Hi everyone, I'm conducting research for my dclinpsy thesis on the experiences of adults with Cystic Fibrosis unable to benefit from Kaftrio/Trikafta due to genetic factors. If you have questions or need more information, feel free to contact me. Thank you for your time.

This Tuesday 20 February marks the official 60th anniversary of Cystic Fibrosis Trust and we are very pleased to share that a number of landmarks across the UK have agreed to light up in yellow to celebrate with us! Check out our list of landmarks! ⭐ ow.ly/fUzy50QC7nP

It was a real privilege to hear Sophie speak about her experience living with #cf and her efforts to raise money for Cystic Fibrosis Trust with her Cruising Free Atlantic Row! A brilliant cause, more info here linktr.ee/cruisingfree

Join us later this week for the next SAIL Databank Showcase Webinar (Online) on Thu 22 Feb 2024 at 10AM. This month's theme: The use of SAIL for NHS by the NHS for evaluation and service improvement. Population Data Science at Swansea University Health Data Research UK (HDR UK) Health and Care Research Wales ticketsource.co.uk/whats-on/onlin…

Did you know you can take part in a clinical trial from home? Check out two new trials that you can take part in remotely: 💛 GRAMPUS-CF: Understanding gut symptoms in people with CF. 💛 YOGA-CF: Investigating the effects of yoga for people with CF. 🔗 ow.ly/40zs50QGcoE

Without the SAILDatabank, our project would simply not be possible! Fantastic to see such deserved recognition for Population Data Science at Swansea University #DataScience #Research

Recruitment still open for this study on #PrEP access in Wales. Please share widely and get in touch if interested! CTRCardiffUni Health and Care Research Wales Fast Track Cymru Fast-Track Cities Institute SexualHealth Cardiff | Iechyd Rhywiol Caerdydd Fast Track Cardiff and Vale Terrence Higgins Trust Cymru PrEPster Cardiff University School of Medicine Public Health Wales Trans Aid Cymru GlitterCymru

This #RareDiseaseDay our Specialty Lead for Respiratory, Jamie Duckers, tells us about the ways research in Wales is trying to improve the lives of those with #CysticFibrosis Learn more 👇 1/3 #RareDiseaseDay24 CVUHB R&D Department Cardiff and Vale University Health Board

📢JOB OPPORTUNITY! Join our fantastic team! Education & Engagement Officer role at Wales Gene Park, is now open for applications. Apply by Sunday 7th April: krb-sjobs.brassring.com/TGnewUI/Search…… 🧬💡

CUBiobank is excited to be at sbarc|spark Cardiff University Biotechnology and Biological Sciences Research showcase agenda to introduce what we can offer for your research projects. Come and speak to us if you are there or email [email protected] to find out more!

🆕fully funded Health Data Research UK (HDR UK) #PhD scholarship🌟 ➡️Use of Real-World Evidence in Health Technology Assessment For Multiple Long-Term Conditions ✍️Supervisors: @rhiannonkowen @KRAbrams Jim Rafferty Hamish Laing 🗓Closing: 12th May Apply here👉 swansea.ac.uk/postgraduate/s… SAILDatabank

Are you living with cystic fibrosis & curious about how your body sweats & respond to exercise in hot conditions? The SWEAT-CF study at the University of Portsmouth is actively seeking participants. Please contact us for more information #cysticfibrosisresearch #CFWarriors

May is Cystic Fibrosis Awareness Month!

Did you know that Wales Gene Park supports cancer research in Wales? We can help researchers with their next generation sequencing/bioinformatics. To enquire, or for more information, please contact us at: [email protected] 🧬

⭐️Thank you to everyone who joined us for our Co-production themed workshops this week. It was great to see you all there. Diolch yn fawr!👏

This week we’ll be sharing more stories from our community about life with CF. We’re kicking the week off with Simon’s story. Read more about Simon’s journey with CF, his hopes for the future, and showing others that #cysticfibrosis doesn’t define him. ow.ly/gSw450SobFC

Fantastic to see this important study, led by our Specialty Lead for Respiratory, Dr Jamie Duckers, being shared in Cambrian News This work improves support for those living with #CysticFibrosis as they make decisions around pregnancy @CF_PROSPER

Our Christmas raffle is now open! 🎄 It’s just £1 per entry and you could win up to £2,000! 💛Every raffle ticket sold will help provide essential support, information, and reassurance to families affected by #cysticfibrosis ➡️ ow.ly/huKG50Tv4Rm

1 in 25 people in the UK are cystic fibrosis carriers, but is there a health impact? Research is linking data from SAILDatabank and The All Wales Medical Genomics Service to find out healthandcareresearchwales.org/about/news/wor… #WorldCFDay CFCLiC Rob

For #WorldCysticFibrosisDay 2025, we’re highlighting research funded by Health and Care Research Wales using SAILDatabank & The All Wales Medical Genomics Service data. The study explores whether being a #CysticFibrosis carrier impacts health - aiming to improve support for families. 🔗 saildatabank.com/world-cystic-f…