Thank you to everyone who attended our 2024 SCD Policy Forum! Learn more about the event and watch session recordings here: bit.ly/3I5Zhc8

Thank you to everyone who attended our 2024 SCD Policy Forum! Learn more about the event and watch session recordings here: bit.ly/3I5Zhc8

Today is Day 2 of the SCD Policy Forum. Good luck meeting with your legislators and have fun. Remember, your story has power. Be sure to take pictures and tag us! #SCDPolicyForum #FundSickleCell #SickCells #SC3

Learn more about the forum here: bit.ly/3I5Zhc8

Today is Day 1 of the SCD Policy Forum. We start at 11AM ET to learn about the federal priorities for the sickle cell disease community and prepare for Day 2's Virtual Hill Day. Stay hydrated and see you soon! #SCDPolicyForum #FundSickleCell #SickCells #SC3

Happy Monday! We are pleased to announce a robust lineup of speakers for the 2024 SCD Policy Forum. See you tomorrow! #SCDPolicyForum #FundSickleCell #SickCells #SC3

Learn more about the forum: bit.ly/3I5Zhc8

The fourth federal priority will focus on the Cell and Gene Therapy Access Model.

Federal Ask #4 Encourage your state Medicaid Director to participate in the Cell and Gene Therapy econ Access Model.

Learn more at the following link bit.ly/3I5Zhc8

Our third federal priority will support SCD HRSA programs.
Federal ask #3 Appropriate S15 Million for Programs under the HRSA Sickle Cell Disease Treatment Act.

Learn more at the following link: bit.ly/3I5Zhc8

#scd #warriors #scd policyforum

Our second federal priority will support the CDC's Sickle Cell Disease Data collection program. Federal Ask #2 Appropriate S25 Million for the CDC Sickle Disease Data Collection Program. Learn more at the following link! bit.ly/3I5Zhc8

The SCD Policy Forum is right around the corner on March 19th & 20th!
Federal Ask #1 Co-Sponsor SCD Treatment Act or 2023 CH.R.3884 / S.18521
#SCD #SDPolicyForum #Warriors
Learn more and register to attend our event on March 19th at the following link bit.ly/3I5Zhc8

The deadline to register for the Policy Forum are dast approaching. Register by February 28th to receive a program book in the mail. And Register by March 8th to participate in the Virtual Hill Day on March 30th.

Register at the following link: bit.ly/3I5Zhc8

The deadline to register for the Policy Forum are dast approaching. Register by February 28th to receive a program book in the mail. And Register by March 8th to participate in the Virtual Hill Day on March 30th.

Register at the following link: bit.ly/3I5Zhc8

Ten years ago, the FDA held a public meeting on SCD. Since then, five new therapies have been approved. Register for the SCD Policy Forum in the link bit.ly/3I5Zhc8 and make an impact on SCD.

#policy #fda #policy forum #warriors #share yourstory #hearourvoices #scd

1. Register Today!! bit.ly/3I5Zhc8
Have you registered for the SCD Policy Forum Yet? T Here are some tips for meeting with your legislators for a successful meeting.
#scd #hillday #shareyourstory #warriors #policyforum #legislator #meetings

2.. Register Today!! bit.ly/3I5Zhc8
Have you registered for the SCD Policy Forum Yet? T Here are some tips for meeting with your legislators for a successful meeting.
#scd #hillday #shareyourstory #warriors #policyforum #legislator #meetings

Register today: bit.ly/3SObmc9
The SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.

This year, the SCD Policy Forum is taking place on March 19th & 20th

#scd #policy #legislation #virtualhillday

REGISTRATION IS NOW OPEN! The SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event.
Register at the following link: bit.ly/3tXuXNc

#sicklecelldisease #policy #advocacy #scdwarrior #legislation

Do you have a story to tell? Submit it today to be featured on our social media through our Faces of SCD Storytelling Program. Share your story at the following link: bit.ly/3hzwnSX
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#facesofscd #sicklecell #yourstory #storytelling #sicklecell caregiver #t

We're excited to announce our Ambassador Program keeps getting bigger and better!

JOIN THE PROGRAM here! bit.ly/3jL6CzA
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#sickcells #ambassador #advocacy #sicklecell #sicklecell disease #facesofscd #bethechange #policy #sicklecell matters #sicklecell strong.

In 2023, Sick Cells and Links2Equity conducted our Community Health Equity Research and Promotion (CHERP) Initiative. Our final report highlights the steps taken and results from our listening sessions. Read: bit.ly/3tLLvrJ

#healthequity #warriors #research #sicklecell

Sick Cells is taking time today to remember a great man and all those involved in the Civil Rights Movement.

#MLK #MLK Jr #civilrights #advocacy