Coverage of yesterday's session of Maeve's inquest. Fiona Hamilton report reflects the absence of specialist help for people with ME, something the ME community have long been aware of. ow.ly/fYZc50SOc1F #MyalgicEncephalomyelitis #VerySevereME #MaeveInquest

Reports from The Guardian ITV News & @BBCnews. We are in awe of the courage, compassion, dignity and resolve that sarah Sean O'Neill have shown throughout this painful process. ow.ly/y52K50SPjrn ow.ly/qulQ50SPjrp ow.ly/HyF150SPjro #MaeveInquest

Article by Eleanor Hayward in ⁦The Times and The Sunday Times with Karen Hargrave co-founder of #ThereForME & appeal to ⁦Wes Streeting MP for at least £100m for research. Get involved here: ow.ly/rOmE50SSQzi ow.ly/WenA50SSQzh #MyalgicEncephalomyelitis #VerySevereME

Video of Karen Gordon filmed on 21 July at Conquest Hospital Hastings UK. Karen has very severe ME & needs to be able to access IV feeding at home. Please sign & share the petition to try to save Karen. ow.ly/9O2k50ST6Bt Michael Gordon #VerySevereME

This year, The @worldMEalliance, of which #MEAction is a member, join organizations across the globe to spotlight the urgent need for safer hospital care for individuals with Severe Myalgic Encephalomyelitis (ME). ow.ly/W6Bw50ST7LF #SevereMEDay #SevereME #MedEd #pwME

In honor of Severe ME Day, #MEAction is proud to share the Severe ME Artist Project 2024! We have two viewing options: - All the artwork including the written pieces here: meartistsproject.com - A video compilation: youtube.com/watch?v=Dq6vMU… #SevereMEday #SevereME #pwME

For #SevereMEDay2024, the medical education platform which hosts Dr Nina Muirhead's CPD module on ME, Learna's StudyPRN, is featuring severe ME as their 'question of the day', which includes a case study & questions👏 More info on Action for M.E.'s website: actionforme.org.uk/news/new-onlin…

#MyalgicEncephalomyelitis #VerySevereME #MaeveInquest #RememberMaeve #SevereME

#MyalgicEncephalomyelitis #VerySevereME #MaeveInquest #RememberMaeve

Thanks to Good Morning Britain for this piece with sarah & Dr Shepherd with Sarah Boothby saying lessons have been learnt for future treatment of #VerySevereME who can't eat by Royal Devon NHS. ow.ly/Y0YY50SYkEf #MyalgicEncephalomyelitis #MaeveInquest #RememberMaeve

Olympic rower and #ThereForME advocate, Oonagh Cousins, speaks about her experiences and the stigma people with ME/LC can often face to Eleanor Hayward in The Times and The Sunday Times. ow.ly/ju6E50SZ9J7 #MyalgicEncephalomyelitis #pwME #pwLC

An update and video from Karen Gordon. Please share and sign the petition. change.org/p/save-karen-g… #MyalgicEncephalomyelitis #VerySevereME

CONTENT WARNING Isla was only 18 years old when she died in May. She had been ill with ME since 6, later with POTS & MCAS. Her family say she faced disbelief & neglect from many professionals. Things have to change for ME patients #VerySevereME #POTS #MCAS Andrew Gwynne MP

Watch BBC Breakfast interviews Binita Kane, Dr William Weir, Karen Hargrave & Oonagh Cousins. 250,000 is quoted, our updated figure is 700,000. ow.ly/sGTk50T7lhL Who is #ThereForMe? Wes Streeting Andrew Gwynne MP Segment starts 1.15.30 ow.ly/rgOT50T7lhN

Can the ME Community help ME Foggy Dog get more signatures on this petition and get it trending during ME Awareness hour this evening? ow.ly/3yKp50TfbNS #MyalgicEncephalomyelitis #VerySevereME #SevereME