AMRC

@amrc

The membership organisation of leading medical and health research charities in the UK. Tweets by our team.

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Eve Sariyiannidou 🌐⚖️

@eve_sariy

Lawyer & linguist. Lover of #politics, the #classics, international #literature and #martialarts.

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Anna Fry

@anna_fry

Strategic Evidence Manager at Cancer Research UK

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Madeleine Meynell #IAmThe31

@madmeynell

Married, mother to two almost grownup children. Juggling family life and metastatic breast cancer. Member of METUPUK. Patient advocate, activist, campaigner.

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Linda von Neree

@linniesvenska

Professional in and passionate about Patient and Public Involvement in health care research. Working at University College London (UCL). Views are mine.

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Pancreatic Cancer UK

@pancreaticcanuk

People with pancreatic cancer deserve more than hope. Registered charity in England, Wales & Scotland.

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Matt Sydes

@mattsydes

▶ Head of Data-Driven Clinical Trials at NHS England ▶ Hon Professor at UCL ▶ Better trials = better health outcomes ▶ Also posting @mattsydes.bsky.social

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WHF Events

@whfevents

Informative and impartial health policy seminars from the Westminster Health Forum #WHFEvents Retweets ≠ Endorsement

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PRIMIS

@primisatuon

The first-choice source of highly skilled, effective primary care health informatics support to academia, the health service, charities and industry in the UK

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Richéal M. Burns

@richeal101

-Lecturer in Health Information Technology, ATU Sligo/Associate Director, Health and Biomedical Research Centre (@healsrc). IBD advocate. Views are my own!

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Jessica Pearce

@jess_pearce_

NIHR Doctoral Research Fellow + Medical Oncology Registrar. Interest in frailty. Also 🪴🏃‍♀️🚴‍♀️

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William Viney

@willviney

Writer and researcher @DurhamIMH & @the_BSR || 📚 Twinkind (2023) Figure (2022) Twins (2021) Waste (2014)

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Kat Southwell (nee Lee)

@katkinlee

Former IT & data geek, now @metupukorg Patient Advocate, trying to navigate living while dying #inflammatoryBreastCancer

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Trisha Greenhalgh

@trishgreenhalgh

On the other place now. @trishgreenhalgh.bsky.social

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Aidan Peppin

@aidanpeppin

EU & UK policy @Cohere. Formerly @adalovelaceinst, Milltown Partners, @WellcomeTrust

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Bec Hanley

@bechanley1

Facilitator, Shared Learning Group on Involvement, in partnership with Derek Stewart for becandderek.co.uk, whale watcher and cake baker

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Bella Boole

@bella88boole

daughter, mother. An avid travel enthusiast, golf, diving, wine..., loyal to charity, dedicated to improving infrastructure in impoverished areas in Africa, the

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Liz Perraudin

@lizperraudin

Clinical Research & Data Policy @AMRC. Previously @VersusArthritis & @DiabetesUK Poirot & Sheffield enthusiast - nowt better. All views my own etc. She/her

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DaveChuter@OGcancersupport

@cancerog

Independent Patient Advocate. Independent Cancer Patients Voice.

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NIHR Involvement

@nihrinvolvement

We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research

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Rachel Eyre

@drracheleyre

Breast Cancer Research Scientist turned Scientific Programme Manager. Mum of 3 (including twins). Trying to fight the patriarchy. Manchester, UK

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🕷 Four Jabs Janet 💙💙💙

@janet9998

〓〓 Cornish émigrée ranting: #WHUFC⚒ #BreastCancer #TheArchers. She/her. Find me on blues*y 🦋. Omnia Feminae Aequissimae 💪. Два слова

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Jo Taylor

@abcdiagnosis

Founder of After Breast Cancer Diagnosis & living with secondaryBC, #breastreconstruction, signposting, support #patientadvocate #blogger, #campaigner #activist

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Gildas

@g_hoffnung

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Ngawai

@ngawai_n

Passionate about Patient & Public Involvement | Women’s Health & Research | QMUL Hon Fellow | #BRIDGE4WomensHealth #EpiSafe @elly_charity @Katies_Team

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Lisa Victoria

@lisa_victoria7

Life will always meet the most beautiful scenery in the deepest despair.

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Tassia Haines

@tassiahaines

Cocktail slinging, Art doer, ziplining horserider before Secondary BC at 28, so that sucks... Remaining positive but realistic ☝️💕

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Dr Sarah Jasim

@chatty_sarah

@CAPE_acuk @LDN_gov @LondonRaPP policy fellow @arc_nt @CPEC_LSE @ucl_dahr senior research fellow #TheLostVoices @londonpostdocs @methodical_res

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Prof Nazanin Derakshan

@profnderakshan

Neurocognitive pathways governing resilience in anxiety and depression and breast cancer survivorship. Founder of BRiC briccentre.co.uk

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Abhishek Mahajan

@amcancerimaging

@CCCNHS @livHeadandNeck @LivUni @RCRadiologists #AssoEditor @frontoncology @FrontNuclearMed @FrontRadiology #HNOnc #NeuroOnc #ThoracicOnc #AI #TAMO 🏳️‍🌈

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Prof Helen Coleman

@helencolemanqub

Professor of Cancer Epidemiology @QUBelfast @CPH_QUB research oesophageal, bowel & other GI cancer risk, screening & survival. @CR_UK Career Establishment Award

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Fudge

@farizeh12

Clinical Research Fellow @IReC_RM @RoyalMarsden | Global Surgery Advocate 🌎 | ENT Registrar

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@useMYdata

@usemydata

The only independent UK movement of patients, relatives and carers focussed on the use of patient data to save lives and improve outcomes

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Health Data Research UK (HDR UK)

@hdr_uk

Health Data Research UK (HDR UK) is an independent charity working to accelerate trustworthy data use to enable discoveries that improve people’s lives.

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Understanding Patient Data

@patient_data

Research, advocacy and communication to make the way patient data is used more trustworthy.

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Nicola Perrin

@nmrperrin

CEO @amrc supporting medical research charities Board member @GenomicsEngland @uk_biobank Previously @wellcome_trust @Patient_data @nuffbioethics

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DARE UK

@dare_uk1

We’re on a mission to improve lives by enabling better, faster, and more trustworthy sensitive data research in the UK.

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NBOCA

@nboca_natcan

National Bowel Cancer Audit. Measuring the quality of care and outcomes of patients with bowel cancer in England and Wales.

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Bowel Cancer Improvement Programme

@ycr_bcip

Yorkshire Cancer Research funded programme aiming to understand the variation in bowel cancer management and outcomes for patients in Yorkshire & the Humber.

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Toosharet

@toosharet2yrq

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Shotirr

@shotirrqzqh

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Thoysousm

@thoysousmtr1d

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PxP

@pxphub

👉For Patients, By Patients 👈 The PxP initiative brings together resources for the patient engagement community in health research.

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HDR UK Midlands

@hdrmidlands

Improving health through uniting the healthcare and data science communities across the Midlands

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Inclusive

@inclusivegrid

Inclusive (by Research Grid) is a complete solution for community engagement.

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Rona Inniss

@innissrona

Clinical Nurse Specialist @GSTTnhs Instagram: innissrona

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Adam Boulton

@adamboulton17

#NIHR Doctoral Research Fellow with @EPPiC_Warwick Undertaking a PhD in resuscitation. Anaesthetics and intensive care registrar. @TRICNetwork co-chair.

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Grace Browne

@gracefbrowne

journalist writing about science, health, ethics and medicine. previously @WIRED. no that's not me in the header but i wish it was @gracefbrowne.bsky.social

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Caroline Huxley

@carolinehuxley_

Leading the cancer research strategy @GOSHCharity to drive progress for children + young people Prev. @CR_UK & @ECMC_UK for 5 years

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PPIE for better statistical methodology research

@stats_ppie

Biostatistics PPIE Interest Group. Follow us for tips & tricks for doing meaningful PPIE to inform statistical methodology research

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Stefanie Connoly

@stefconnoly

Mum to 2 boys and dog lover. Long walks & cake make me happy. Diagnosed with +++ breast cancer Dec 2021. Now cancer free and hoping it stays that way 🤞🏻

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Tregsnet

@tregsnet

Niks eigenlijk

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Betul Bay

@hopps_uob

Child cancer pain Researcher in @UniBham_Nursing Alumni in @KingsCollegeLon birmingham.ac.uk/schools/nursin…

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Jo

@jo92jo

Hairdresser and mum of boys. Metastatic breast cancer fighter. Determined to be that miracle. Wig maker 💙 #stage4needsmore #fightingtobeheard

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cancer.je

@cancerdotje

Your resource hub for cancer services, & related services, in Jersey, C.I.. Aiming to help you find what you need when you need it. Views are Lorna’s.

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Global Initiative for pwLC Data Privacy

@pwlcdataprivacy

Global Collaborative efforts towards ensuring patient data privacy of highest standards for #pwLC #pwME. Part of @PuchoDigiHealth

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Kiticatcath

@kitikatcath

Shwmae fy'n hoffi all things Welsh, Friends and family. Coffee and the World ❤️ views are totally my own!

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Ashley Akbari

@ashleyakbari

Professor (Population Data Science Research), @PopDataSci_SU @SAILDatabank @SwanseaUni @ADR_Wales @HDR_UK & others. Variety interests/research views are my own.

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🏴🇧🇪 CocotteMinute🐞O𝑢𝑣𝑟𝑒𝑧 𝑙𝑒𝑠 𝑦𝑒𝑢𝑥

@cocotteminute12

🐞 ✊ 🔍 🐞 𝑆𝑖 𝑣𝑜𝑢𝑠 𝑛𝑒 𝑣𝑜𝑢𝑠 𝑑𝑟𝑒𝑠𝑠𝑒𝑧 𝑝𝑎𝑠 𝑝𝑜𝑢𝑟 𝑢𝑛𝑒 𝑐𝑎𝑢𝑠𝑒, 𝑣𝑜𝑢𝑠 𝑝𝑙𝑖𝑒𝑟𝑒𝑧 𝑙'𝑒́𝑐ℎ𝑖𝑛𝑒 𝑡𝑜𝑢𝑡𝑒 𝑣𝑜𝑡𝑟𝑒 𝑣𝑖𝑒.

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Equality and Social Justice Committee

@seneddequality

The latest from the Equality and Social Justice Committee of @SeneddWales. Yn Gymraeg @SeneddCydradd

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Nicole Mather

@nicolematherls

Partner, Life Sci lead, HLS Data & AI, IBM Consulting; NED Cell & Gene Therapy Catapult & Wellcome Sanger GRL ; ex Director OLS, UK. [email protected]

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Verónica Blanco Gutiérrez

@vero_bg_

Midwife/NHSCEP8/EPSRC CDT in Digital Health&Care/Feminist @UoBrisDigHealth @Ox_wrh #PerinatalHealth #HCI #Inequalities #HealthEquity #SDOH #AIdrivenCDSS

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Roger Greer

@rogergreerrg1

Assoc Director @PLMRHealthcomms | Group Head NI @PLMRLtd | interim Director, Gov Affairs @UK_ABHI | Prev @NHSDigital formerly policy, even more formerly politco

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Kate Wicks

@drkwicks

IG Manager @UoMPankhurst. Likes data and cheese. Parent, Guider @ChinleyGuides, part-time 👨🏻‍🦽. Opinions mine.

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