ataxiaawarenessgroup
@ataxiaawarenes1
The purpose of this group is to educate and inform others of news related to Ataxia.
ID: 1013755097682194432
02-07-2018 12:03:44
157 Tweet
143 Followers
37 Following
Toby Kinney
@tobykdotcom
Rogue software engineer, IBM ECM/Azure/AWS at @Driven_Inc & CMS @Drupal @Wordpress linktr.ee/tobyk tobykinney.com instagram.com/tobykdotcom toby.camera
nicola cargill
@ncargill73
Purchase & Sales Ledger Team Leader at Milford Haven Port Authority(32 years!). Partner suffers from paraneoplastic cerebellar degeneration 😒 views are my own.
Ataxia UK
@ataxiauk
The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias.
National Ataxia Foundation
@naf_ataxia
Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.
Dawn Morgan
@dawniemorgan
Hometown - St. Dogmaels, Pembs. I now live in the middle of nowhere in Wales with my Partner Alan who has Cerebellar Ataxia. Ex chocolatier
Kyle Bryant
@kyleabryant
@TheAtaxian, Speaker, Director of @rideATAXIA for @CureFA_org. Author of #ShiftingIntoHighGear. Co-host @2DDPodcast. #CureFA #RareDisease
Schmahmann Lab
@schmahmannlab
Jeremy D. Schmahmann, MD Massachusetts General Hospital Ataxia Center & Lab for Neuroanatomy and Cerebellar Neurobiology - Supported by the MINDlink Foundation
rideATAXIA
@rideataxia
Bike ride fundraiser for @CureFA_org. #CureFA
Alan Thomas
@alanroygbiv
Founder of @Ataxia_and_Me to support #Ataxia (Rare Neuro. condition) from the #patient view. PASSIONATE about Inclusion for #disabled citizens - views are mine
Ataxie Ataxia Canada
@ataxiecanada
#Ataxie Canada - #Ataxia Canada - Fondation Claude St-Jean Foundation
FA Research Alliance
@curefa_org
FARA's mission is to marshal and focus the resources and relationships needed to treat & cure Friedreich's ataxia (FA). #CureFA
SanfordCoRDS
@sanfordcords
CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry - Enroll today and share your #data! bit.ly/2hrrjlS
ataxia.scot
@ataxiascot
Step-free #DIYWalkingTours for all 💚
Brent Fogel
@fogellab
Using genomics to study neurodegenerative diseases & neurodevelopmental disorders to improve diagnosis & treatment. Focus on cerebellar ataxia.
John Mauro ♿️
@ataxiafacts
Board of Directors @NAF_Ataxia, The National Ataxia Foundation.
Ami Ireland ♿
@amihireland
Multi-Niche Blogger - Wife & Mummy - Marvel & Loki/Tom Hiddleston - Freelance Writer & Virtual Assistant - Contact: [email protected] - She/Her
MeltingIceCubes Health
@meltingicecubes
🔎Research health conditions📽Lived experience content 📣Share your story 💜Connect with others😀 Live Better ▶️Create support groups 🥰 Register; we need you🙏
ARSACS Ataxie Charlevoix-Saguenay
@soniagobe
CoFounder of the Ataxia of Charlevoix-Saguenay Foundation and advocate for Ataxia.
Nick Adkins
@nickisnpdx
kilt wearing pink furry bike riding healthcare MBA. 🌍💖😊 the world is full of good! when u believe it, u see it. keep doing that! ✨ #pinksocks
Flutters and Strutters (Formerly FibroFlutters)
@fibroflutters
Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters) Patient Advocacy Organisation Reg. No. 14065901
Candace
@rarecandace
“Weaponized Patient Advocacy” 😎 Platelet assassin. On a soapbox for Specialty Pharmacy and drug development. @ITPresearch 🇺🇸🇮🇱 #RareNOTless #FIXIT
Christine Collins MBE
@christinezoo
Chair RQIA. NI_RDP volunteer; former chair at PCC and Commissioner @NIHRC. No good at Twitter. Views are my own, or maybe the dogs'.
Jennifer Beecham
@jennbeecham
Assc. Dir. Blavatnik Fund (@yale_ventures) | Early stage life sciences development
Lisa Alcock
@lisa_hummovsci
Senior Researcher @BAM_Research @UniofNewcastle || Gait Lead @ Clinical Ageing Research Unit @NIHR_Newc_CRF || #gait #falls #ageing #neurodegeneration
Cure Ataxia Now
@cureataxianow
We are about changing lives. Ataxia is a hard disease to live with...with no cure. We draw strength from each other!
Clare Hui
@clare_tsu
A SCA3 patient's daughter
Maria-Jesus Sobrido
@mjsobrido
Neurology, genomics, education, bioethics. Aspiring singer & guitar player.
Claudia Maltais
@claudia09274971
ARSACS patient.
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Xavier Guell
@xavier_guell
Movement disorders fellow at NYU; former Neurology resident at Harvard Medical School, research fellow at MIT. Read my science: xaviergp.github.io/papers/
AtaxiasARG
@ataxiasarg
🇦🇷Ataxias Argentina #Ataxia #MovementDisorders #AtaxiaAwareness #Brain #Cerebro #Neurology #Neurologia #rarediseases #livingwithataxia #Research 👩🔬👨🔬
Lisa Bunn PhD
@lisabunnpt
Assoc Prof Neuro Rehab and Assoc Head of School for Postgraduate Studies at University of Plymouth. Interests: Research-based practice & education, equality.
Ataxia and Me CIO 1184030
@ataxia_and_me
#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Two Disabled Dudes
@2ddpodcast
@kyleabryant and @seanbaumstark have a rare disease. This podcast is all about cultivating the courage to live beyond any circumstance and laugh along the way.
AtaxiaSheffield
@sheffieldataxia
We are a group of people with different types of Ataxia, such as Friedreich's, Spinocerebellar, Gluten Ataxia & many more; plus PAs, carers & family members.
Little Polar Bear Co
@lilpolarbearco
Just a grad student who loves her goofball and sews on the side