Melanin Children Matter
@childrenmelanin
Serving children, healing families and educating society; while enhancing awareness surrounding childhood rare diseases pedi-ALS/sptlc2 & resources for autism
ID: 1373683328700780552
http://melaninchildrenmatter.org 21-03-2021 17:10:23
932 Tweet
327 Followers
352 Following
Ice Cube
@icecube
King Me!
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Kevin Hart
@kevinhart4real
My name is Kevin Hart and I WORK HARD!!! That pretty much sums me up!!! Everybody Wants To Be Famous But Nobody Wants To Do The Work
SELF
@selfmagazine
Wellness you can trust. #TeamSELF
Mitze Klingenberg BSN, RN
@klink52
Advocate for people with ALS. BSN, RN. Spent career in psychiatric nursing.
CHOC
@chocchildrens
A mighty brigade sworn to protect the magic of childhood through world-class pediatric healthcare. #DefendersofChildhood
Kelsie Snow
@kelsieswrites
Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
ALS Uncensored 🏴☠️
@scottsfight
Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Jayne Halhead
@jaynes__world
In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Championing #Lancashire🌹
ASH
@ash_hematology
The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
Angela Gartner
@angelagwriter
Editor/Content Director at Northeast Ohio Parent magazine, journalist, poet, fiction writer, Boy&dog mom, Kent grad, adjunct professor, constant reader
Team Telomere
@teamtelomereinc
An international community for telomere biology disorders. Facebook: facebook.com/teamtelomere | Instagram: TeamTelomere | Email: [email protected]
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
ALS TDI
@alstdi
The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Christine Gilmore RN
@kickenalsass
ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Steve Gleason - "Live Impossible"
@stevegleason
New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Girl Travelin Alone
@cathystandish
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Mayuri Om Saxena
@mayuri_saxena
40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 linktr.ee/mayurisaxena
ALS United Connecticut
@alsunitedct
ALS United Connecticut provides vital programs and services to CT patients and families fighting Lou Gehrig's Disease.
Stew
@jonstew1982
Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
Naftali Kaminski
@kaminskimed
First Generation Physician-Scientist, & many other things. This account is Private - opinions and tweets do not represent any of the organizations I work with.
ALS United of Georgia
@alsgeorgia
Enhancing the lives of Georgians living with #ALS, every day until we find a cure.
BrainStorm
@brainstormcell
BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
Live Like Lou
@livelikelou4
Leaving ALS better than we found it #ONWARD #LiveLikeLou
Jennie Starkey
@starkeyjennie
Mum of 4, educator, diagnosed with MND Sept 2021. retired through ill health, Raising MND awareness through humour (sometimes dark) with my blog.
ALS/MND Alliance
@alsmndalliance
A World Free of #ALS #MND
Matt Scher
@mattscher0215
News & Sports Director @977theboltfm - PxP Sportscaster - Olivet Alum - Retired College Pitcher ⚾️ - ALS Advocate #ScherStrong #StrikeoutALS 🟦
David Steensma, MD
@davidsteensma
Hematologist-oncologist. @AjaxThx CMO. Former Edward P. Evans Chair in MDS @DanaFarber, @HarvardMed & @MayoClinic faculty, @NovartisScience hematology head.
Team Gleason
@teamgleason
Nonprofit founded by former New Orleans Saints player, @SteveGleason, after his diagnosis with Amyotrophic Lateral Sclerosis (ALS) in 2011. NO WHITE FLAGS
ALS News today
@alsnewstoday
We are dedicated to sharing the latest news, research, and ALS patient perspectives.
Dr. Stacy Lewin
@farberstacy
Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
Sharon A. Savage, M.D.
@sharonsavagemd
Find me on BlueSky - telomeredoc.bsky.social and LinkedIn 🧬 Views are all mine 👩🏻🔬
Chrisean
@chriseanmalone
heaven sent me 🙏🏽
Ammar Al-Chalabi
@ammaralchalabi
Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
I AM ALS
@iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sarah Nauser
@sarahnauser
Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl
AZ Latina ☮️🌊🟦
@avoice4als
Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky
Gia
@giapolo86
hell hath no fury like a daughter fighting for her father's legacy #endALS #iamALS #actforALS
Shah Minokadeh, M.D.
@minoshah
Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS TX DAD
@alsdads
Mandi
@runningmama0522
End ALS Now
@endalsnow
▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
I’m Dying To Tell You Podcast with Lorri Carey
@lorrispodcast
Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
ALS ACCESS
@brainmatters10
Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
Grant W Smith
@gwsmith14
MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Tanya L Brown
@tanyalbrown_14
Scientific Director at TESS Research Foundation | Enthusiastic scientist, educator, and runner | Advocate for diversity and inclusivity in science.
Target ALS
@targetals_fdn
Target ALS is a nonprofit dedicated to breaking down barriers to ALS research to find effective treatments. #EveryoneLives
Emory Alvarez Lab
@emoryalvarezlab
Neuroscience lab in the Department of Cell Biology at Emory Univeristy studying everything from locomotor circuitry to neuroinflammation following PNI
ERIC HOUSTON
@erichou85992456
Patricia McAvity
@pdmcavitymd
Mum of 4. Bereaved parent. Family physician. Disability advocate. She/her.
JC
@jc75408607
Diagnosed with ALS 3/30/22. Living life day by day while I try and process this journey.
Steve Jones
@actionpfsteve
Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. Board member of @EU_IPFF
Emma M. Groarke
@emmamgroarke
🇮🇪🧛🏻♀️Haematologist @nih_nhlbi l via @ucdmedicine @trinitymed1 l Lover of 🚀🐷🖖🍷l #SAA #IBMFS #telomeres #CHIP #MDS #AML #HSCT #VEXAS l Comments mine.
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Pilar Rivera-Ortega
@pilarriveraort1
Respiratory Consultant, sub-specialty in Interstitial Lung Disease #ILD🫁 Royal Devon and Exeter Hospital. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs #Genetics🧬
Amer Zeidan MBBS,MHS عامر زيدان
@dr_amerzeidan
Professor of Medicine, Chief of Hematologic Malignancies, Director of Heme Clinical Research @Yale. #Madridista. #AMLsm & #MDSsm. COI bit.ly/2YfwJ9V
car128
@crayne128
homesteader, lover of sustainable living, hater of ALS for stealing it all away from me, and for threatening to steal my family from me. We need NurOwn now!
Michael Lecker
@michaeliamals
Just some guy working for the ALS community
Her ALS Story
@heralsstory
We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
Geoff
@gebinh1
MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
Kelleher Lab at Purdue University
@kelleherlab
We integrate psychology with developmental cognitive neuroscience to promote optimal outcomes for children with neurodevelopmental disorders & families.
Emma Terry
@emmalaytonterry