The theme for our meeting is ‘Therapeutic Strategies for Sickle Cell and Thalassaemia: Time to Consider A Multi-Modal & Personalised Approach’ in recognition of the changing landscape for the management of Haemoglobinopathies. #ascatconference #sicklecelldisease #thalassaemia

Trying to work on improving hydroxyurea adherence In an effort to identify barriers, we created this simple screening tool, sourced from a few places Any #adherence or #sicklecell experts with opinions or suggestions? Have a modified version for adults- tried to keep it simple

Updated more participants. Join us on Saturday 29th April at 7am est. Details on the previous twit.

Register for next week's @nih_nhlbi workshop on Reproductive Health in Women & Girls with #SCD: Gaps to Solutions! This program will focus on a lifespan approach to reproductive health & SCD and address questions related to pathophysiology and care. Visit: bit.ly/3oKZ2N0

#TeamASVI #Weareback 📢Session 5 for our ASVI Webinar Series is back this Saturday. 📢Join us this Saturday 27th May 2023 at 7 am. EST 📢Join us vis Zoom on 27th May 2023 us06web.zoom.us/j/84343833084?… #ASVI #Amplifysicklevoices #SickleCellAwareness #YourVoiceMatters

We are participating in this year's Inter- Company Relay (ICR), under the theme “Reignite your Health”. Date: 15th July 2023 Time: From 5:30am to 17 hours Venue: Heroes Stadium in Lusaka. #TeamZnsava #SickleCellDisease #SickleCellAwareness #Znsava linkedin.com/posts/znsava_t…

We work hard to improve care for people living with #sicklecell and this inappropriate use of money will not be tolerated. Don’t let these people misrepresent those of us needing appropriate federal $& to improve outcomes in #SCD #SickleCellAwareness beckersasc.com/asc-news/truis…

Great to see a BBC Health News Health Check on #SCD following the publication of our The Lancet Haematology Commission and #GBD recent estimates. bbc.co.uk/sounds/play/w3…

At 8 am PST on 7/14/23, join us for our Ask the Expert conversation on Respiratory Disease & #sicklecelldisease 🩸 Date: Friday, July 14, 2023 🩸 Time: 8:00 am PST 🩸 Register at 🔗 Tinyurl.com/asktheexpjul Our guest expert is Dr. Elizabeth Klings. #sicklecell #cme #cmecredit

#RareDisease demands attention - CSR panelists at IHW Council 7th CSR Health Impact Awards Kamal Narayan Omer

Want to share your latest work on #SCD? Submit an abstract for SCDAA's Annual #NationalConvention taking place October 11-14, 2023! Abstracts will be accepted until Monday, July 17th; submit today and learn more here: bit.ly/3DecXQ0 #SickleCell #Science

After a range of workshops and plenaries, the first day of the #EHALTF retreat has come to an end. Lighting the Flame inspires and supports medical students & trainees in furthering their careers in #hematology. Learn more: ehaedu.org/LTF2022

Akshat Jain MD MPH FRCP Cayenne Wellness SCANCA.INC Sickle Cell Advocacy & Mgt Initiative Sickle Cell Society CrimsonBow Sickle Cell Initiative Sickle Cell Disease Coalition Sickle Cell Warriors sicklecellnewsisfree! Toyin Adesola Salveo Therapeutics Memej99-SickleCellLifeOfMemej Sick Cells Sickle Cell Disease Association of America-MI @HeismyPeace83 SickleQueenT Her Sickled Journey Dr Dexter(CEO-SickleCellAwarenessFoundation) Yes, Dr. Rowley, will share the recording once it is available. It will also stream from the Cayenne Wellness Twitter account.

Incoming Amplify Sickle Cell Voices International Chairperson Dr Mary Akua Ampomah running this much needed awareness campaign at The University of Health and Allied Sciences in Ghana. Follow this link to know more. #SickleCellDisease #Amplifysicklevoices #YourVoiceMatters youtu.be/aip_cdQGOnc

Join Australian Sickle Cell Advocacy Inc (ASCA) for the 3rd Sickle Cell Conference on 4th November. Tickets here: eventbrite.com.au/e/asca-3rd-sic… This is a hybrid event. Warriors and Caregivers free. #SickleCellAwareness #SickleCellDisease #Australia #Conference #Event

#PRESS #RELEASE Australian Sickle Cell Advocacy Inc (ASCA) is proud to officially announce that The Medical Advisory Committee ( MSAC) has approved our application for the inclusion of Newborn Screening for Sickle Cell Disease in Australia. For more information on this link: lnkd.in/gKeQJqMn #SickleCell