When you plan on a slow run, but the body and mind are happy to go quicker. One week until my first run #runeverymonth looking forward it it! Raising money for The Ehlers-Danlos Society Ehlers-Danlos Support UK EDS awareness page #runbecausetheycant Something that affects my family! #teamzebra YO

#ThursdayMotivation it's such a beautiful day I started to go for a walk and leave the house for the first time since October, I didn't get far before my @ehlersdanlos reminded me why I made a bad decision.

Can anyone think of any questions Gemma can ask the Rheumatologist? #VEDS #Rheumatologist #Questions

WARNING AIRBNB SCAM: Yesterday a American family of 6 turned up at one of my proprieties in London. They had been scammed to think they could rent it for 3 days. The scammers took a photo from an estate agents web site and stole over $600 from these poor people. BASTARDS .

Anyone else had this issue? #EDSIssues #YouKnowYouHaveEDSwhen #EhlersDanlosSyndrome #EDS #Type3 #Doctors #ChronicIllness #hospitals #DoctorProblems #Meme #Awareness #EDSAwareness #EDSAwarenessPage #Experts… instagram.com/p/CDPk2sbDHv3/…

Who's been through this?? If so what's your thoughts on the situation & the doctor?? #YouKnowYouHaveEDSWhen #Spelling #EDS #EhlersDanlosSyndrome #PetHate

Has anyone had their gallbladder removed? What was your experiences? I had mine out last Thursday and the pain is so so but last few days has got worse and just can't wait till I'm recovered! #Gallbladder #GallbladderRemoval

Hello all - hope you're all well... If you're on Instagram please follow EDS awareness on Instagram - instagram.com/edsawareness?i… Hadn't posted on it for a while but back to posting! Hope to see you over there aswell ❤️

Just posted a photo instagram.com/p/CIbps6yDwp3/…

#NewPostComingSoon 6pm UK A post for Feeding tube awareness 2021

Just posted a photo instagram.com/p/CLM5q8YDXkZ/…

#FeedingTubeAwarenessWeek post is now up on Instagram! Go check it out & share your feeding tube awareness ❤️ instagram.com/p/CLM5q8YDXkZ/…

Can anyone help? #Sacrailliacfusionsurgery

Ehlers-Danlos Syndrome is mentioned in tonight's #HolbyCity Great awareness! Be great if they explore it more BBC Holby City

Going to start posting for awareness posts, what kind of post's / topics do you want to see? And if you don't already Follow the Instagram page then go follow - @ EDSAwareness

This is 💯 spot on.... Who agrees?

Just posted a photo instagram.com/p/COf4-lSjgoK/…

So this past week has been Feeding Tube Awareness Week. What do you hope with more awareness could change?I hope with more awareness people stop the odd/disgusted looks, laughing, finger pointing and whispering (very loudly) when they see someone with a tube! #EndTheStigma