मा.श्रीVishwajit Raneजी👏 यह जानकर बहुत खुशी हुई की गोवा की राज्य सरकार के द्वारा स्पाइनल मस्कुलर एट्रॉफी पीड़ित मरीजों को निशुल्क इलाज देने वाला पहला राज्य बना बहुत-बहुत शुभकामनाएं मा.श्रीSukhvinder Singh Sukhuजी👏 हिमाचल के #SMA पीड़ितों को भी निशुल्क इलाज दिया जाए 🙏

Cure SMA Foundation of India 🇮🇳 Ministry of Health Dr L Swasticharan NITI Aayog स्पाइनल मस्कुलर एट्रॉफी जानलेवा प्रगतिशील बीमारी का भारत में शोध शुरू होगा PMO India Ministry of Health ICMR , IIT Kanpur कानपुर की शोध टीम को मेरी तरफ से शुभकामनाएं (आत्मनिर्भर भारत) Cure SMA Foundation of India 🇮🇳 समस्त परिवार को शुभकामनाएं 🙏

Many thanks vinod kumar menon Mid Day 4 supportin rare disease community we Cure SMA Foundation of India 🇮🇳 hv been writin to Nirmala Sitharaman Ministry of Finance 4 GST exemption on #Risdiplam lifesavin drug4 SMA in India Narendra Modi Jagat Prakash Nadda Ministry of Health PMO India #BattleAgainstSMA mid-day.com/mumbai/mumbai-…

Many thanks Sir Amitabha Bandyopadhy for understanding the patients n parents situation n highlighting it. 🙏. Cure SMA Foundation of India 🇮🇳 has demanded public apology from him n considering other options as well. Abhijit Majumder

For the first time, Spinal Muscular Atrophy treated in utero. nature.com/articles/d4158…

Cure SMA Foundation of India 🇮🇳

Meet Deeksha, 15 & full of dreams! 🌟 Pilot? Too risky. Doctor? Too many years! Soldier? Too dangerous. Model? Too many veggies! 😅 SMA hasn't stopped her from dreaming big. Let's amplify voices like hers this #SMAAwarenessMonth! 💜 #LifeWithSMA #SMAWarrior #DreamBig

Akriti's journey with SMA Type 1 is truly inspiring! Diagnosed at 4 months,started Risdiplam at 7 months now sits without support, paints, sings rhymes & dreams big! Let's keep spreading awareness and hope! 💕 #CureSMAIndia #SMAAwareness #Risdiplam #HopeInMedicine #RareButStrong

Meet Dr. Abhinand from Chennai — an SMA Type 2 warrior who turned challenges into milestones From living with SMA to earning a PhD in Bioinformatics & becoming an Assistant Professor, his journey proves strength isn’t in steps, but in courage. 💪 #SMAAwarenessMonth #LifeWithSMA

Our #SMArtWarrior Mahima spoke at Google’s Awareness Session . She shared how crowdfunding gave her access to Risdiplam, halting disease progression & giving her strength to attend online classes. She urges us to raise awareness & support SMA warriors. #SMAAwareness #HopeForSMA

Virtual #Run4SMA Cure SMA Foundation of India 🇮🇳 extends its deepest gratitude 2 d Indian Coast Guard 4 deir remarkable commitment in championing d cause of Spinal Muscular Atrophy #SMAAwareness by holding Virtual #Run4SMA across LxB of India bustling cities 2 d most remote corners of our nation🙏.

Indian Coast Guard You've truly demonstrated what it means 2 serve not only at sea but also on land — standing in solidarity with a cause that touches countless lives. You've gone far beyond a symbolic gesture 👍👏🙏

Yr efforts've brought visibility 2 SMA n ignited conversations dat lead 2 life changing action. Cure SMA Foundation of India 🇮🇳 salutes d Indian Coast Guard 4 being true partners in dis mission. 2gether, v run, raise awareness, n move 2wards a future whre no child’s potential is limited by SMA👍🙏

Meet Rudraunsh, a cheerful SMA warrior! 🌟 His parents are crowdfunding for Zolgensma, a life-changing treatment. Let's spread awareness & support this amazing family! 💕 #SMAAwareness #CrowdfundingForLife #SMAWarrior

Request to establish a “Centre of Excellence” for Rare Diseases at AIIMS, Bilaspur, Himachal Pradesh Registration Number DHLTH/E/2025/0021858