Thanks to Louise Kinross Holland Bloorview for this thoughtful interview. Our findings might be based on parent carers in England, but the message is global. In every country around the world, disabled children & their parents need better support. hollandbloorview.ca/stories-news-e…

I’ve heard from an exhausted mum who has devoted her life to #caring for her child with highly complex needs. She’s now been told by Social Services they are likely to lose vital #DirectPayments. If any #UnpaidCarers have experience of how to navigate this situation please DM.

‘We’ve heard from mothers that it's a ‘broken system’’ Woman’s Hour is airing a special programme all about SEND (Special Educational Needs and Disabilities) in September. Do you have experience of navigating the SEND system? Perhaps you’re looking for advice? Get in touch ⬇️

please share this on,yet again Eurostar not coming up with the goods: don’t want to take my son’s hoist it’s the only way we can have a holiday in Amsterdam: have written many emails agreeing this over the last eight weeks! Same mess last year with my other son! Eurostar!!!🤯

Episode 3 #CareFullyConsidered #podcast is out.  John and Sophie Gaston, parent carers & entrepreneurs, emphasize the importance of leveraging unique skills developed from caregiving and unexpected opportunities that arise from challenging circumstances. player.captivate.fm/episode/934ae1…

2 months in PICU has left me feeling like I've attained some new level of the SEN parenting experience. Like I've suddenly been awarded 3rd Dan parent carer-ing 🤣 But the bummer is, I never wanted my experience to progress this way, and I'm bloody certain A didn't either.

Our latest #podcast episode has it all: inspiration, unpaid caring, SEND parenting, education, entrepreneurship, and how to live a good life differently. I *loved* this conversation- hope you will too. Listen here : podcasts.apple.com/gb/podcast/car… Katy Styles We Care Campaign theexamman

The📘also show the economic impact of #LongCovid on informal #Carers. On ave., participants had received informal care from friends/family est. to be worth £9,000 (£4.8 billion if scaled up fo UK). 23% worked fewer hours to accommodate caring - the value of care= £8,726 each.👛

It’s the job advert none of us wish to apply for, but end up having ⬇️ Do read this post!

"As a #carer, I am privileged to be able to work. I hang on by my fingernails every day, so I can keep the only thing I have left of my life. I’m in a position millions of people will find themselves in at some point in their lives, & any legislation that eases that burden..⤵️

The launch of Joseph Rowntree Foundation Minimum Income Standard throws into stark reality the problems for unpaid #carers who are existing on Carers Allowance.

I’m currently caring full-time and receiving carers allowance so I couldn’t resist working out how caring compares to the minimum income standard. Assuming the max work income allowed + top up UC, unpaid carers income is less than 60% of what Joseph Rowntree Foundation find is needed to live well.

Adrian Ashton Carers UK We Care Campaign Patrick Butler LinkedIn Carers Trust Being a carer does develop a lot of transferable skills - we talked about this very thing on our latest pod episode too with the powerhouses behind the theexamman : podcasts.apple.com/gb/podcast/car…

My The Guardian story: UK’s poorest households face another winter of hardship, charities warn, as The Trussell Trust research shows two-thirds of working families on universal credit are struggling to afford food and energy theguardian.com/society/articl…

BREAKING 🚨 Almost half of people claiming Universal Credit ran out of food in the last month and did not have enough money to buy more. Universal Credit is falling short and pushing people to food banks. People cannot wait for an economic turnaround to improve their current

Next Monday, a statutory public inquiry will open into the deaths of mental health inpatients in Essex. Without the courage, persistence and determination of bereaved families and survivors campaigning - the inquiry would not be happening. bit.ly/4dOzQKb

So pleased that this work by Dr Siobhan O'Dwyer was highlighted in last night’s adjournment debate by Wendy Chamberlain It’s vital research that highlights why every government department has a part to play in any future Carers Strategy ⬇️

Two papers submitted today. One on burnout in parents caring for disabled children. The other on homicides & homicide-suicides perpetrated by unpaid carers. Hoping for swift, positive reviews🤞🏻🤞🏻so we can start using the findings to inform better policy & practice for carers.

Woman, 86, told she no longer has to repay £13,000 in benefits in DWP U-turn theguardian.com/society/articl…

In his parliamentary debate on #SEND provision, Richard Burgon MP called for the scrapping of Safety Valve ✅, the cancelling of LA high needs debt ✅ and for government to discourage the demonisation of "pushy parents" who are forced to fight for their children's support. We concur