Cold temperatures can activate a complex called the proteasome that cells use to clear themselves of unneeded proteins, including the protein clumps associated with ALS, a new study reports. buff.ly/40uZU5D #ALS #ALSNewsToday #amyotrophiclateralsclerosis #ALSresearch

Whether in Parkinson’s, ALS, or MS, amazing work is being done around the world to find treatments and cures for these devastating conditions. We support these communities as our allies, working toward the common goal of better understanding & treating neurodegenerative diseases.

. Dr. Robert M. Califf & FDA Biologics Treat #ALS as a Level I Trauma Incomprehensible suffering & 16 deaths every day 🔹1.8k since #NurOwn BLA was filed on Feb 6th 🔹23k since June 12, 2019 PFDD mtg w U.S. FDA How many more will #DieWaiting? #NurOwn works on some #SomeisEnough #DoNoHarm

I have a dream and a thread… (1/14)

Today is the celebration of life for JamieRoseBerryy @RepAnnaEshoo quoted her in the Congressional record & continues to honor her commitment to Jamie & the #ALS community #OTD she'd want us to thank you & tell you she adored you @Eshoo4Congress for keeping her legacy alive

Never ever give up.

I want to introduce everyone to Devin. Thanks to his tireless work, ALS patients of Synapticure are able to receive access to Relyvrio and Radicava in just 14 days. Everyone living with ALS needs a Devin. synapticure.com/blog/meet-our-…

Looking ahead to the NurOwn AdComm on Sept. 27th, we're launching a working group to plan for collective advocacy efforts. These are safe spaces for respectful debate and dialogue. We do NOT condone criticism or public shaming of individuals for their perspective.

Betsy died denied #Nurown despite a complete halt in her ALS progression during the NUROWN trial. She leaves behind her husband & 3 children CONGRESS, help END the lack of urgency CRUEL FDA Biologics regulatory RIGIDITY for 100% FATAL #ALS Dr. Robert M. Califf, PLEASE listen to Betsy

NurOwn significantly lowered NfL levels in the spinal fluid of ALS patients, with slower progression in those with greater drops, data show. buff.ly/43jwTvb #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity

Findings reveal that an approved multiple sclerosis oral medication and another experimental treatment may help those with sporadic ALS. buff.ly/3Od23iy #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity

She is just losing it all literally because the FDA Drug Information doesn’t see who this is affecting, allow her to live move and eat on her own. Allow her to watch me grow old!!! APPROVE NUROWN

Come watch the NurOwn AdComm with us! Join I AM ALS and the ALS community for a watch event on September 27th for the duration of the AdComm. We will gather on Zoom to watch the proceedings and be together. Sign up to get the zoom information: iamals.org/action/nurowne…

1/ #NurOwn patient testimony is now on record forever. No matter how many people lie about "safety", pALS know the data. Very sick patients were in this trial- a humane inclusion gesture that some "advocates" used to say #ALS needs more of. But what does "science" really want?

Today I turn 40. Chris had planned a big party for me. He was so excited, telling me, “I can’t wait to celebrate you the way you deserve to be celebrated.” Today I woke up to a world without him. Then I found these & remembered he left me so much evidence of his love.

We are with you Sandra Abrevaya. If you don’t have ALS, stay the hell out of this debate. We are one of the few who can say that Eric had NurOwn in his body. He wants & needs more. Let that be his choice, not yours. Until you’re dying, we don’t wanna hear from you. Just stop.

🏒 7 Canadian NHL teams joining forces to #EndALS! We are excited to launch this incredible campaign to raise awareness and funds for ALS research. Kudos to our leader Mark Kirton for making this a reality. alssuperfund.ca/news/press-rel…

Here is this week's most-read article featured on our #ALSNewsToday website! Are you caught up? buff.ly/3SoljLM #als #amyotrophiclateralsclerosis #alsdisease #alsresearch

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN ALS ACCESS Eric Braeden Sean Mino How many of you have been Blocked by the ALS Association I have it was not long after Richard Died from ALS I along with others Questioned why the Ice Bucket Challenge Money was still in their BANK ??

Living with ALS can make life feel small, especially if you’re homebound. One columnist shares how her family copes: buff.ly/3OEZIh8 #als #amyotrophiclateralsclerosis #alscommunity #livingwithals #alsawareness