Making skateboarding more accessible demonstrates a positive trend happening! teachrare.org/skateboarding-…

Prof. Hong returns for yet another adventure! Based on a true story, Prof. Hong takes you on an exploration through the eyes of Matt, a curious boy, and his supportive family. youtube.com/watch?v=kbl3NJ…

Female carriers of X-linked recessive conditions usually remain unaffected or only mildly affected, and for this reason, the few who do experience symptoms are typically dismissed or even ignored. However, Remember The Girls aims to fix that! teachrare.org/raising-awaren…

How mediation affects our brain: teachrare.org/neuroscientist…

A wave of support has emerged online for a Thai child diagnosed with Aromatic L-amino acid decarboxylase deficiency (AADC Deficiency), a rare genetic disorder affecting only about 130 people worldwide. Family faces expenses of more than B100 million for highly specialised gene

A new study analyzing approx. 500,000 medical records suggests that severe viral infections like encephalitis and pneumonia can increase the risk of neurodegenerative diseases like #Parkinsons and #Alzheimers teachrare.org/study-links-vi…

Saving Baby Akin's Life: youtube.com/watch?v=pl4Eq3…

The language of touch teachrare.org/protactile-lan…

Use key concepts to help build strength for your child with a rare disease or special needs: teachrare.org/key-concepts-t…

For Rare Disease Day read this article. The New York Times did a stellar job of capturing Matthew Lafleur's story and bringing #awareness to FA and #raredisease nytimes.com/paidpost/bioge…

Writing for Bionews has truly tested and refined my writing skills. Despite having over a decade of experience in education, writing for AADC News initially brought a mix of excitement and apprehension. I deeply value the opportunity to support families and create

Experts Push For More #Duchenne DMD Clinical Trials To Include Patients Who Can’t Walk: teachrare.org/experts-push-f…

Another school year complete and Rylae-Ann continues to make amazing progress thanks to research and science: metro.co.uk/2023/01/24/gir…

AADC deficiency is a rare condition with complex physical and emotional challenges. This AADC Awareness Day, we're honored to share stories from families like the Licciardello’s and their journey to diagnosis for their son Simone. bit.ly/43nCt2w

Is gene therapy a one-time treatment, or will the effects wear off over time? This was a huge question for our family prior to our daughter undergoing an experimental gene therapy in 2019. 7 years later, we can now share the results of that treatment. youtube.com/watch?v=XCZEhB…

Our family had the honor of attending the International Neurotransmitter Disorders in London. We shared our caregiver journey and spoke about how our background in education helped us build a practical framework for parents that supports children before and after gene therapy.

Taiwan’s National Health Insurance (NHI) announced on November 28, 2025, that starting December 2025, it will fully cover a groundbreaking gene therapy for AADC deficiency! 1 in every 30,000 newborns in Taiwan has AADC deficiency! focustaiwan.tw/society/202508…

Wheel Talk with Kelly & Avery Podcast amplifies disability and #raredisease voices through bold storytelling, lived experience, advocacy, and community connection. teachrare.org/rolling-boldly…