Larissa Kerecuk
@bch_rare
Proud to be Rare Disease Lead at BCH developing 1st Children's Rare Disease Centre. Consultant Nephrologist, passionate about holistic patient-centred care
ID: 3377034905
http://www.bch.org.uk/starappeal 15-07-2015 08:32:46
12,12K Tweet
2,2K Followers
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Lisa Alderson
@lisaa
Co-Founder of @GenomeMed and Clarified Precision Med. EIR @IlluminaVenture. Board member | Advisor | Serial #entrepreneur. Global speaker on #Genomics.
Marie
@marieplatts1
๐ณ๏ธโ๐Wife to Michelle, Mummy to two amazing little boys. Social Worker & SP, Passionate about Parent and childrenโs Mental Health.Letโs talk about it โค๏ธ
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
MELISSA
@melibeli77
Mother to 3 beautiful children. I live day by day trying not to think about tomorrow because tomorrow is never promised to us.
holly mckenna
@hollymckenna__
comms & media for @Barnardos & @coopuk.
Foundation for Prader Willi Research UK
@fpwruk
The mission of FPWR UK is to eliminate the challenges of Prader-Willi through the advancement of research #PWS #praderwilli
Bham Children's Hosp ๐
@bham_childrens
Birmingham Children's Hospital - proud to be part of Birmingham Women's & Children's NHS Foundation Trust. Hospital & charity (Reg no. 1160875) official account
Esakimuthuraja
@esaki_raja
#Engineer by profession #Interest - Football, Politics,Automotive #Tamil #Chennai
Ganesh Mamodaly
@ganeshmamodaly
PharmD | President of @CureMVID, promoting scientific research against Microvillus Inclusions Disease (MVID)
Maura Mccrystal
@maura5boys
Mum to 5 awesome boys!! One with special needs #RYRI myopathy & #HECW2 #raredisease #SyndromeWithoutAName
kayleigh brookes
@kay4u03
Lottie Bryon-Edmond
@chipbeblog
#Teen #Sailing 700 miles#Challenge#Transplant warrior#Honorary Director Torbay Hospital#Pride of South Devon Winner#Superkind #SaturdayNightTakeaway winner
Angela Holliday ๐ฑ๐ ๐ ๐บ๐ฆ ๐ป
@hollia11
Be Brave Be Kind Be Awesome Be You Proud to work for the NHS
Ally Davies
@allyrd31
Head of Service @mlcsuimprove @mlcsu & independent Project Mgr @pipforpaeds - passionate about all thing QI, networks, collaboration, facilitation & coaching
Mary Hobin
@maryhobin
Love life. All views are my own.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
ACGS
@acgs_news
Association for Clinical Genomic Science. Follow us to hear the latest ACGS updates.
Yvonne
@yvonneheward
Twitching nurse and mother of boys
Hannah Scott
@hannahm_scott20
Research assistant @QMUL | PhD candidate @CSI_KCL
Angela Renwick
@angebombange1
FMO3 Metabolic Malodor (mostly sulfides + TMAU ?)
@systemicbo
Metabolic body malodor FMO3 malodor = 99%? 5%+ 'at risk' ? TMAU is severe type ? most = sulfides malodor Likely cures allmylinks.com/fmo3malodor link to tests
Margaret Maye ๐
@margaret_maye
Mum of two adult children #howdidthathappen!, wife, friend and Palliative Care Specialist Nurse. All views my own
SWAN Australia
@swanaus
SWAN Australia provides information and support to families caring for a child with an undiagnosed or rare genetic condition.
Sean Monaghan
@drseanmon
#paedsrocks/PEM consultant @StaffsChildrens. Adolescenty. Safety-II stan. Into teaching and social determinants of health. Northern. Views my own. He/him.
Navida
@navidaah
Peace be to you, we seek not the ignorant. May deceitful lips be rendered dumb.
Alex Borg
@alexanderdborg
NHS worker. Alumni of NHS graduate management scheme. Liverpool fan. ๐ฒ๐น๐ช๐บ he/him
MedicsforRareDisease
@medicsforrare
Excellence in rare disease medical training
Mito Research
@mitoresearch
The latest news from the Wellcome Centre for Mitochondrial Research at Newcastle University. justgiving.com/campaign/mitocโฆ
Bham Women's Hosp ๐
@bwh_nhs
Birmingham Women's Hospital. Proud to be part of Birmingham Women's and Children's NHS Foundation Trust. Hospital & charity (Reg no. 1160875) official account
Transformation Team
@transform_team_
Transformation Team for Birmingham Women's and Children's NHS Foundation Trust.
Clare Atkinson ๐ she/her
@clareaky74
Proud to be Staff Ambassador at Birmingham Womens and Children's NHS Trust supporting staff to raise concerns. Passionate about Staff Wellbeing ๐ourNHS
Gianmarco Lugli
@giammylugli
Nephrologist at University of Brescia, Italy. Epidemiology, Rare Diseases, Clinical Trials. Swimmer, chess player. @CKJsocial Editorial Fellow
Sally Dudley
@sallydudley12
NHS People (HR/OD) Consultant. Mom to two beautiful girls. Love holidays, having fun and living life to the full!!
Nigel Green - https://t.co/TQLpA2PbCX
@nigelgreen39
Carpe Diem .... Board Trustee and Chair of Risk and Audit for Brunel Academies Trust & Govenor Commonweal School, Co-Founder of Myhre Syndrome charity
Ash
@drkidneyash
Consultant Paediatric Nephrologist @Leeds_Childrens ๐ซ @SimWardWolvo Educator ๐น@RCPCHtweets Baking Officer ๐ฐ Gym/Spin/Cyclist๐ด๐ฝโโ๏ธVegetarian ๐ฑWine๐ทGeek ๐ค
Cat Williamson
@drcatbt
Longstanding West Mids paeds trainee. Interests in HDU, med ed (especially simulation) and staff welfare. mother to 3. all views my own. she/her
UHB Critical Care and Outreach
@uhbcriticalcare
This is the account of @uhbtrust Critical Care and Outreach team; covering QEHB, Heartlands, Good Hope and Solihull. Account monitored 9am-5pm, Mon-Fri.
admedicum
@admedicum
We are specialists in patient engagement and patient access in research, development and access to treatment, medical devices and services.
Dana Oliver
@danaoli03761814
RN (Child)/ PG Cert in Leadership/ MSc in Nursing. Head of Nursing for Surgery at Birmingham Women's and Children's Hospital ๐
ASN Kidney360
@asnkidney360
This account will no longer actively post. Follow @asnpublications for the latest from ASN publications, including JASN, CJASN, Kidney360, and Kidney News.
David Henshall
@davidhenshall_
๐ฉบ IMT3 (MedReg) Doctor @MTWnhs, Hon. Clinical Fellow @EdinburghUni ๐ง Interests minimally restricted... ๐ฅ #collaborativeresearch @NANSIG1
anita
@anita62877112
Rareminds
@raremindsuk
Specialised mental health and wellbeing services for the rare disease community. bit.ly/rarementalhealโฆ
Kelly du Plessis
@kellyrare
A fierce #patientadvocate. Someone told me to not bite off more than I can chew. I told them I would rather choke on greatness than nibble on mediocrity.
salar
@salarkahaei1372
PhD Candidate in Medical Genetics at Mums
NCL_RareDisease
@ncl_raredisease
@UniofNewcastle Centre of Excellence for Rare Disease works with @NewcastleHosps @NHIPartners & more, to constitute a 'Newcastle RD' community(Tweets V.Hedley)
Anna Dickinson
@anna_dickins0n
Head of Strategy to @nicolablackwood | Head of Office to @ara_darzi | Ex @ukonward @Policy_Projects | Expect Yes, Minister & The West Wing quotes | Views my own
SPIRE Network
@spireconcept
SPIRE-Severe neurological imPairment in IREland; examining prevalence, healthcare utilisation and parental experience. Supported by CHI Research & Innovation
Black Country Support Services
@support_black
Twitter Account created for Supporting the Services located in the Black Country Areas
Rarity Life
@raritylifemag
A new online publication that offers those affected by rare disease, disability & cancer the opportunity to unify & share our collective experience.
AQ-Trials
@aqtrials
A transfomative operating platform for clinical trials at research sites( SaaS) : Digitally Empowering Researchers To Deliver Research
Abbie Hill
@abbieehillx
NH | DH | M&R ๐ซถ๐ป Yeah you know what you did, that much I do know. Would you keep the secret 'till the funeral?
Amy Simpson
@amysimpsonipc
James
@jcthefundraiser
Fundraising Officer at @Bham_Childrens & @BWH_NHS
RareDiseasesGreece
@rarediseasesgr
"#RareDiseases Greece" is the Greek RD Federation dedicated to improving the quality of life of all those affected by rare disorders | #ฮฃฯฮฌฮฝฮนฮตฯฮ ฮฑฮธฮฎฯฮตฮนฯ #ฮฅฮณฮตฮฏฮฑ
2fsfh1
@2fsfh1
Luna
@blankspace72167
Luna
@emmaisabel19245
Mayor of Amersham
@mayorofamersham
Official account of Mayor of Amersham, Cllr Dominic Pinkney. The Mayorโs focus for the year is VOLUNTEERING & is keen to support, promote & celebrate volunteers
Seartoa
@seartoatnrkwu
KangaHealth
@kangahealth
Full service #digital and #CX agency that helps healthcare companies with digital transformation. Follow at bsky.app/profile/kangahโฆ
Chen~
@tertechee79ust
Those who love to laugh will have good luck
Psico oncologia
@psiconcologo
Paulio ๐บ๐ฆ
@paul_whitt1
Proud Dad. Yam Yam and Barca fan (2nd best team in the world). All views are my own.
BWC NHS Trust
@bwc_nhs
The official account for Birmingham Women's and Children's NHS Foundation Trust, bringing together @BWH_NHS and @Bham_Childrens
BCH Discharge, Rare and Complex Disease Team
@bchcmicteam
Discharge and Rare Complex Disease Service Supporting families from hospital to home at Birmingham Children's Tweets by @BCHCMICTEAM
Barney Scholefield ๐ ๐
@barneyuob
#Pedsicu Dr in ๐จ๐ฆ โ23 #CPR & #prognosis research, Dir of Neurocrit Care, @SickkidsCCM, Chair Paed Task Force @ilcor_org; Family man, +ve thinker, own thoughts
LOG Pharma Packaging
@logpharma
LOG Pharma Primary Packaging is a leading global provider of innovative and sustainable #packaging solutions for the #pharmaceutical industry.
Adrian Shields
@immunologydoc
Associate Professor and Hon Consultant Immunologist - Clinical Immunology Service @ImmunologyUoB - interested in PID/SID, vaccines, genomics, immunodiagnostics.
Firdaus Zulkifli
@firdauzulkifli
Aspiring NCTS โข 10์ ๋ง์ ์ 10์