Happy to be bringing research to life for patients with rare #demyelinatingdiseases through this new The Sumaira Foundation initiative. #raredisease #plainlanguagesummaries #ResearchPapers

Days like #ValentinesDay can heighten the isolation #RareDisease patients experience. TSF Germany will host their Human Collective Project meeting today, a #supportgroup for #NMOSD and #MOGAD patients/caregivers. You are not alone. Register: tinyurl.com/Plauderstunde2 #community

‘Empowering': Rare Disease Week on Capitol Hill to draw calls for change #NellInTheNews Nell, #NMOSD patient/advocate, TSF Junior Ambassador and #raredisease rock star, was recently featured in NBC News highlighting her advocacy efforts WAY TO GO NELL! nbcwashington.com/news/health/em…

It's #NMOAwarenessMonth and we're SO excited about everything we've got lined up (thanks Amgen 🧪🔬🧬)! 🔗sumairafoundation.org/tsf-nmo-awaren… Share your #NMOSDmilestone • Attend a webinar/support group meeting • Spread the word Illuminate the darkness with us! #10yearsofTSF #TSFNMO2024

It's #NMOAwarenessMonth! I join my tribe of The Sumaira Foundation ambassadors to raise awareness for #NMOSD 👉Life-threatening #autoimmune #RareDisease 👉Affects optic nerve and spinal cord 👉Causes blindness, paralysis, etc. 👉Prompt diagnosis and treatment crucial #RareDiseaseDay

It's #NMOawarenessmonth, so how would you rate your awareness of #NMOSD? #RareDiseaseDay #RareDisease

🇨🇦🇺🇸 On March 9th, the majestic Niagara Falls was illuminated pink to honor TSF's #NMOSD Awareness Month (March) & #MOGAD Awareness Month (April)🩷🧠🌺 Thank you Niagara Falls Canada / Niagara Falls USA for celebrating with us for the 3rd year in a row #10YearsOfTSF #TSFNMO2024

📣 We invite you to read and comment our recent review on Clinical characteristics of patients with myelin... : Current Opinion in Neurology journals.lww.com/co-neurology/a…

It's #NMOAwarenessMonth and we're excited to share our new #TikTok account and our first video featuring our ambassadors. 🔗tiktok.com/@thesumairafou… Follow us for relatable, educational, fun content raising awareness for #RareDiseases #NMOSD and #MOGAD.

'Not Just Patients' - new podcast for anyone interested in patient and public involvement, advocacy, and engagement. Episode one out now! open.spotify.com/episode/3pryWm…

🇨🇦 On April 12th, Calgary Tower was illuminated pink to commemorate TSF's #MOGAD Awareness Month 2024 🌺🦄🩷 Special thanks to Marc, TSF Ambassador of Alberta & #NMOSD patient for making this happen!

The global Ambassadors of The Sumaira Foundation continue to blow me every day with their unique ideas to raise awareness of #NMOSD & #MOGAD. Congratulations to Bozena (TSF Ambassador of Poland 🇵🇱) who orchestrated this remarkable awareness campaign in Warsaw! 🤩🤩🤩

🎙️On #ClinicalTrialsDay we released our #NotJustPatients podcast episode on meaningful #patientengagement in #Pharma, featuring Bronwyn Lewis Boehringer Ingelheim Listen to learn about how pharma is engaging patients through and beyond #drugdevelopment 🔗 notjustpatients.com

🇮🇳 TSF Ambassadors of India invite South Asian patients & caregivers impacted by #NMOSD #MOGAD #TM to join a live Q&A session with Dr. Vibhor Pardasani, neurologist & Asst. Professor at Bombay Hospital This meeting will be in English. Registration: tinyurl.com/TSFIndiaQA

Exciting news! One of our amazing Emerging Advocates, Clarinda Cerejo (she/her/hers), was published in Current Medical Research and Opinion! Thank you for moving against migraine, Clarinda! Check out the full article to learn more: bit.ly/3Mg6J6u

Global Patient Advocate and GPAC Executive Committee member Clarinda Cerejo (she/her/hers) was recently published in Current Medical Research and Opinion! Clarinda is an amazing advocate and graduate of our partner, American Migraine Foundation's Emerging Advocate program. Her work breaks down

A patient in India is looking for community support or some connections to others with cervical #dystonia. Could be in India or global. Any leads? via Clarinda Cerejo (she/her/hers) #MovementDisorder

🗞️📰 We at TSF have some BIG news to share… pcori.org/research-resul…

Anxious about my Air India flight from Milan to Mumbai getting cancelled. Stranded and awaiting more information and help.