"But You Don't Look Sick." (@butudontlooksck) 's Twitter Profile
"But You Don't Look Sick."

@butudontlooksck

#butyoudontlooksick started out telling Melody’s story living rare diseases. Now #unfiltered community. ⬇️Managed by Anna & Nika⬇️

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linkhttps://beacons.ai/butyoudontlooksickofficial calendar_today07-01-2020 19:17:38

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Ru 🌸♿️ (she/they) 🎀 (@rollwithru) 's Twitter Profile Photo

why do disabled people have to fight so hard for their own healthcare against the people who’s entire careers exist to supposedly help us

"But You Don't Look Sick." (@butudontlooksck) 's Twitter Profile Photo

Spring time in the northern hemisphere means allergy season 🤧 allergies on top of the everyday bleh is not exactly fun so good luck out there guys 🌸 -Anna

"But You Don't Look Sick." (@butudontlooksck) 's Twitter Profile Photo

Behavior changes post-diagnosis means we used to experience that behavior when we were alone and desperately tried to hide it. Post diagnosis, we have the vocabulary to describe what we are experiencing! This goes for lots of chronic and/or invisible conditions! -Anna

"But You Don't Look Sick." (@butudontlooksck) 's Twitter Profile Photo

It’s super validating when others can relate to feeling like death while receiving treatment. So here is your reminder: YOU ARE NOT ALONE! -Anna

Gilbert, Arizona (@gilbertyourtown) 's Twitter Profile Photo

The Gilbert Water Tower will be lit black and white tonight through Friday, May 6th for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. 🖤🤍 This lighting request was submitted by The Ehlers-Danlos Society. Learn more ➡️ glbrt.is/LightUpGilbert

The Gilbert Water Tower will be lit black and white tonight through Friday, May 6th for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. 🖤🤍

This lighting request was submitted by <a href="/TheEDSociety/">The Ehlers-Danlos Society</a>.

Learn more ➡️ glbrt.is/LightUpGilbert
"But You Don't Look Sick." (@butudontlooksck) 's Twitter Profile Photo

“Have you heard of this super rare version of the disease you have?” No, but I probably have that version because I tend to have that effect on diseases. Anyone else? 😂 -Anna

"But You Don't Look Sick." (@butudontlooksck) 's Twitter Profile Photo

Online Auction for BYDLS now live! Join us in fundraising to build care packages for AZ HonorHealth patients and nurses! Over 75 items to bid on including Hall of Fame items, Trips, Golf and more! 32auctions.com/BYDLS

Online Auction for BYDLS now live!

Join us in fundraising to build care packages for AZ HonorHealth patients and nurses!

Over 75 items to bid on including Hall of Fame items, Trips, Golf and more!

32auctions.com/BYDLS
Hannah Diviney (@hannah_diviney) 's Twitter Profile Photo

Hey LIZZO my disability Cerebral Palsy is literally classified as Spastic Diplegia (where spasticity refers to unending painful tightness in my legs) your new song makes me pretty angry + sad. ‘Spaz’ doesn’t mean freaked out or crazy. It’s an ableist slur. It’s 2022. Do better.