My husband lost his ability to write, to speak, to eat, to walk, to sit, to stand, to sleep, to swallow, to shower, to use the bathroom, to lift or turn his head, to move his arms or legs, and finally to breathe. This is ALS. #alssucks #alsangels #als #iamals

My husband never let me go to sleep without telling me he loved me. Even when ALS took away his voice, I heard it from the Tobii … I even miss that computerized version of I love you.

If you ask me how I am doing, please be strong enough to hear the answer. It’s a loaded question.

What a way to start a Sunday morning! Brian Wallach Sandra Abrevaya Kelsie Snow Chris Snow you did a fantastic job, and you made me so proud. Thank you for giving us all hope that the rest of the world will finally start paying attention to #ALS

Watch this, share it and then join us. We need every voice we can get in this fight. ♥️ A huge thank you to CBS Sunday Morning 🌞 and @LeeCowanCBS for amplifying our voices. It matters. cbsnews.com/video/race-to-…

Just saw the dentist after a year and half. He said I’m grinding my teeth to a pulp …. I’m gonna blame this one on #ALS too.

ALS patients need access to therapies. Pass it on.

I love all the networks but for today if you are a CBS correspondent, anchor, editor or producer who follows me and are interested in doing a story about a local ALS warrior, send me a DM and we will make it happen. Thank you for having the courage to care.

Last night in my dreams my husband lovingly consoled me while I wailed on his shoulder over losing him.

I don’t know how but I’m approaching 90K followers. So I want to take this thread back to the beginning: my diagnosis. Why: awareness. 1 in 300 Americans will be diagnosed with ALS. The earlier it’s diagnosed, the more that can be done. Let’s begin.

Please help us live the lives we were meant to live. Our suffering can possibly end, but we need help. If ALS has ever touched your life, please Retweet and help make a change. #tuesdaymotivations #IAmEnough Senate Republicans Senate Democrats #EndALS #FDASayYestoNurOwn

Missing my husband so much these days. No substitute for talking over the days events with your other half… #ENDALS

Angelenos, join us this Friday or a *very* special in-person screening hosted by our dear EP Mark Duplass and none other than Award-winning Cinematographer/Director Joan Churchill. The best part? Our main man Ady Barkan will be there 🧡 RSVP now at [email protected]!

We showed up. We leaned in. We fought for good and justice. We believed in our innate ability to bring about change just like you taught us Barack Obama. And today we are humbled to be alive and on this amazing list. Here’s to building a better tomorrow. -Brian & Sandra

Thank you ⁦@levfacher⁩ and ⁦STAT⁩ for telling our story in this raw, poignant and beautiful piece. And yes, I am going to prove you wrong with the help of tens of thousands of friends at ⁦I AM ALS⁩. #NeverGiveUp statnews.com/2022/01/11/bri…

In-depth and interested piece from Sam Stein POLITICO. Even if you know the story of I AM ALS Brian Wallach and Sandra Abrevaya please take the time to read. DC may be broken, but there are glimmers of hope out there. politi.co/3fo8LB9

.U.S. FDA the #ALS community delivered you a petition to grant #NurOwn a transparent and informative AdCom three months ago. While we wait, people have died from this 100% fatal disease. Provide the flexibility & speed you promised for ALS. Schedule. The. AdCom.

HIND’S HALL. Once it’s up on streaming all proceeds to UNRWA.