It's hard to CBT and breath away your immune dysregulation and endothial injury, Huh?! Honestly, Shaney Wright You're always on point. The vast and rapidly accumulating evidence for the biology of Long Cövid is overwhelming! The science is proving politically inconvenient😖

National Geographic highlight the rising tide of #POTS post pandemic and the inadequate understanding of management for this condition. ⁦Mark Butler MP⁩ nationalgeographic.com/premium/articl…

Today our #LongCOVID study drew to a close. 150 amazing people who gave up their energy and time and trusted us. 🙏🏻 to @CelineGallaghe2 and Gemma Wilson ADARC researchers who gave so much time to help. #POTS is prevalent in #PASC !

🎉We did it! Australia has joined global movement of citizen advocate long cvd billboards on rotation on huge high vis site in Adelaide peak hr this week noting Mark Butler MP’s failure to act on LC/implement inquiry rec’s We hope it’s just start of ongoing nat PH campaign

AUS govt loves to kick the can down the road largely ignoring recommendations of its own Inquiry hoping they won't have to worry about the long term implications. But long COVID is impacting & hurting people NOW. Read the Long COVID sufferers statement on this shameful response👇

After contacting the Australian sponsor for Novavax, it appears the TGA’s questions are being answered, and it may be April 2024 before the updated Novavax XBB1.5 vaccine may be available, if approved.

Dr Karl ABC Science Dr Karl your next interview should be with Marie-Claire Seeley whose PHD is on long Covid and POTS / dysautonomia (which impacts 75% of long Covid ppl).

ABC Science Marie-Claire Seeley Given Prof Faux didn’t cover dysautonomia in your discussion, I think this would round it out

I’m thrilled to have been awarded my PhD today after what feels like a whirlwind three and a half years of study. Thank you to my awesome supervision team. Dennis H Lau @CelineGallaghe2 and Amanda Page. ADARC #POTS #LONGCOVID

An important piece on a number of fronts incl. under diagnosis, frequency, link to #LongCovid, & that it’s poorly recognised that the symptoms of POTS are treatable. Thanks Aisha Dow

Pleased to share my #POTS story with Age/SMH to highlight how misdiagnosis limits access to symptomatic help. The difference between me being housebound or not, able to work or not, etc. The key medication that gets me out of the house costs $3,000 pa bc not PBS listed.

Another excellent piece on a debilitating, greatly under appreciated, post viral consequence. On the rise b/c of #longCOVID. Thanks to all involved. abc.net.au/news/2024-08-2…

Please consider reaching out to Novavax and sharing this letter template, both on Twitter & other platforms, & with groups & interested individuals The more our voices unite, the louder & more powerful they become This is far too important not to put up a hell of a fight 💪

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