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ME/CFS Grant submitted. A big thank you to all in Oxford, the UK, NSU, MIT and Poland. Quite a relief. The NSU finishing team got us over the line. They had to work all weekend. A great effort from everyone. #pwME #LongCovidAwareness #lyme

This 'plan' changes nothing for my 18 yo daughter who is bedridden & tube-fed or the many others with severe / very severe #MyalgicEncephalomyelitis. Bottom line: No funding and some warm words after decades of neglect of #pwME. We need an NHS and parliamentarians #ThereForME

From MEA on Facebook. #NonDeliveryPlan “The DHSC decided not to include anything from our press release because it wasn’t sufficiently supportive”

🤣🤣🤣🤣🤡

Shadow cabinet reshuffle. Could only name one anyway. Who even are they?

I can’t believe how these people think they are superior to the asylum seekers. They wouldn’t make it across Cleethorpes boating lake in a dinghy.

"There are people who will never be able to work but their lives still have a purpose" Hear Hear! #TakingThePIP

This is better!

John telling it how it is - a life not lived

Anyone else find that scary? I remember what I was like at 19 - thought I knew it all but really I knew feck all about real life outside my sphere of lived experience.

The Asda delivery at 9.30 this morning You have substitutions - Ordered - Whole Chicken - not available Substitution - Chicken Gravy what the actual fuck?

Alarming neglect of another hospitalised young woman with severe #MyalgicEncephalomyelitis. Please read, sign and share. 🙏 #MECFS #C4News Channel 4 News #r4today BBC Radio 4 Today BBC Breaking News

This write up from Channel 4 News is worth a look - more on Nick Benton’s story, who has done such an awesome job speaking out 💪

BBC Radio Scotland: Tomorrow morning, Dr Charles Shepherd, MEA Hon Medical Adviser, will be interviewed on BBC Radio Scotland Mornings with Stephen Jardine.  He'll be discussing the UK Government's announcement around around the ‘boost in support for patients with ME/CFS’. Tune

Had an email from the Peace & Justice Project about the new political party being started by Corbyn & Sultana. Cautiously optimistic it’ll be a party I can hang my hat on. DT #MECFS #freepalestine #abolishthemonarchy Carole Bruce

🚨 NEW: The boss of Motability has hit back at “misrepresented” and “hostile” commentary after a website was created to identify Motability vehicles [Disability News Service]

⁦Schnickelfritz⁩ ⁦Carole Bruce⁩ Messy! Connections Puzzle #774 🟪🟨🟩🟪 🟦🟦🟦🟦 🟩🟪🟩🟩 🟩🟪🟩🟩 🟨🟨🟨🟨 🟪🟩🟩🟩

Peaceful and soothing

What is this nonsense? “Message reposted your reply” Why? Who are they? Wasn’t exactly a groundbreaking reply I posted 🤷‍♀️

Love this!