HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

RTI reveals that no patient with spinal muscular atrophy SMA at AIIMS, New Delhi has received funding for treatment under the National Rare Disease Policy. #RareDisease #SMA #HealthForAll #Spinalmuscularatrophy Daphne Clarance Priyanka Sharma

Vladímir Putin 🇷🇺ᴾᵃʳᵒᵈʸ भारत में ड्यूचेन मस्कुलर डिस्ट्रोफी(DMD) के पीड़ित दवाई एवं इलाज के अभाव में प्रतिदिन तड़प-तड़प कर मौत के भेंट चढ रहे है।यह मोदी सरकार सिर्फ अपने बहबाई में लगे है। माननीय रूस के राष्ट्रपति महोदय पुतिन ऐसे भयावह बीमारी का इलाज उपलब्ध कराकर विश्व गुरू का दायित्व को निर्वाहन करे।

Congress मस्कुलर डिस्ट्रोफी(DMD).के बिमारी से पुरे देश में त्राहीमाम है,प्रतिदिन पीड़ित दवाई इलाज के अभाव में लोग तड़प-तड़प कर मर रहे है। निदर्द सरकार कुछ करने को तैयार नही है। हाईकोर्ट के सुझाव को भी नही मानते बच्चे दवाई एवं इलाज नही देने के हठ पर बच्चे के खिलाफ सुप्रीम कोर्ट चली गई।

. Subhash kumar dhiman Daphne Clarance Priyanka Sharma Rema Nagarajan Sowmya R Ankush Dobhal🇮🇳 Md Sabeeh Ahmad Sanjay Singh AAP Fauzia Khan rajnish HANUMAN BENIWAL PMO India Will raise this issue in parliament again. #SMA must get covered in AIIMS, New Delhi 🇮🇳 & regional AIIMS under the National Rare Disease Policy

Vivek Tankha Daphne Clarance Priyanka Sharma Rema Nagarajan Sowmya R Ankush Dobhal🇮🇳 Md Sabeeh Ahmad Sanjay Singh AAP Fauzia Khan rajnish HANUMAN BENIWAL PMO India AIIMS, New Delhi 🇮🇳 Honorable MP, You have raised the issue of #SMA Children in Parliament. Sadly RTI reveals that #AIIMS DELHI has not provided treatment under the NPRD. If the government approves Indian pharma companies can produce a generic version of #Risdiplam making it affordable for children

Our children's health is deteriorating day by day. Although the medicine is available, but we are unable to provide it to our children because its price is beyond the reach of common people Save Kids Narendra Modi Vivek Tankha Jagat Prakash Nadda AIIMS, New Delhi 🇮🇳 Sheffali Gulati Ministry of Health

Jagat Prakash Nadda Ravindra Waikar Anupriya Patel Nitish Kumar Shambhavi Choudhary - शाम्भवी चौधरी Even without GST #Sma medicine remains unaffordable. #Risdiplam costs 72 lakh rupees annually, but if made in India,it could be 3000 rupees, saving many children's lives. Imagine this is your own child🙏

PMO India Narendra Modi @HealthMinistryIndia Jagat Prakash Nadda President of India @ICMR @AIIMSDelhi Ministry of Health @AllTVChainal @CJISupremeCourtIndia. एक वर्ष के अंदर बिहार सहित अन्य राज्य के सैकड़ो DMD पीड़ित इलाज के अभाव में तड़प-तड़प कर दम तोड़ चुके। कबतक ऐसे मासूम मरते रहेंगे।

Samay Raina The Indian SMA (Spinal Muscular Atrophy) community demands a public apology from u 4 hurting d sentiments of a parent n child battling this life threatening neuromuscular rare disease Ministry of Health Ministry of Social Justice & Empowerment, GOI Supreme Court of India Teena Thacker Vikas Dandekar Abhijit Majumder

King Kohli 💪💪 Congratulations to Team India

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.

.Pitt Neurosurgery & UPMC PM&R researchers developed a drug-free, minimally invasive intervention for #SpinalMuscularAtrophy -- pilot clinical trial results showed improved motoneuron function, reduced fatigue, & better strength & walking in all participants. go.upmc.com/4381ICGsL

youtube.com/live/NFhbRs4TC…

facebook.com/share/p/1EHT6J… Heartfelt gratitude to God almighty, My amazing parents in Heaven, My loving son Makrand and family, Mentors, wellwishers,friends, parents of my loving patients for all your blessings, kind understanding and support for this honour

#RunforSMA Proudly led by a Indian Coast Guard Veteran & Cure SMA Foundation of India 🇮🇳, the 3rd edition of #RunForSMA is happening on 10 Aug 2025 at Gachibowli Stadium, #Hyderabad. Join this Run of hope, purpose & awareness for Spinal Muscular Atrophy – a rare yet preventable genetic disorder.

Meet Pranjali, a #SMAWarrior! Despite Spinal Muscular Atrophy, she's found strength & joy in painting. "Art makes her feel alive!" Let's celebrate her resilience & creativity this #SMAwarenessMonth! 💕🎨 #CureSMA #SMArt