
Sjogrens_Speaks
@elisa_comer
I help patients w/chronic illness simplify the AdminSideofSick and unlock joy in their journey, with a touch of humor and a sprinkle of faith ♿️ ✝️ 🎹
ID: 547288546
http://sjogrensspeaks.org 07-04-2012 03:29:13
7,7K Tweet
1,1K Followers
896 Following

Dr. Drew
@drdrew
Board Certified Internist • Addiction Specialist • 𝐋𝐈𝐕𝐄 on @AskDrDrew • Teen Mom OG (MTV) • Health Uncensored (Lifetime) • @twc_health Board • @VShred_
Howard Luks MD
@hjluks
Orthopedic Surgeon, Author, Trail Runner, very amateur cyclist Exits x 3 co-founder: SimplaVida.com Book = Howardluksmd.com/book
Calley Means
@calleymeans
Every institution in healthcare profits when kids are sick and loses money when they’re healthy. Trying to change that incentive.
Kelly L.⭐⭐
@irishbrat1966

Cheryl Crow, Arthritis Life
@realcc
❤️ RA patient and OT helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast❤️ Rheum to THRIVE self management & support program.
Meghan O'Rourke meghanor.bsky.social
@meghanor
Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review.
Bob Kolock
@drbobsinsights
Retired physician exec. and strong advocate for voice in healthcare & healthcare for all! With 34 certified Alexa Skills! No DMs. Thankful for #BidenHarris!
Marcus Stanley
@pianist247
By the grace of God, I survived being shot 8 times. Miracles happen every day.
𝓒𝓲𝓷𝓭𝔂 💜
@mombto3
Mom to 3 young adults, happily married for 31 years #MCTD #ChronicLife
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Lene Andersen
@theseatedview
Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/her
Gloria G
@gwoodgm
Small town girl, IA born & raised. Catholic, Mom, GG, Sister to 7 Brothers, RN, Daughter of WWII Vet, Miss my Dad & Mom MAGA 🇺🇸
The Vigilant Fox 🦊
@vigilantfox
Founder of vigilantfox.com. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience.
Dr Mary Ann Wilmarth
@back2backpt
#BeKind #Empathy PtDrPtAdvocate #DPT #OA #PI #CVID #PsA #Sjogrens #Arthritis #Immune #Migraine #Colitis #Endo #Zebra IG: @Docmaw_co @SunSeekerMiMi3
Cynthia Covert, The Disabled Diva
@thedisableddiva
50+, chronically ill, & full of grace. Chronic life, accessibility, faith, and a side of sass.
Sonya Lowe
@sloweme
♿️ #healing from 17 years of #moldtoxicity and #environmentaltoxicity #BLM #antiracism daily
@dawnmgibson.bsky.social @spooniechat.bsky.social
@dawnmgibson
Founder of #SpoonieChat + #BlerdChat #Spondylitis #Arthritis #Caregiving linktr.ee/dawnmgibson …niechat-newsletter-053e89.beehiiv.com/subscribe
JennyStamps 🇺🇸🇮🇱✡️🌻#🟦
@stampwithjenny
Chicagoan living in Pittsburgh. Multiple sclerosis fighter. Stampin’ Up! demo since 2003. ✂️ #AnimalCaucus #CrouCrew
🩵🤍 Cheryl Leigh 💜🤎
@cherylleigh221
Human With More Questions Than Answers - Adam J. Harrington
Mette Dyhrberg
@metamette
Serial entrepreneur. Investor. Founder @mymeehealth Rethinking autoimmunity. Chairwoman @HealthtechhubC
yetAnotherName
@glostamassachu
Lung cancer advocate for those I've lost. Retired Ob-Gyn NP. MGH-IHP’91 Stigma fighter. Feminist for gun control. 🏳️🌈She/her.
Josh Robbins
@imstilljosh
#UequalsU @hiv 🫶#harmreduction #hiv #gay
Lori Singer Meyer
@loriss65
atty frmr prof grad student too much inside Beltway experience horses, dogs, cat, firebelly toads skiing, tennis before inj. comments mine, no org. affil.
Heidi Smith
@hiho1111heidi
Mother, Grandma, Wife. I love to play with my dogs, go camping, knit, crochet, sew and spend time with my family.
Princess, The Tower
@apainprincess
Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Anthony DiGiorgio, DO, MHA
@drdigiorgio
Neurosurgeon and Health Policy Wonk. Views my own. Traumatic Brain Injury | Spinal Cord Injury | Medicaid Policy
Cristina Montoya RD | Sjögren's Advocate
@arthrdietitian
Arthritis Dietitian | Sjögren's & Gut Health | IG @arthritisdietitian Personal Views
Natalie Habib
@princess_nat15

OMERACT
@omeract
Standardizing outcomes for use in rheumatology clinical trials around the world
Melodie Weller, PhD🌿
@meloweller
Virologist studying infections in salivary gland #autoimmunity #Sjogrens #SjD #Hepd #HDV #HepatitisDeltaVirus #COVID19Dentistry #LongCOVID Independent Thoughts
squirrelnugget69
@jboatwr69
Just a nurse
Elisabeth Potter MD
@epottermd
Board Certified Plastic Surgeon | DIEP flap & breast reconstruction expert | Fighting to change healthcare & ensure patient access | Based in Austin, TX
Pam Bishop, PhD @pamelarbishop.bsky.social
@pamelarbishop
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Migrating, find me here: @pamelarbishop.bsky.social
Michelle Gibby
@michelle_gibby
Former educator, now on early medical retirement because of ME/CFS. Member of the Church of Jesus Christ of Latter-day Saints 🌟
Earf McGirf
@earfmcgirf
Truth Seeker
Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen
Rants @CreakyJoints Blog chroniceileen.com Patient Advisory Board Member @Arthritis_ARC Staff @IfAiArthritis
Thomas Kline MD, PhD
@thomasklinemd
42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Med. Advisor thomasklinemd.medium.com
Warrior Mama
@aprildaly6
Mama warrior, advocate for those with SUD, harm reduction, criminal injustice and homelessness, fibro pt MPH❤️⚾️✝️ 🏃🏻♀️
A Chronic Voice
@achvoice
I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
Chronic Love Club
@chronicloveclub
Chronic Love Club is community dedicated to those with chronic illness and disability 🩵 IG: @ChronicLoveClub
Loretta Boesing
@boesingloretta
Founder of Unite for Safe Medications. Patient advocate. Son is a liver transplant survivor. Mail-order pharmacy is risky & shouldn't be the only option.
Sarah Schafer MD MPH
@sarahschafermd
See Sjogren's Advocate, @sarahschafermd.bsky.social. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease.
CathRAine
@catheri58232231
Learning to live with #ra #oa #fibromyalgia #autoimmune #spoonie #chroniclife
Joanna No Banana
@joannanobanana
Joanna (she/her) 29 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
Ross Goodner
@beyourown10
1 GOD FOREVER Disabled #ANKYLOSINGSPONDYLITIS I LOVE JESUS🙏 #Elonmusk I only voted #Trump in my lifetime #MAGA #AmericaFirst Trump2024 🇺🇸 NO DM'S
Joel Nelson
@joelvsarthritis
Award-Winning Advocate | Founder of Psoriatic Disease UK (@psororg) | Host of Chronic Pain Club Talk Show & The Joel Nelson Podcast
Dr Catherine Ann Vaughan🇺🇦
@caitrionavee

Candace D.
@diaryofasickgrl
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Jackie Seidel, PhD
@jackieseidel1
Born 322ppm 🌎 ❤️ Poetry. Bees. Bikes. Eco/Justice/Climate curriculum. UofC Assoc Prof. PhD. Tweets mine. She/Her jackieseidel @ sky place
ILLIASUL IBAD
@illiasulk
Rheumatologist at Christian Medical College, Vellore | 🎥 YouTube: "Sullys Rounds" | Passionate about travel and research. ✈️🔬@cmcvellore
Iago Pinal-Fernandez
@driagopinal
Dr. Pinal-Fernandez is a Staff Clinician at the Muscle Disease Unit of NIAMS/NIH. His research is focused on understanding myositis and autoimmunity.
Neuro Sjogrens
@neurosjogrens
Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice. Search this profile to find topics.
Tango McPhearson
@pyperoflynn
Truth matters
Neurologist Mom
@neurologistmom
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
Lindsey 🇨🇦🩵
@linds_longcovid
#LongCovid #MECFS #pwME #POTS #chronicillness since 01/22 💔 36 • Cat mom • Dancer • Empath • Music Former MUA💄 Web/UX Designer 💻 gofund.me/5c993e9c
Sudhir Athni, MD - Neurologist
@neurodocsudhir
Neurologist who lives to teach. Board Certified Neurologist, Medical Director of Neurology of Central Georgia.
Rheuma Doc
@lastmanstand85
🩺 Rheumatologist & Internal Medicine | Education | Be Humble | Be Teachable | Grass is Green where you water it🪴 | Arsenal Fan 30 Years 🔴⚪️ | MSK Ultrasound
Pharmer Trent
@tmac622
husband, father, outdoor enthusiast, Auburn alum, director of pharmacy, Secretary of AIPA
Talk2ANurse.com
@talk2anurse

Michael R Scoma MD
@drscomame_cfs
Yale-trained Infectious Disease Immunology physician delivering proactive treatments to Long COVID and ME patients. Views are my own; no medical advice given.
Gemma Banham
@banhamgemma
Nephrologist. Interests vasculitis/immune mediated kidney disease, dysautonomia, mast cells. Translational medicine/therapeutics PhD. Views own
Dr Rheum
@rheumdoctor
Tweets are opinions of Homi the Homunculus' joint activity and does not represent the opinion of anyone else
Himmat
@himmatb15
Writer and editor. Life derailed by Long Covid/vaccine injury. Very severe and fully bedbound. ME/CFS | hEDS | POTS
Lupus Association
@ladaorg
Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
Joni Nemeth
@jonilnemeth
Author-illustrator of children’s stories. Email: [email protected]
Ozan Cemal İçaçan
@tombombadilli
internal medicine, rheumatology
clarisse mcclellan 🔬
@deathscort
a book is a loaded gun // burned out nurse, clinic escort, public health enthusiast with sjogren’s, CTD, bipolar disorder 🌄🏒🌈🐱
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Sjogren's Syndrome Info
@sjogrenstrials
Clinical Trials in Sjogren's Syndrome current at time of tweeting
BigBlueWaveUSA2026® 🇺🇸🌊🇺🇦
@bigbluewaveusa
#FBR #IFB #Swiftie 💙 #ResistRepublicans #HandsOff2025 Find me at the Good Place: same name: BigBlueWaveUSA