Jacob Ø. Wittorff

@wittorff

Journalist. Croissant-entusiast. Interesseret i tech og fodbold. Ruller på Nørrebro 👨🏽‍🦽. Kan kontaktes på [email protected]

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Andrew Longhurst

@davros63

Hi I'm Andrew, I live in Sydney, have nerdly tendencies and am interested in technology, sci-fi, education, accessibility, psychology, vampires and gadgets! :)

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Andreas Henden

@andreashenden

One small wheel for me, a giant leap for mankind.

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Abdelali (Ali) Majdi, MD

@alitimumab

#MedicalAffairs #Oncology🧬 #RareDiseases #Ophthalmology👁️ #CardioMed🫀#Innovation #Care #Diversity

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Peter Krighaar

@krighaar

En fars syn på livet med 3 børn samt et mix af WilliamsSyndrom, Cøliaki og far til barn med type1 Diabetes

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Anthony

@tonykhall

Interested in finding cures for rare diseases and hiking in the mountains

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OI Foundation

@oifoundation

Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.”

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Peter Petersen

@peter1petersen

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Karina Hjorth (Red-Green Alliance)

@gurli_k

Be towards others as you want others to be towards you: considerate, helpful, respectful. Political candidate, Red-Green Alliance/Enhedslisten Pronouns: She/her

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Asociación Osteogénesis Imperfecta del Perú

@aoiperu

Somos una asociación conformada por personas que padecen de Osteogénesis Imperfecta y padres de familia.

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Denise Scots-Knight

@scotsknight2

CEO/founder Mereo Biopharma plc focussed on patients with rare diseases. Non exec director and fitness junkie

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Tony Bech

@tony_bech

Branchedirektør, Velfærd og Samfund i @DanskErhverv ✉️ [email protected]

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Marlene Harpsøe

@mharpsoe

Ældre-, social-, handicap- samt uddannelses- og forskningsordfører for Danmarksdemokraterne👩🏼‍⚕️ Sygeplejerske. Byrådsmedlem i Helsingør

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Camilla Beer Arnsberg

@camillaarnsberg

Kommunikationsansvarlig i Konstruktørforeningen. AI-grafiknørd 🤖 Bestyrelsesmedlem i Cystisk Fibrose Foreningen ❤️

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NHFU

@nhfungdom

Norges Handikapforbunds Ungdom (NHFU) er en politisk ungdomsorganisasjon. Vi kjemper for full likestilling og frihet 👊

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Angelitos de Cristal I.A.P.

@adciap

Apoyo a Niños, Niñas y Adolescentes Mexicanos que Padecen OI, para mejorar sus condiciones de vida.

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Chatron Lda

@chatronlda

𝐼𝑛𝑛𝑜𝑣𝑎𝑡𝑖𝑛𝑔 𝑓𝑜𝑟 𝑎 𝑏𝑒𝑡𝑡𝑒𝑟 𝑡𝑜𝑚𝑜𝑟𝑟𝑜𝑤...☀️💡 Solar Light Tubes manufacturer

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Pernille Hermann

@hermannpernille

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Allan Gravesen

@a_gravesen

Musiknørd fra Møn, med kvart grønlandske rødder. Med familiebånd til Arsuk.

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Sidoschi

@sidoschi79

🐈‍⬛-𝙼𝚞𝚖 | 💖@holypriesteri | ♿️ 𝙶𝚕𝚊𝚜𝚔𝚗𝚘𝚌𝚑𝚎𝚗 & 𝚔𝙿𝚃𝙱𝚂 𝙺𝚛𝚒𝚎𝚐𝚎𝚛𝚒𝚗 ⚔️ | 𝙰𝚋𝚒𝚝𝚞𝚛𝚒𝚎𝚗𝚝𝚒𝚗 𝚒𝚗 𝚁𝚎𝚗𝚝𝚎 👩🏼‍💻

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AMOI

@amoimadrid

Bienvenidos al Perfil en Twitter de la Asociación en Madrid del Síndrome de la #OsteogénesisImperferta (Huesos De Cristal). Teléfono: 916 80 22 84/ 660425683

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Davina Ford

@davina_ford

Physiotherapist at Sheffield Children's Hospital encouraging children with rare bone conditions to achieve their full potential.

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Pia Inez Abildgaard

@abildgaardpia

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Mathias Mylle

@mathiasmylle

Cykling ❤️

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ben kang

@nature__01

biologist using AI. PhD candidate.

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MIDOU

@m__i__d__o__u

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OI2022

@oi2022tweets

14th International Conference on Osteogenesis Imperfecta, 30 August to 2 September 2022 in Sheffield, UK #oi2022 Account for all things osteogenesis imperfecta

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The Extracellular Matrix Pharmacology Congress

@ecmcongress

#ECM2026 Venue: Copenhagen, Denmark Dates: 15-17 June 2026 #ECM #ECMatrix #Pharmacology

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Lisbeth Koed Doktor

@lisbethdoktor

Tweets med afsæt i et handicappolitisk engagement som tidligere formand for Muskelsvindfonden. Patientrepræsent i SMA-fagudvalget i Medicinrådet & Trial Nation.

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Ida Vandsøe Madsen

@idavama

Anthropologist and PhD student. Medical, psychological & phenomenological anthropology 🤍 Temporalities, materialities, presence, politics, poetry

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International XLH Alliance

@alliancexlh

3rd International XLH Symposium, July 1st 2022 in Dublin at UCD.

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Associação Portuguesa Osteogénese Imperfeita

@apoi_2006

Associação Portuguesa de Osteogénese Imperfeita

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XLH, arvelig rakitis

@xlhdk

XLH, arvelig rakitisk (Denmark) helps to support those living with XLH and related hereditary rickets disorders.

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Sherlin Viloid

@sherlinviloid

bildertaus dm 💦

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Benjamin Thodberg

@bthodberg

MA/Cand.ling.merc | DK

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ECTS_Science

@ects_science

European Calcified Tissue Society @ECTS_soc Science account maintained by the social media action group of researchers. #ECTS2025

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Mereo BioPharma

@mereobiopharma

Mereo is a clinical-stage company focused on developing therapies in oncology & #orphandrugs / #rarediseasetherapies for #rarediseases

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Kent Søe

@kentsoee

Strong interest for #bone #research and #osteoclast in the context of #osteoporosis, #breastcancer, and #prostatecancer. @Patologi_SDU @OUHhospital @SUND_SDU

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Små Visioner

@smaavisioner

Velkommen til SMÅ Visioner med STORE tanker Vol. 2.0! Fra vores to baser i BKK & KBH, arbejder vi for fuld skrue på aktivt medborgerskab på den FEDE måde 💪

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Christina Kahr Hansen

@hansenkahr

Livsglad, madglad...bare glad! Elsker leg med ord, sætter STOR pris på medmenneskelighed, omsorg og empati. Undgår drama og fnidder-fnadder🙄

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DrugStars

@drugstarsapp

DrugStars is a global movement of patients giving to charities for free, just by taking their meds #GivingByTaking

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Brian Schack

@schackbrian

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B. Toft-Petersen

@btoftpetersen

Socialpolitisk konsulent hos Danske Handicaporganisationer - @handicapdk - så derfor masser om #dksocial og #dkpol.

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Et Bedre Kbh

@etbedrekbh

Et bedre KBH: også for handicappede børn i Københavns Kommune. Opmærksomhed om handicappede børn styrker den politiske vilje til forbedring. #EtBedreKBH #kbhpol

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Susan Schøler

@ler_susan

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Therese Hedal

@theresehedal

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Joy Skogbekken

@catpaws4joy

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Anette Agerholm

@aneteagerholm

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Anders H Nielsen

@fart_is_alive

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Congress OI in 2016

@oi_in_2016

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