Carol-Anne Mum to Amber
@cdkl5advocacym
Parent/carer of dd with CDKL5, charity chair, Social Worker Practice Mgr 4 IFA, BSc(Hons) Social Work MSc global Health. Trauma informed evangelist
ID: 20260240
http://www.curecdkl5.org.uk 06-02-2009 18:51:35
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641 Followers
1,1K Following
Chris Kidd
@chriskidd
Married to the amazing @sarahkidd100 & loving raising our blended family. Passionate about Jesus, social work, @southamptonfc running & cycling. Views my own
Jainu Jogani
@jainu11
fb.com/reynascure Working toward finding a cure for daughter's rare, random, ruinous genetic condition called CDKL5. One step at time.
sara cox💙
@sarajcox
TEATIMES BBCRadio2 4-7pm mon-fri 🧡 podcast THE TEEN COMMANDMENTS
AlphaFo𝕏
@alphafox78
𝕏 Fo𝕏 🇺🇸🦊✝️
Ruth Kettle-Frisby ♀️✊🏻☮🧡🇪🇺🦇
@ruthyphro
Feminist Quaker Socialist; Writer; @CDKL5UK Trustee💚; London Greens Disability Rep; #Havering Greens; Music; Philosophy; Furnisher of Fairy Lights #ZanesLaw
BBC Bristol
@bbcbristol
Celebrating people and stories from across Bristol. Follow @BBCGlos / @BBCWiltshire / @BBCSomerset 🎧 Hear BBC Radio Bristol on @BBCSounds ⬇️ Tap for more
Andreas Borg
@_andreasborg
Adjunct Professor @NYUTandon, Coder, Founder CURE5 #CDKL5 #CRISPR @the-borg.bsky.social
Owen Jones
@owenjonesjourno
Socialist, antifascist, writer in various places, geriatric millennial, GQ's 9th Worst Dressed Man in 2016. He/him. YouTube channel bit.ly/33iARb3 🏳️🌈
Care Leavers' Assoc
@careleavers
The leading national user led charity for care leavers. Making a difference to lives. If you are a care leaver let us know and we will follow your tweets.
James Draper
@jamesthedraper
I like cycling and recycling, coincidence? Happiest when on holiday. Social worker. These are my personal views.
Chris Ship
@chrisshipitv
ITV NEWS Royal Editor. Tweeting the newsworthy (and the occasional non-newsworthy) from the British Royal households. instagram.com/itvnewsroyals
Coram Voice
@coramvoice
We get the voices of care experienced children and young people heard. Home of #ANationalVoice.
Andrea Cerase
@andrea_cerase_
Loves cooking and good food, Formula 1 fan, bird watching and long walks. Hates Brexit and liver pâté. Per aspera ad astra.
Home Office
@ukhomeoffice
We are the lead UK government department for immigration & passports, crime & policing, homeland security and protecting vulnerable people.
Laura Mayes
@laura4roundway
Wiltshire Councillor for Bromham, Rowde & Roundway, Deputy Leader & Cabinet Member for Children’s Services. Enjoys surfing, walking the dog and swimming.
Martin Lewis
@martinslewis
Founder @moneysavingexp, @mmhpi & (ish) @itvmlshow & Martin Lewis Podcast. Home of t'daily twitter poll, tips, puns, musings. Mrs MSE’s husband, Sapphire's dad
Wriggles10💙💙🌺🌼🌻
@wriggles10
Mum of 3 and Foster carer of many. Supporter of NHS ,hate the Tories If you are not angry, you are not paying attention ' #EnoughlsEnough she/her
𝔾
@georgibliha
Christine Merchant
@chrismerchant01
Totally unltd. salsa dancer with gusto not style! love life, Bowie and Liverpool FC, always craving a new adventure, a first try.
Christine Bottomley
@chrissybotto
Actor currently in #Sherwood on BBC One .On insta much more @christinebottomley2018 see you there beauties
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
Chiara Ferrazzoli
@chiaferraz
MD, FEBN, Neuro enthusiast!
Wiltshire C Careers
@wiltsc_careers
Official account for Wiltshire Council careers. Follow us and keep up to date with opportunities to join us and #LoveWhereYouWork
CDKL5 - IFCR
@cdkl5_ifcr
501(c)(3) dedicated to advocacy, research & cures for #CDKL5 Deficiency Disorder - a Developmental & Epileptic Encephalopathy (DEE). Formerly used @CDKL5_USA
Will Mellor
@mellor76
Check out Two Pints with Will & Ralf here! 👉 linktr.ee/willandralf
Ben Ashcroft
@ashcroftben
Author - Fifty-One Moves #ECLCM @ResCareTo21 ❤VR❤ #CareExperienced #MentalHealth #SocialWork #Safeguarding
Remembering Ian Dickson
@idickson258
#CEP husband, Dad & Grandad. Ardent campaigner for #CEP rights. 'He was like a prism - shining light of many different colours in all sorts of directions.'
International League Against Epilepsy
@ilaeweb
A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy. RTs are not endorsements
Gulwali Passarlay 🧡
@gulwalip
Author of #TheLightlessSky 📕Educator 👨🏫|Speaker🗣️@Asylum_Speakers Advocating & Campaigning for #RefugeesRights. buymeacoffee.com/gulwali
Rob Mitchell
@robmitch92
Bradford based Social Worker. Co-author, blogger, podcaster of Social Work, Cats & Rocket Science. Sometimes in Sweden. Personal account - my views. #LUFC #GAIS
matt clayton 🇺🇦
@mattjclayton
Strategic Lead for Children in Care, Children with Disabilities and Care Leavers at Coventry City Council. Vice Chair of @nlcbf steering group @childfriendlycov
Ed Davey
@edwardjdavey
Leader of @LibDems, husband, father, carer, and MP for Kingston & Surbiton. Promoted by Liberal Democrats, 1 Vincent Square, SW1P 2PN.
Pablo 🦝
@pabloq1999
Novel electrophysiologist
Judith AM Denton
@judithamdenton
CEO and FOUNDER @Transformed2YOU | SOCIAL ENTREPRENEUR | SPEAKER | TRAINER | CONSULTANT | AUTHOR of @FosterCareandMe | FOUNDER @TheBlackCareExp #BCE #CEP🙏🏾
Carol Off
@caroloff_
Journalist and author. Former co-host of CBC As It Happens. At a Loss For Words: Conversation in an Age of Rage is on sale now.
Patti Wasz
@patti_wasz
Dr Alison Pearson
@alisonpearsonsw
Postdoctoral research fellow researching education, wellbeing, resilience. Mum to a beautiful trisomy girl.
SYNGAP1 Foundation
@syngap1fnd
SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1
Sarah Fraser
@sarahlfraser1
Senior Executive Recruitment Consultant at Wiltshire Council specialising in senior leadership recruitment & strategic recruitment projects in Children's
Luke Rosen
@lukebrosen
Dad of two remarkable kids. Founder of KIF1A.org & Rescue7.org. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
Jen Salter
@jensalter6
Proud to be a Social Worker. Corporate Director Children and Education (DCS), Wiltshire Council. “The Relationship IS the Intervention” 🤍
Mary-anne Hodd
@maryhodd
Care experienced trainer and advisor, connecting the voice of lived experience and psychology. Founder of the Guarantor Scheme. Psych & PGCE Grad.
Volodymyr Zelenskyy / Володимир Зеленський
@zelenskyyua
President of Ukraine / Президент України
Care Leavers National Movement
@clnmovement
Youth led movement within The National House Project. (Share Success - Challenge - New Ideas- Peer Evaluate) #connectcareleavers
kristie c
@kristieleigh431
FosterWilts
@fosterwilts
Wiltshire Council Kinship and Fostering Team. Recruiting and Supporting Foster Parents in Wiltshire.
JPV
@jpv_tweets
ThēPrìcklyThìstle
@theethistle
Proud American birth🇺🇸 Proud Scottish blood🏴 Big fan of Bagpipes, Whisky, Guinness, Golf, Tattoos, Kilts, Dogs, Highland Coos and Chess!
Samantha Heathcote
@samanthaheathc7
all views comments and posts are personal
Chris Boettcher
@chrisboettcher9
Simplifying health to help you avoid chronic disease without Big Pharma. Dr. PT | Husband | Father x4 | 10x Ironman | Apply now: brother2brotheru.com
The Black Care Experience™️
@theblackcareexp
To see Black Children and Young People remain connected to their Culture, Identity and Heritage as they journey through Children’s Social Care System.
Care Experience and Culture
@careexp_culture
Dr.@Rosie_Canning & @DrDeeMichell look after Digital Archive of Care Experience📚literature 🎬film 🎭theatre 📺TV 📻radio 🖥blogs 🕸websites 🏫academic material
Fatima Whitbread
@fatimawh1tbread
Former Javelin World Champion, WR, & Olympic medalist 🏅🇬🇧 Care Experienced. Campaign Activist 🌟 Enquiries: [email protected]
LostEraPOV
@losterapov
Bringing history and fantasy to life. 🎬
ClarksonsFarm
@clarksonsfarm1
Following back subscribers! Back British Farming!🇬🇧 Fan account not representative of Clarkson’s Farm, but we do collab with the brand, affiliates, and stars!
Chad kroeger
@_chadkroeger_
Musician/Band
Betty
@bettymuk_
🗺️ @raceacrosstheworld S4 | BBC 🩵 Infertility, Wellbeing and Fitness advocate 🦋MRKH Storyteller
Chiara Bagliani
@chiarabg94
Isabelle Garnett
@isabelle241212
Understanding not prejudice. Reasonable adjustments not tick boxes. #HomesNotHospitals. Difference always cool. Parent. PG Dip Autism. 🐶 🇫🇷 🇬🇧 🇪🇺 🌍
Lisa Timoney/Kate Storey/Naomi Williams
@ltimoneywrites
Author with 3 names. Rep’d by Laura Williams @GreeneandHeaton Book Club fic - Kate Storey, Family Dramas - Lisa Timoney, Psych Thrillers - Naomi Williams
Gabriele Lignani
@gabrilignani
Professor of Translational Neuroscience at UCL developing innovative gene therapy treatments for intractable neurological diseases
Mary Post
@zmmrspost
Masa Malenica
@malenicamasa96
CareLeaversApp
@careleaversapp
Helping local authorities and other organisations provide help and support for young people leaving care. From @focusgov.
Heidi Grabenstatter
@patientintv
RDCA-DAP Scientific Director @CPathInstitute, patient advocate, neuroscientist, and proud mom. Opinions are my own.
The Care Leaders
@thecareleaders
🔈We are Lived Experience Leaders who provide training, keynotes and consultancy that transform children’s services. 🎙 Podcast - tinyurl.com/2xxp7svz
Andy Smith
@andydsmith7
Director @SmashLifeUK1 / Mentor / Speaker/ Trainer. Proud Husband / Dad. I suffered abuse in care BUT that is NOT going to define me! 😀 #CEP
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Amy Stuart
@amyjstu
Mum of two. Widowed at 40 but determined to live each day as it comes xx
Lucy Townsend
@lucytow
Chief Executive Officer, Wiltshire Council.