Please sign and share this petition. All adults with #cysticfibrosis in England should have free prescriptions in line with other regions of the UK and other chronic illnesses. petition.parliament.uk/petitions/6337… #WearYellowDay #wearyellowday2023 #cfyelfie #cfaware #CFWeek #cfawareness

Today I am wearing yellow in support of my Grandson and all those #CFwarriors that fight for their best lives daily. Cystic Fibrosis Foundation Cystic Fibrosis Trust cf/Aware cf/Aware

I may have been a day early yesterday but I am once again wearing yellow today as part of #WearYellowDay for #CFWeek2023. Thank you for everything you do Cystic Fibrosis Trust

🔸From the UK to Florida - jet lag ✈️ 🔹Had never paddled on the sea (only rivers) 🔸New to paddle boarding Team Neon have completed their 80 mile paddle board challenge raising awareness about the need for global access to #Trikafta along the way. classy.org/team/454643

In June, over 2,000 researchers, doctors and CF teams gathered at the European CF research conference, organized by European CF Society (#ECFS), discussing the latest news in #cysticfibrosis. #ResearchAppreciationDay (1/3)

Very worthwhile cause Matt Hancock Accessible Learning Foundation (ALF) - well done! Please don’t forget screening and in depth teacher education for #dyscalculia #dyspraxia #adhd #asd Current assessment pathway is *failing * young people. #Neurodiversity Neurodiversity Celebration Week Ps Matt-comments need to be on.

Quite right Matt Hancock Every child deserves to ‘reach their potential’ -we need Educational Psychologists IN schools, LOOKING for the 20% of people who need *different*support to achieve theirs. Reduce future issues, Empower people to achieve more. “Who are my 20%? “

Are you a parent of a child with CF wishing to have the opportunity to ask teens & young adults with CF about their experiences? Join @cftrustyouth online! Ask YAG parents' evening, Monday 25, 7.30pm. Email [email protected] to join this event.

I have some terrifically terrible news. This Sat I will be asking Daniel Handler a series of unfortunate questions at Alexandra Palace (North London Book Fest), and then on Sun at OxfordLitFest. Oxford has sold out. Final lethal tix for Alexandra Palace here; bit.ly/49nJ126

Well done Matt Hancock All children deserve to thrive, & reach their full potential. Fully support screening in schools for #Neurodiversity -unlocking potential for the 20%. Every school needs to ask #WhoAreMy20%? Looking forward to hearing the details screening &support

It would be incomprehensible to deny #LifeSavingDrugs4CF to some #cysticfibrosis patients based on NHS contract renewal dates. #Kaftrio has given @mycfhero normal function / a future. We must dothe same for all patients. Victoria Atkins Will you #LetThemLive? Daily Express

Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community. ow.ly/XGMs50SmgJR

Friday 21st June is Wear Yellow Day! Raising awareness & funds for Cystic Fibrosis Trust. Join Jenny tomorrow in something yellow and here's some inspiration from previous years!

Our lovely ambassador Jenny Agutter News looking fabulous in yellow! 💛 #WearYellowDay

💛 We're marking the end of #CFweek in style! Medicines Discovery Catapult and CF AMR Syndicate wearing yellow to support the Cystic Fibrosis Trust. #WearYellowDay2024 #CysticFibrosis

Today is #WearYellowDay, the culmination of Cystic Fibrosis Awareness Week, organised by Cystic Fibrosis Trust to raise awareness of the condition that affects over 11,000 people in the UK. Find out more about the trust, who are celebrating their 60th birthday, and its work supporting

Welcome to London Taylor Swift 🤩🥰 We couldn’t get tix - but have a blast! Back to Disney+ for us x #cfweek #WearYellowDay

Happy Bday M8! London shows are off to a splendid start 🇬🇧🇺🇸🤝 The Prince and Princess of Wales

NICE approves Alyftrek for treating cystic fibrosis in people with a specific genetic form of the condition. The once-daily therapy is now available for those eligible aged 6 and over, following swift approval after UK licensing. Full guidance: nice.org.uk/guidance/ta108…