Emily Johnson (is on Mastadon and Bsky)
@emily_rj
Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
ID: 184959283
http://ko-fi.com/emily_rj 30-08-2010 22:26:47
70,70K Tweet
7,7K Followers
6,6K Following
Cory Doctorow NONCONSENSUAL BLUE TICK
@doctorow
Author/activist/journalist. New book: PICKS AND SHOVELS, a Marty Hench adventure from the dawn of enshittification: martinhench.com @[email protected]
I would prefer not to
@thequeengeek
Disability self-advocate, PTA mom, political strategist, Minnesotan(ish), collector of cats. | I cry a lot but I am so productive. It’s an art (TS). she/her
Peter 🟩
@mepeternicholls
Musician, composer, videographer, PGCE. Actor. Disabled - ME/CFS & fibromyalgia. Unions: Equity, BECTU, MU. Socialist. 🏳️🌈 🎬 🎼 🎭 #Xdissenter
Kait 🏳️🌈 #ABAisAbuse #StopTheShock
@autistikait
Autistic + ADHD 🎧 Queer 🏳️🌈 Disabled 🥄 She/Her 🤵🏻♀️ Awkward misfit parent 🤷🏻♀️ hEDS 🦓 I talk about my dog a lot 🐶
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Morgan Stephens
@morganstephensa
reporter covering Dems, former White House @business, @dailykos, @cnn, poet TILT, @usc alum, Long Covid advocate, Bsky morganstephens.bsky.social
Prof Ros Gleadow FAA
@rosgleadow
#climatechange, plants that kill, #MECFS ally - views my own - #PlantSci #cyanide #WomeninSTEM Mostly reposting. New stuff on @rgleadow.bsky.social
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Mahnaz Dar
@dibblyfresh
Young readers' editor, @KirkusReviews Words in @FOXTV, @RetrofiedMag, @SLJournal, @LibraryJournal, & @ScreenSlate
Adam Feuerstein ✡️
@adamfeuerstein
Biotech reporter @statnews. Dog ❤️er. Polk Award winner. #COYS. Said one analyst: The likes of Adam Feuerstein attack viciously. On Signal: stataf.54
Zahra Khan (she/her) ♿️🦻🏼 زہرا خان
@hellozeik
Aerospace Engr. Alum: @NASAPersevere @NASA_TESS 🤖 🚗 Interests: patient-centric healthcare, antiwar in STEM. Cofounder @feministfitna blog @SmacksForehead
Jordan
@jordanchariton
Reporter @StatusCoup, Support ON-THE-GROUND justice journalism | Author: "We the Poisoned: Exposing the Flint Water Coverup", [email protected]
Joel Arnold
@joelkarnold
writer, podcast producer. fascinated with CATS (2019) on @ineffablecats. bylines @npr @vulture. they/them 🏳️⚧️
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Claire 🧠🔥 #pwME♿
@naylor007
ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Deborah Lundin
@fwcdeborah
Mom. Freelance Writer. Advocate for Disabilities and Chronic Diseases. #Sjogrens #EDS #MCAS #Dysautonomia #Chiari #LongCOVID #ChronicPain Warrior
Resia Pretorius
@resiapretorius
Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
David States MD PhD
@statesdj
Chief Science/Medical Officer Angstrom Bio, Austin, TX COI: Our company is developing high throughput diagnostics @statesdj on other platforms
Leona 🇵🇸
@leonaleecully
Writer | Digital Communications Manager | Fiction in @Stingingfly | #freepalestine🇵🇸 | She/Her
Ola Ojewumi
@olas_truth
Follow me on BlueSky olastruth.bsky.social
Tom Kindlon-IrishME
@irishmecfs
Focuses on Irish news on #MyalgicE/#ChronicFatigueSyndrome, #LongCovid or related (+ some personal news). #MEcfs #LC. Main (international) account: @TomKindlon
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Quinn 🏳️🌈♿🏳️⚧️
@queenthequinn
She/They. I'm chronically ill & proudly disabled! (vEDS, MCAS, POTS & friends...) Coach @HPRobotics & Musician/Media w/ Fort Snelling Fifes & Drums.
Meiners PT, PhD
@kellymmeiners
*Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Jensen McRae
@jensen_mcrae
one house down from the girl next door • wear a mask
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Dr. Markus Fraczek
@mareksjf
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ mecfs.de/was-ist-me • EN ‖ PL ‖ DE
Irish ME/CFS Association
@irishmecfsassoc
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
Jane
@minorescalation
severe (fusion-grade) CCI & AAI / Bow Hunter Syndrome & co /ADHD/ TBI / Trifecta / TOS / AGHD
Charis Hill | they/them | Free Palestine 🇵🇸
@beingcharisblog
Here for now. On other apps under the same or similar handle. Views are my own.
charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
collagen machine broke
@chronicallybeee
dyke | she/they | #FreePalestine
Nicole Lee Schroeder, PhD
@nicole_lee_sch
#Disabled and #FirstGen historian. Research on #DisHist, #HistMed, and #VastEarlyAmerica. Assistant Prof at Kean University. Tweets = my views alone
Candace D.
@diaryofasickgrl
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Bea is Chronically Persisting✨
@be_kinderr
Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Marky Mark
@mrkstdngr
#ME #CFS #CCI #POTS #MCAS
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
alpha
@omarsbigsister
omarsbigsister on tiktok if ur my tiktok oomf dm me bc i suck at finding ppl on here
Sarah Watson
@sarahkwatson11
Navigating life in America without privacy or a job. 🏳️🌈
Dr Nicola Boyd
@drnick4126
PhD computational chemist. Loves nature. Integrated, automatic public health for everyone. On substack - mattersofperspective.substack.com
Lee Altenberg, Ph.D. 🇺🇸
@altenberglee
Theoretical biologist researching evolution. Information & Computer Sciences/Mathematics/Ecology Evolution & Conservation Biology, U Hawai`i@Mānoa Herr/Prof/Dr
Juna
@elljuna
Tree-hugging socialist and devoted cat mom living the chronic life. #pwME ♿ #AuDHD #Neurodivergent 😷 up to save lives 💕 She/They
Kristina Osobka
@chronicallytina
Founder of the ROCK ME Project. Wife, Cat mom, Author, Advocate, and medical DUMPSTER FIRE. Living life one SPOON at a time. ME is a DISEASE not a LIFESTYLE!
F*ck Capitalism ✊🏼 🏳️🌈 ♿
@emmanuelmousse1
They/He | FSSWer | SA Survivor | Settler on Algonquin land | Zionists/Fascists, Rape apologists & Eugenicists will be blocked. @emmanuelmousse1 on BlueSky
Otto Kolbl
@ottokolbl
Researcher @unil on health issues (now #covid19), related media reporting; in 2020 German Interior Min. COVID-19 task force. #YallMasking
fhronesis
@fhronesis
#ME #EM😶🌫️🐚🐌 #KeepMasksInHealthcare Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
Khaled Shalaby
@kshalabynews
Head of Video Operations @middleeasteye || Media and PR MA @uniofleicester || Member of @NUJofficial, @CIoJournalist, @globalfreemedia, @spj_tweets, @IFJGlobal
Arthur
@unreal_arthur
ME Patient-ly Waiting for Biomedical Research #GreatestMEdicalScandal unrealarthur.bsky.social @unrealarthur.bsky.social
Starwomb ☽
@starwomb
♡ political slut ♡ chronically ill & disabled #insulin4all ♡ 🌈 18+ ♡ she/her ♡
babs
@halfateaspn
20s. disabled, queer and poc. ME/CFS+comorbidities. mostly bedbound. COVID conscious. everything sucks, so be kind 🇵🇸🏳️🌈🏳️⚧️
Jo
@cfs_jo
CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” Mostly on justjo@bskysocial
Philip Barber
@philipb61443132
I’m just a man who is sowing hope and praying for rain. (ME/CFS, Long Covid)
ChronicCareCompass
@chroniccompass1
Created by @Fwcdeborah, Chronic Care Compass offers tips and tools to make living with a #ChronicIllness a little easier. #EhlersDanlos #MECFS #Spoonie #POTS
BlkDisIn HigherEd
@blkdishighered
Organization striving to amplify the intersection of Blackness & Disability in higher education where both identities are respected without ableism & racism
Morgane Lunven
@morganelunven1
Syndrome de Ehlers Danlos, 📍Brest
Cristian Serious
@cristianserious
Sharing my personal journey of navigating life with Chronic Fatigue Syndrome, CCI/AAI, and TC. #cci #mcas #mecfs #mespine
Nathaniel Jenkins, PhD, FAHA
@njenkinsphd
Asst. Prof, @UIowaHHP | 🏋🏼♀️ Training, Nutrition, Early Life Adversity & ❤️/metabolic Health | Husband | Father | Isaiah 43:19 | Views=own
@OT_Skiff
@ot_skiff
Occupational Therapist (neurorehab) on pause due to #LongCOVID & #POTS (March 2020). @LongCovidPhysio AHP committee #FBLC
This is M.E. tweeting
@thisismetweety
Apparently I don’t like viruses. #MECFS as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility; #EDS #MCAS; #pwME; #ChronicPain.
LongCovidPodcast
@longcovidpod
Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
witness the sick Ness
@urgleyclark
she/ her. MIA Secondary SEND teacher. Volcanologist at heart. M.E, fibromyalgia, chronic migraine, POTS. #EndTheCladdingScandal #AntiRecoveryActivist
Daniella
@daniellamazzio
Culture Writer/Critic. Consultant, Recovering Comedian. Movies, Chicago, gardening, pollinators, disability, & leftism. Opinions are own. Viva Palestina.
Siobhan Robertson
@siobhan_rm
Deputy editor @EmpowordJournos | She/her
Empoword Journalism
@empowordjournos
We are an award-winning publication led by women that aims to unite and empower journalists across the globe. 📩: [email protected]
limbostate
@limbostate1
We’re in a limbo...half horse /zebra combo nice thoughts, exchanges . past FE TA home hub, cat, dragon. 2 kids EDS IBS IBD AuDHDy family exM.E.🧀🪴🦓🐢🐢
KeepingHope95
@keepinghope95
Disabled Advocate, Progressive Liberal, 💙🌈🏳️🌈🏳️⚧️ She/Her Exvangelical & Atheist #FBLC #EDS #LongCovid since 3/2020-pre-vaccine. #pwME ❌MAGA and ❌DM’