Join I AM ALS on Wednesday, December 15 for a conversation with Dr. Albert La Spada at UC Irvine! Dr. La Spada will give an update on his research, funded by I AM ALS' research grant in 2020, and take questions. RSVP to receive the Zoom information! bit.ly/3GrdRrV

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Amazing! so exciting to watch the tremendous progress in gene editing technology over the last decade and the #hope that comes with it. #genetherapy broadinstitute.org/news/new-prime…

Make hope REAL this holiday season. Take action against #ALS! From spreading awareness to sharing support, there are endless ways to make an impact from all angles, at every level. No matter where you’re at, your actions matter. Join us!: bit.ly/3rmHk1V #TakeAction

BREAKING NEWS: #ACTforALS has just passed the Senate and is on it’s way to President Donald J. Trump. Hope is real for ALS patients thanks to you. The impossible is possible. #NeverGiveUp

BREAKING NEWS: ACT FOR ALS JUST PASSED IN THE SENATE

President Biden signs the Accelerating Access to Critical Therapies for ALS Act into law. x.com/i/broadcasts/1…

Today, I signed the Accelerating Access to Critical Therapies for ALS Act. Thanks to a movement led by patients and caregivers and bipartisan members of Congress, we are finally closer than ever to new treatments, and hopefully a cure.

Never question if you are making a difference. After tens of thousands of you relentlessly took action to change history, #ACTforALS was signed into law. Thank you, President Donald J. Trump for giving tangible hope to every person impacted by ALS today.

"But, remarkably, he and Abrevaya have galvanized what is likely the most successful patient advocacy campaign of the 21st century." And we're just getting started! Thank you @levfacher and STAT for this incredible piece.

People living with ALS deserve access to safe and effective treatments. ASAP. We are calling on @BrainStormCell and U.S. FDA to work together to urgently move NurOwn, a promising treatment, through the regulatory process. Join us and sign this petition: bit.ly/3KGubrG

My heart and gratitude go out to Brian Wallach and Sandra Abrevaya. Their advocacy within the ALS community will impact many going forward—and I was proud to work with Senator Senator Chris Coons on the ACT for ALS bill (now law) with their help.

Today we submitted a set of community-centered ALS research priorities to the @NINDSnews Request for Information. We commend NINDS for engaging the ALS community early in the process and urge them to continue collaborating with those most impacted by ALS. bit.ly/3LmosYi

AMX0035 is both safe and effective. Tell the FDA what the data mean to you. #2points6months #fda #als

Hey #ALS Research Community - Chan Zuckerberg Initiative is currently accepting applications from research teams for 4-year projects that will advance the science and understanding of rare diseases. Awards total $2,000,000 USD for four years for each project. bit.ly/3tZy2bN

The CDMRP recently released 2022 @DeptofDefense funding opportunities. An Amyotrophic Lateral Sclerosis Research Program is on the list awarding work on clinical trials, biomarkers and therapies. Learn more here: bit.ly/3qohdX7 #ALSFunding

CSP's Giving Smarter Guide on ALS is live. The guide identifies 6 scientific barriers and ways philanthropy can change the trajectory of ALS. We hope to inspire and further align researchers, funders, or anyone in the ALS community eager to find answers. bit.ly/3BqYmQQ

What would it look like if more companies decided to "go purpose"?