What is EDS? Need a good basic primer for your friends, family or doctors? We've got you covered: buff.ly/yK761Xt #EhlersDanlosSyndrome #EDS #hEDS #Hypermobility #HSD #NEISvoid #Disability #zebras #Medicine #Doctors #Nurses #MedEd #MedX

In which we take a deeper dive into autism and EDS and HSD in particular: buff.ly/2oMsIUs #EDS #hEDS #HSD #Hypermobility #autism #autistic #Neurodivergence #ASD #NEISvoid #Disability #zebras #MedTwitter #MedEd

Disabled people are not expendable. The elderly are not expendable. Children are not expendable. We must stop assessing worth based on perceived economic contributions. No one should have to prove they “matter” to get basic healthcare, housing, food or education.

🙏🏿Please can you help our voluntary charity by simply putting SEDSConnective 1199724 . The vote closes on Sunday 27th July! or follow this link tinyurl.com/4nvy5bdd 🙂

Alright you guys, it's taken me eight months, but I've finally launched a bouncing baby (itty bitty) business to try to stay housed myself. If you have any gardening friends, please pass my site along, thanks. My cards make great gifts. And I'm just barely getting started thx.

Oops, here is the link: photograbee.com Or follow my alter: Photograbee ❤️💐🐝📷 for more. #bees #flowers #ohotography I'm sort of officially launching Friday August 1st. But would love to make my first organic sale! (US only for now, sorry. 😞) TY! #cards #gifts

Pleased to share both of these card sets have sold already, yay! I'm off to a great start. I'm also gonna attempt to do a street fair today, first time in over 13 years since hit with my #hEDS onset cascade. Thanks for your patience and support as I reboot. #art #photography

I'm not abandoning my health education work and advocacy, but I'm almost homeless and sinking daily, so I needed to find another income stream to help stay housed. ✌️ #EDS

August is #Gastroparesis awareness month! #GP Gastro means stomach, Paresis means weakened muscle. Do you know about this or have these symptoms? 'Have you ever wondered about the symptoms of GP? They can definitely vary! Some people have mild symptoms that can be easily

We're making sure our members' voice is heard! Our Chief Executive Susan Booth has announced an important #EnoughisEnough campaign update. Read all about it! ehlers-danlos.org/news/important… #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #InvisibleVisible

These guys can really use a boost. Many writers and the editor are volunteering still. #EDS #HSD #hEDS

📢Thrilled to announce our new advisor, Michael Dare, consultant physiotherapist in rheumatology and currently studying a 🦓 PhD in #hEDS (hypermobilityEhlers-Danlos Syndrome). We're excited to have him on board 🦓 #Hypermobility #EhlersDanlosSyndrome #Rheumatology

Some back-to-school tips and resources for parents of young #zebras, autistic or not: ohtwist.com/school-and-eds #EDS #hEDS #HSD #Hypermobility #POTS #MCAS #NEISvoid #Spoonies #Parents #School #autism #ADHD

Third. the inter-relationship of connective tissue & mast cells may lead people with #EDS or hypermobility spectrum disorder to be vulnerable to mast cell activation disorders, which can in turn prompt both #POTS & conditions like #LongCOVID and #MECFS. 8/ link.springer.com/article/10.100…

The MANY co-occurring conditions found in hypermobile & Ehlers-Danlos patients: ohtwist.com/about-eds/como… #EDS #HMS #fibromyalgia #medicine #MedEd #FOAMed #MedTwitter #Doctors #Nurses #hypermobility #POTS #MCAD #NEISvoid

It’s #TrusteesWeek! 💙 We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective. A huge thank you to Kelly Harris one of our incredible trustees who also helps to run our free monthly support meetings in Brighton

Making Misdiagnosis and Misunderstanding a Thing of the Past - CPPs impact on the #EDS community over the last twelve years… buff.ly/3WvdAzt #EhlersDanlosSyndrome #hEDS #HSD #Hypermobility #CPP #ChronicIllness #NEISvoid #MedEd #MedTwitter #Zebras #Support

If someone lived in your body for half a day, they’d stop asking why you’re tired. They’d stop questioning your pain. They’d stop assuming you’re “doing too little.” People make a lot of assumptions on appearance. Hypermobility means your body relies more on muscular effort

My list of some recommended books on #EhlersDanlos Syndromes & #Hypermobility: ohtwist.com/eds-resources/… #EDS #HSD #fibromyalgia #MedEd #doctors #nurses #patients #medicine #EhlersDanlos #SED #NEISvoid #MedX #Zebras

I can't believe how many doctors and nurses told me over so many years that my pain was coming from my stupid brain confusing pain with the memory of pain, or otherwise exaggerating small pain into big pain, or mistaking non pain for pain. Now it's better not because I got