ALS ๐Ÿ‡ฐ๐Ÿ‡ผ (@alsgulf) 's Twitter Profile
ALS ๐Ÿ‡ฐ๐Ÿ‡ผ

@alsgulf

Our goal is to improve pathways for experimental treatment for #ALS until theres a cure. APPROVE NUROWN #Nurown ุงู„ู„ู‡ู… ุงุดู ู…ุฑุถุงู†ุง ูˆ ู…ุฑุถู‰ ุงู„ู…ุณู„ู…ูŠู†

ID: 1297256445419950080

calendar_today22-08-2020 19:37:02

721 Tweet

119 Followers

85 Following

Chris Snow (@chrissnowcgy) 's Twitter Profile Photo

ALS was a death sentence for my father, uncles and cousin. Today is about honoring them. Today is equally about you who donated. You give us greater purpose, heighten our hope and form a community that supports and drives us every day. We are not done. cflam.es/3apn0o8

ALS was a death sentence for my father, uncles and cousin. Today is about honoring them. Today is equally about you who donated. You give us greater purpose, heighten our hope and form a community that supports and drives us every day. We are not done. cflam.es/3apn0o8
ALS ๐Ÿ‡ฐ๐Ÿ‡ผ (@alsgulf) 's Twitter Profile Photo

my wish: a cure for ALS. but until we get it, we need the approval of treatments that help us continue a little longer! we need time to live! we need NUROWN U.S. FDA C Lebovits BrainStorm Dr. Stephen M. Hahn #nurOwn #EndALS

Sherry Quisenberry (@sherryquis) 's Twitter Profile Photo

3 Top #ALS doctors disagree with FDA position on #NurOwn! All 3 saw REAL LIFE evidence in their own patients yet the FDA sits behind their desk denying us this treatment. Plz HELP President Donald J. Trump Dr. Jill Biden Joe Biden First Lady Melania Trump @WHCOS

ุงู„ู‚ุจุณ (@alqabas) 's Twitter Profile Photo

ุจุงุญุซุงู† ุฃู…ูŠุฑูƒูŠุงู† ูŠุชูˆุตู„ุงู† ู„ุชุฑูƒูŠุจุฉ ุทุจูŠุฉ ุชูุญุณู† ุตุญุฉ ุงู„ุฎู„ุงูŠุง ุงู„ุนุตุจูŠุฉ ู„ู…ุฑุถู‰ #ALS โ€ข ุงู„ู…ุฑูƒุจ ุงู„ุทุจูŠ ูŠุญู…ู„ ุงุณู… NU-9.. ูˆูŠู‚ู„ู„ ุงุฎุชู„ุงู„ ูˆุชูƒุชู„ #ุงู„ุจุฑูˆุชูŠู† ุฏุงุฎู„ ุงู„ุฎู„ูŠุฉ โ€ข ุงู„ุชุฌุงุฑุจ ุงู„ุฃูˆู„ูŠุฉ ุฃุธู‡ุฑุช ุนูˆุฏุฉ #ุงู„ุฎู„ุงูŠุง_ุงู„ุนุตุจูŠุฉ ุฅู„ู‰ ุทุจูŠุนุชู‡ุง ุจุนุฏ 60 ูŠูˆู…ุงู‹ ู…ู† ุงู„ุนู„ุงุฌ alqabas.com/article/5842342

ALS ๐Ÿ‡ฐ๐Ÿ‡ผ (@alsgulf) 's Twitter Profile Photo

*LIVE!* @ 1 PM CST TUES, MAY 25! Watch a U.S. FDA/#ALSA "session rebuttal", PLUS more about the updated version of #AACT coming soon! NME's FB page will (again) be "ground zero" for the battle in real time. pALS won't be denied again! The 3rd time's a charm!

*LIVE!* @ 1 PM CST TUES, MAY 25! Watch a <a href="/US_FDA/">U.S. FDA</a>/#ALSA "session rebuttal", PLUS more about the updated version of #AACT coming soon! NME's FB page will (again) be "ground zero" for the battle in real time. pALS won't be denied again! The 3rd time's a charm!
Hande Ozdinler (@drozdinler) 's Twitter Profile Photo

Look how beautiful they are. These are the UMNs, which were once diseased and we made them healthy again by directed gene delivery!

Look how beautiful they are.
These are the UMNs, which were once diseased and we made them healthy again by directed gene delivery!
ALS ๐Ÿ‡ฐ๐Ÿ‡ผ (@alsgulf) 's Twitter Profile Photo

ููŠ ู‡ุฐุง ุงู„ูŠูˆู… ู…ู†ุฐ ุนุงู…ูŠู† ุŒุนุงู†ูŠุช ู…ู† ุนู„ุงุฌ ุบูŠุฑ ุญูŠุงุชูŠ ู„ู…ุฑุถ ุงู„ุชุตู„ุจ ุงู„ุฌุงู†ุจูŠ ุงู„ุถู…ูˆุฑูŠ ูˆู…ุง ุฒู„ุช ุบูŠุฑ ู…ุนุฑูˆู ู…ุง ุชู„ู‚ูŠุชู‡ ุงู„ูŠูˆู… .ู‡ู„ ุฃุนุชู‚ุฏ ุฃู†ู†ูŠ ูƒู†ุช ุณุฃุชู…ูƒู† ู…ู† ู…ุดุงู‡ุฏุฉ ุงุจู†ุชูŠ ูˆู‡ูŠ ุชุชุฎุฑุฌ ู‡ุฐุง ุงู„ุนุงู… ุจุฏูˆู† ุงู„ู…ุญุงูƒู…ุฉุŸ ู‡ู„ ุฃุนุชู‚ุฏ ุฃู†ู†ูŠ ุณุฃู…ุดูŠ ุงู„ูŠูˆู… ุจุฏูˆู† ุงู„ุญู‚ู† ุงู„ู…ุฌู‡ูˆู„ุŸ BrainStorm @ThurmanTough #NurOwn #ENDALS

ููŠ ู‡ุฐุง ุงู„ูŠูˆู… ู…ู†ุฐ ุนุงู…ูŠู† ุŒุนุงู†ูŠุช ู…ู† ุนู„ุงุฌ ุบูŠุฑ ุญูŠุงุชูŠ ู„ู…ุฑุถ ุงู„ุชุตู„ุจ ุงู„ุฌุงู†ุจูŠ ุงู„ุถู…ูˆุฑูŠ ูˆู…ุง ุฒู„ุช ุบูŠุฑ ู…ุนุฑูˆู ู…ุง ุชู„ู‚ูŠุชู‡  ุงู„ูŠูˆู… .ู‡ู„ ุฃุนุชู‚ุฏ ุฃู†ู†ูŠ ูƒู†ุช ุณุฃุชู…ูƒู† ู…ู† ู…ุดุงู‡ุฏุฉ ุงุจู†ุชูŠ ูˆู‡ูŠ ุชุชุฎุฑุฌ ู‡ุฐุง ุงู„ุนุงู… ุจุฏูˆู† ุงู„ู…ุญุงูƒู…ุฉุŸ ู‡ู„ ุฃุนุชู‚ุฏ ุฃู†ู†ูŠ ุณุฃู…ุดูŠ ุงู„ูŠูˆู… ุจุฏูˆู† ุงู„ุญู‚ู† ุงู„ู…ุฌู‡ูˆู„ุŸ
<a href="/BrainstormCell/">BrainStorm</a> @ThurmanTough #NurOwn #ENDALS
No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

BrainStorm #NUROWN is "82.5% predictive of treatment response" with biomarkers. Nurown is undeniably SAFE, EFFECTIVE, and MUST BE APPROVED NOW! WHY are you DENYING ALL #ALS HOPE? KEEP YOUR PROMISE Dr. Janet Woodcock FDA Biologics Tracy Beth Hรธeg, MD, PhD U.S. FDA! SENATE HEARINGS! Sen. Jim Inhofe

<a href="/BrainstormCell/">BrainStorm</a> #NUROWN is "82.5% predictive of treatment response" with biomarkers. Nurown is undeniably SAFE, EFFECTIVE, and MUST BE APPROVED NOW! WHY are you DENYING ALL #ALS HOPE? KEEP YOUR PROMISE <a href="/DrWoodcockFDA/">Dr. Janet Woodcock</a> <a href="/FDACBER/">FDA Biologics</a> <a href="/FDACDERDirector/">Tracy Beth Hรธeg, MD, PhD</a> <a href="/US_FDA/">U.S. FDA</a>! SENATE HEARINGS! <a href="/JimInhofe/">Sen. Jim Inhofe</a>
ALS ๐Ÿ‡ฐ๐Ÿ‡ผ (@alsgulf) 's Twitter Profile Photo

#ACTforALS ุชู… ุงู„ุชูˆู‚ูŠุน ุนู„ู‰ ู‚ุงู†ูˆู† ุงู„ูˆุตูˆู„ ุงู„ู…ุชุณุงุฑุน ุงู„ู‰ ุนู„ุงุฌุงุช ู…ุฑุถู‰ ุงู„ุชุตู„ุจ ุงู„ุฌุงู†ุจูŠ ุงู„ุถู…ูˆุฑูŠ ๐Ÿคฒ๐Ÿป

Scott Smith (@scottfightsals) 's Twitter Profile Photo

Today, President Donald J. Trump signed #ACTforALS into law, bringing hope to thousands just in time for the holidays. Many of you are a part of this, advocating for this bill to your respective representatives. Thank you from the bottom of my heart. Look what we accomplished! How cool is that!! ๐Ÿ’ช

Today, <a href="/POTUS/">President Donald J. Trump</a> signed #ACTforALS into law, bringing hope to thousands just in time for the holidays. Many of you are a part of this, advocating for this bill to your respective representatives. Thank you from the bottom of my heart. Look what we accomplished! How cool is that!! ๐Ÿ’ช
I AM ALS (@iamalsorg) 's Twitter Profile Photo

โ€œToday, hope became tangibly real through this law for every person living with and impacted by ALS.โ€ - Megan B. Miller bit.ly/3er4mN7