Today is #BattenDay2018! Join me in supporting the Batten disease community: twibbon.com/support/batten… #MakeYourMark #CureBatten

We are excited to announce we have launched The Gray Academy thegrayacademy.org a Non-Profit non public school for children with Neurological disorders, brain injury and global developmental delays, coming Fall 2018 to West Los Angeles! #curebatten

We're so excited to announce and invite you to our night with David Foster - a concert benefitting The Gray Academy and The Charlotte & Gwenyth Gray Foundation. If you cannot attend, but still want to be involved, check The Gray Academy Site.thegrayacademy.org/event/david-fo… …

Excited to watch Charlotte, Wyatt and other children thrive at The Gray Academy, a school designed for children (k-5) w/ neurological needs. The David Foster concert directly supports these efforts. Interested in attending or supporting? click here thegrayacademy.org/event/david-fo…

In honor of #RareDiseaseDay Aren't We All Rare in our Own Way via HuffPost ow.ly/YSFZa

Today is #RareDiseaseDay BBC explores one family of 60 million world-wide affected marcbuist ow.ly/YTiV9

February 29 is a rare day. It's also #RareDiseaseDay. Your mission today is to choose a rare disease to research and learn about.

#RareDiseases are collectively NOT Rare 6000+ rare diseases each affecting < 2000 = 1 in 17 affected #RareDiseaseDay x.com/PHE_uk/status/…

Very honored to be part of Mediaplanet USA #RareDiseases campaign. Learn more about about our battle with Batten bit.ly/1Lp98Jl

Come join us on our #BAYWATCH set for a day. For a very special charity and we'll have a blast! Bring the baby oil;) x.com/flipsidepa/sta…

Meet Dwayne Johnson on the #Baywatch set AND support CureBatten?? Yes Please!! Enter here ifonly.com/baywatch x.com/TheRock/status…

We are #proud to announce that, thanks to donors like you, a clinical trial for Batten disease CLN6 is underway!

Learn more about the incredible journey that has brought us here! people.com/article/batten… #curebatten #thankyou Nationwide Children's Hospital #gratitude

Love this man like a brother. Their lil' girls are the first ever in the world to receive this trail treatment. 💪🏾🙏🏾 people.com/article/batten…

Article on our work w/ CureBatten on gene therapy, highlighting our Vatican talk #UniteToCure #sanfordnextgen fw.to/I6PnPbW

Last chance to meet Dwayne Johnson on set of BAYWATCH! Enter today for $10 & support #curebatten! ifonly.com/baywatch x.com/TheRock/status…

Tune in to Good Morning America friday morning for a heartwarming update on #curebatten. You can see the teaser here: facebook.com/GoodMorningAme…

Excited to announce our Call-A-Thon this Thursday! Once again the HWood community rallies to fund research 4 a cure! deadline.com/2016/09/gordon…

Today is Rare Disease Day! Help raise awareness and help us with the fight. #careaboutrare #rarediseaseday #shareyourstory #stopthepain #curebatten