace.com/events/2025/9/… #PCD2025 Lena Group Respiratory Hub 🫁

The preliminary agenda for the PCD Annual Meeting 2025 is now live on our website: beat-pcd.squarespace.com/events/2025/9/… #PCD2025 : beat-pcd.squarespace.com/events/2025/9/… #PCD2025 <a href="/Lena_Group4Resp/">Lena Group Respiratory Hub 🫁</a>
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

In recognition of PCD Awareness Month, BEAT-PCD and PCD Support UK will host a webinar on patient collaboration in PCD research. Watch for registration details soon, and mark your planner. More info is available on our website: beat-pcd.squarespace.com/events/2025/10…

James D Chalmers (@profjdchalmers) 's Twitter Profile Photo

We did it! The first approved medication for bronchiectasis Brensocatib approved by the FDA in the United States. A great day for patients and the scientific community that made this happen. Thank you Insmed, all investigators and participants multivu.com/insmed/9347351…

We did it! The first approved medication for bronchiectasis
Brensocatib approved by the FDA in the United States. A great day for patients and the scientific community that made this happen. Thank you Insmed, all investigators and participants
multivu.com/insmed/9347351…
BEAT-PCD (ERS CRC) (@beatpcd) 's Twitter Profile Photo

You can now sign up for our event focused on Collaborations with Patients in PCD Research, co-organized by Lucy Dixon and Myrona Goutaki. The event will take place on October 8th at 4 PM (CET). Visit our website to register: beat-pcd.squarespace.com/events/2025/10….